Join Us

We are 218,613 members in 84 forums discussing 161,137 topics.

Help with Abbreviations

Topic: Starting Chemo April 2020

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Mar 25, 2020 02:16PM - edited Jun 20, 2020 12:21AM by jelloelloello

jelloelloello wrote:

Hey everyone! I'm starting the group for those of us starting chemotherapy in April 2020 (or the end of March, whatever works for you). Please join in!

I actually don't know my start date yet... I'm waiting to find out if I was approved for a clinical trial, which will determine my treatment plan and start date. The call/email should come this week, so I'm just anxiously waiting for it, but the plan is to start chemo next week. My treatment plan is 5-6 months of chemotherapy (AC-T), mastectomy plus lymph nodes, then radiation.

This is a super weird time to be dealing with cancer and the COVID-19/Coronavirus pandemic, but I think sharing the weirdness, frustrations, questions and positive thoughts with each other will be helpful.

Thanks! Much aloha!

Jess

-------------------------

APRIL 2020 ROLL CALL

Username (name we can call you) - [location] - known or likely start date for chemo

  • ARmom4 (Kelly) - [Arkansas, USA] - 3/27 / 4/17
  • AuthorSpot (Stacey) - [Illinois, USA] - 3/31
  • bazcla (Claud) - [Texas, USA] - 5/14
  • Bon43 (Bonnie) - [Nova Scotia, Canada] - 4/6
  • BostonGal (Allie) - [Massachusetts, USA] - 4/16
  • ByHisGraceTwice ( j ) - [Texas, USA] - 4/1
  • CCgirl (Nan) - [Massachusetts, USA] - 5/4 (but we're keeping her in the April family!)
  • CocoB122 - [Kansas, USA] - 4/?
  • Dawn1027 (Dawn) - end of April
  • Debra1111 (Debra) - 4/15
  • Dup403 - [Alberta, Canada] - 3/31
  • Emmyvan - [New York, USA] - 4/2
  • Faith2020 (Faith) - [Texas, USA] - 4/9
  • HI109 (Emma) - [New York, USA] - 3/31
  • hnsquared (Heather) - [Colorado, USA] - 4/1
  • hog_co-pilot (Les) - 4/30
  • Hurricaneblair (Erin) - [Illinois, USA] - 4/9
  • ipenelope (Katie) - [Minnesota, USA] - 4/20
  • JavaJana (Jana) - [Texas, USA] - 4/8
  • jelloelloello (Jess) - [California, USA] - 4/2
  • Jettie - 3/11 (started in March but there's room for everyone in the April family!)
  • JustyneF (Justyne) - [Illinois, USA] - 4/6
  • LiseC (Lise) - [Florida, USA] - 4/10
  • Molly5678 (Molly) - 4/15
  • Mudstick - 4/22
  • NicoleRod (Nicole) - 4/23
  • Oldest4Sis (Michelle) - [Delaware, USA] - 4/2
  • pennythepest (Penny) - 1/3... then a break... then started again in May
  • pjb61 - [Illinois, USA] - 4/20
  • Shareliz54 - [Nova Scotia, Canada] - 4/24
  • ShellyRM (Shelly) - [California, USA] - 4/22
  • Smitty1963 - 4/24
  • Sueshe55 (Robin) - [Florida, USA] - 5/26
  • Sugar77 (Sherri) - [Mississauga, Canada] - 4/3
  • sunandsea (Vilija) - [California, USA] - 4/30
  • wahoomama87 (Kris) - [Georgia, USA] - 4/10
  • zee72 (Zarin) - [Dubai, UAE] - 4/7

*** NEW! Join our private Facebook group! ***

If you're interested in connecting with us on Facebook, send a PM to wahoomama87 (Kris). Be sure to give her your email address that you use for FB. That's the only way she can "find" you to invite you, since we're not "friends" on there (yet)!

Dx 2/13/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH) Immunotherapy 4/2/2020 Chemotherapy 4/2/2020 AC + T (Taxol) Radiation Therapy Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right
Log in to post a reply

Page 3 of 29 (867 results)

Posts 61 - 90 (867 total)

Log in to post a reply

Apr 3, 2020 03:44PM - edited Apr 3, 2020 03:45PM by wahoomama87

BostonGal - thanks for sharing the port info! I get mine on Wednesday. Tea Tree Oil is an anti-fungal and can help your nails.

Zee72 - I'm nervous too! We'll get through this together. Let me know how it goes on Monday.


Kris


Dx 3/23/2020, IDC, Right, 2cm, Stage IIB, Grade 2, 1/4 nodes, ER+/PR+, HER2+ Chemotherapy 4/10/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/10/2020 Herceptin (trastuzumab) Targeted Therapy 4/10/2020 Perjeta (pertuzumab) Surgery 8/24/2020 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
Log in to post a reply

Apr 3, 2020 05:52PM BostonGal wrote:

I will "train" for chemo next week!. My nurse trainer told she hopes I can then start chemo the week of 4/13. That's "good news" to me as my port was just inserted yesterday and it's good to have time for that to heal. So far, my port's been a bit annoying only in that it became itchy today. This could be from the steri-strips, glue, and antiseptic applied to the skin I was told by my wonderful oncology nurse and that I could use Claritin to try to calm this down. Hope I don't jinx things by saying I think it is working. Got to take nice shower today as well and am looking forward to dinner, resting in fresh bed linens and watching some entertaining shows. And my cat, who spends the evenings warming my feet and heart...It's the simple gifts that make the difference I tell ya' ladies and I am grateful. Blessings to all.

And as to my locale, I am a real Boston, MA Gal!

Dx 1/2020, ILC, Right, 4cm, Stage IB, 4/4 nodes, ER+/PR+, HER2- Surgery 8/31/2020 Lymph node removal: Right Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol) Radiation Therapy
Log in to post a reply

Apr 3, 2020 09:35PM - edited Apr 3, 2020 09:39PM by JavaJana

Hello all! After a "telemedicine" follow up with my oncologist this afternoon, it looks like I may be finally starting chemo next Wednesday 4/8. My story is ridiculously insane (long version posted elsewhere), and I'm both glad to finally begin and of course nervous. I hope we can all deal with the corona stressors on top of the cancer ones. Looking forward to getting to know you better! Jana in SE Texas

Xgeva 9/2/2020. History: 2 Borderline Serous Ovarian Carcinoma TAH/BSO, 0/15 nodes - 2/18/20. Benign Papilloma/ADH Left breast, excisional biopsy 10/11/2016 Dx 10/1/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (IHC) Dx 10/23/2019, LCIS/DCIS, Right, 0/1 nodes Surgery 11/18/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 3/25/2020, IDC, Stage IV, metastasized to bone, 0/2 nodes Chemotherapy 4/7/2020 Taxotere (docetaxel) Targeted Therapy 4/7/2020 Perjeta (pertuzumab) Targeted Therapy 4/8/2020 Herceptin (trastuzumab) Hormonal Therapy 8/12/2020 Femara (letrozole)
Log in to post a reply

Apr 4, 2020 07:52AM BostonGal wrote:

Greetings JavaJana!

Dx 1/2020, ILC, Right, 4cm, Stage IB, 4/4 nodes, ER+/PR+, HER2- Surgery 8/31/2020 Lymph node removal: Right Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol) Radiation Therapy
Log in to post a reply

Apr 4, 2020 08:44AM zee72 wrote:

My name is Zarin, you can address me either which way. In school, Zee was my nick name! About working during the next few months as I get the chemo... Due to the virus, we are barely seeing any patients, since the criteria to see a physiotherapist is very specific. Most consults are over the phone. Spending rest of the time working on projects and preparing patient education material. So in this way the virus is a blessing! Silver linings...

Tomorrow I go in for my cardiology appointment, followed by putting in the port on Monday. It’s comforting reading everyone’s responses. We are all geographically far but I’m so happy to have this connection.

Dx 3/23/2020, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR-, HER2+ (FISH) Chemotherapy 4/6/2020 Carboplatin (Paraplatin), Taxol (paclitaxel) Targeted Therapy 4/6/2020 Herceptin (trastuzumab) Chemotherapy 4/6/2020 Chemotherapy
Log in to post a reply

Apr 4, 2020 12:04PM BostonGal wrote:

I am glad Zee to hear you too are finding reassurance here! My port , inserted Thursday, was unsurprisingly a little sore/uncomfortable for about one day, for which I took few Tylenol only. But...I must say, what bugged me and worried me was that it got itchy, likely due to steri-strips, glue , and the antiseptic used my oncology nurse said. I took Claritin after approval by the nurse and today I seem to be fine.

I enjoy hearing you are working on projects - that inspires. BostonGal

Dx 1/2020, ILC, Right, 4cm, Stage IB, 4/4 nodes, ER+/PR+, HER2- Surgery 8/31/2020 Lymph node removal: Right Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol) Radiation Therapy
Log in to post a reply

Apr 4, 2020 05:05PM - edited Apr 4, 2020 06:02PM by ByHisGraceTwice

jelloelloello — I'm so grateful my words gave you reassurance before your treatment. Even more grateful your treatment went well.

This is what I've taught my daughter and GrandChuckles to prepare them for the day I'm no longer here. Whenever we say goodbye, I blow them a kiss. They catch it and put it on their cheek. No matter where or when for the rest of their lives, they always can put a hand on their cheek and feel my love.

You're now a part of my family circle, so whenever you're feeling unsettled or scared, just put your hand on your cheek and feel me hugging you and saying “everything's gonna be ok."

I'm in Dallas: my hugs and kisses are Texas sized. :>)

j

.

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)
Log in to post a reply

Apr 4, 2020 05:21PM Hurricaneblair wrote:

I wish we could comment directly under a post...it gets a little confusing scrolling up and down and between pages to see all the posts, so in general...HELLOOOO to our couple of newbies who have joined our group...Zee, Jana, and AuthorSpot and whomever else I have missed.

Grateful to hear that Jess (@jelloelloello) and BostonGal’s chemo and port placement went relatively smoothly.

Had a MO appt yesterday to review PET scan results...overall good, YET there was an area that lit up kinda near my 4th rib on my right side (same side as cancer) that they thInk is an interior mammary lymph node and two small pulmonary nodules (<0.5cm) in both lower lobes. Sooo, I will have a Chest MRI next Friday, April 10. We talked about starting chemo this next week after my port is placed on Tuesday, but in the short distance between the exam room and the front desk and scheduling hassle of the Chest MRI and another appointment with MO next week, we left without actually scheduling the chemo!🤦🏼♀️ I will try to figure out how to send them an email/message this weekend to see if we need to get that scheduled for this week or after MRI.

Erin

PS...Jess... I am from Illinois if you want to put that on the roll call

Dx 3/25/2020, ILC/IDC, Right, 3cm, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 4/9/2020 Perjeta (pertuzumab) Chemotherapy 4/9/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Apr 4, 2020 05:58PM - edited Apr 4, 2020 06:29PM by ByHisGraceTwice

To Everyone —

I've read several of you received your diagnosis only ten days ago. My heart is numb for you because that's how I still was ten days out. I'm in awe of your ability to cope with the news much more so your ability to make monumental treatment decisions while still processing the life altering news you just received.

A weird discovery during my initial breast cancer workup in 2016 delayed the treatment decision making process as test after test was done trying to determine why my pulmonary arteries were so abnormally enlarged. Two months later, the conclusion was surgery to remove the breast lump was the way to go — no other treatment was safe.

There is no treatment for the enlarged pulmonary arteries. Now three and a half years later, they are three times bigger than they were. Thankfully, I lived three years with no evidence of breast cancer progression and my pulmonary arteries did not rupture.

In those three years, I had lots of time to process, to decide what I would do if breast cancer came back — you've had ten days.

Y'all are so brave.

j

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)
Log in to post a reply

Apr 4, 2020 09:12PM Sugar77 wrote:

I agree, it would be so much easier if we could just reply to a post underneath. Welcome to all the new ladies on this thread. The group is growing and we can all get through it together!

I had my first infusion of TC yesterday. I tolerated it fine. It was a little lonely because of the no visitor policy from COVID-19 but I managed. Today I had the Neulasta shot and am feeling a little achy but I took Claritin beforehand and it should help with potential bone pain. I had ice packs on my finger and toe nails during Taxotere infusion and I chomped on ice chips so fingers crossed it helps avoid nail issues and mouth sores. We shall see. Happy Saturday to everyone!

Surgery 9/24/2009 Lumpectomy: Right Dx 10/27/2009, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 12/6/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 12/5/2019, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/26/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 4, 2020 09:55PM Hurricaneblair wrote:

Sherri (Sugar77)...I am so glad to hear you tolerated your first TC fairly well yesterday! And you have proven to us that we can be there alone and manage to make it through.💗 And when we do get lonely, we will put ourhands to our faces and feel J’s(ByHisGraceT) big, Texas sized kiss and know she is telling us “everything’s gonna be okay”.

Did you bring your own ice packs for your hands and feet? Did others look over at you and wonder what you were doing?

Hope you continue to feel okay this weekend.

Erin

Dx 3/25/2020, ILC/IDC, Right, 3cm, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 4/9/2020 Perjeta (pertuzumab) Chemotherapy 4/9/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Apr 5, 2020 12:51AM Hl109 wrote:

Hello everybody!

My first chem was on last week of March. It didn’t go well. I had a severe allergic reaction to the drug, almost passed out inthe chair. It was terrible. The doctor has to order new medication, so waiting for the insurance approval. That was my story so far.

I am so glad to find this group, knowing that I am not alone on this chem journey during once a lifetime covid 19 pandemic. Wish everyone good luck!

Dx 1/15/2020, DCIS/IDC, Left, 3cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
Log in to post a reply

Apr 5, 2020 10:46AM jelloelloello wrote:

HI109: Welcome to the group! You are not alone— you've found a very supportive group of people and we all are here for each other. I’m sorry to hear about your allergic reaction. Hoping that your new medication gets approved quickly so that you can get back on track with your fight!

I’ll add you to the Roll Call at the top— a handy way to keep track of everyone’s names. Please let me know if you’d like to share another name we can call you and/or your state/country to add to the list.

Dx 2/13/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH) Immunotherapy 4/2/2020 Chemotherapy 4/2/2020 AC + T (Taxol) Radiation Therapy Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right
Log in to post a reply

Apr 5, 2020 12:15PM BostonGal wrote:

Reading all the posts and catching up

You all are amazing.

Welcome to new members and fond Sunday greetings to all.

BostonGal



Dx 1/2020, ILC, Right, 4cm, Stage IB, 4/4 nodes, ER+/PR+, HER2- Surgery 8/31/2020 Lymph node removal: Right Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol) Radiation Therapy
Log in to post a reply

Apr 5, 2020 07:47PM - edited Apr 6, 2020 05:07AM by ByHisGraceTwice

HI109 — know allergic reactions leave one feeling yuck for several days. Hope you are improving and feeling stronger today.

j


Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)
Log in to post a reply

Apr 5, 2020 11:39PM Hl109 wrote:

Thanks for the welcoming. You can call me Emma. I am currently living in NYC. The hot zone area.

Dx 1/15/2020, DCIS/IDC, Left, 3cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
Log in to post a reply

Apr 5, 2020 11:55PM Hl109 wrote:

Byhisgracetwice - thank you. I still not feeling 100% back to my old self, but I am getting better.

FIY, ladies. While doing chemo, paid attention to your skin. While I was getting the infusion, my skin on my wholearm was turning red, so I asked two nurses if it was normal. They said it was fine. 10 minutes later, I almost passed out. I did not know I was having a rash on my arm. Should have read the drug information before getting chemo. Next time I will be more careful. Speak up for yourself.

Dx 1/15/2020, DCIS/IDC, Left, 3cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
Log in to post a reply

Apr 6, 2020 12:28AM Sugar77 wrote:

HI109 - wow that’s so scary about the allergic reaction. Glad you’re okay. I learned the hard way the first time doing TC chemo that I reacted to the cyclophosphamide if it was infused at the normal speed. I had to beg the nurse on Friday to run it slower for me. She agreed to run for an hour instead of the usual 30 minutes. Otherwise I get a severe headache and lingering sinus pain.

Surgery 9/24/2009 Lumpectomy: Right Dx 10/27/2009, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 12/6/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 12/5/2019, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/26/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 6, 2020 02:33AM zee72 wrote:

Am leaving home in a few hours to have the porta cath inserted. What advise have you all been given regarding doing upper body exercises with the port? I normally practice yoga on a daily basis which involves a lot of weight bearing through the upper arms.

Look forward to your replies.

Zarin

Dx 3/23/2020, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR-, HER2+ (FISH) Chemotherapy 4/6/2020 Carboplatin (Paraplatin), Taxol (paclitaxel) Targeted Therapy 4/6/2020 Herceptin (trastuzumab) Chemotherapy 4/6/2020 Chemotherapy
Log in to post a reply

Apr 6, 2020 05:04AM - edited Apr 6, 2020 05:05AM by ByHisGraceTwice

Zarin — hope all goes well on the port placement. I've had mine in for ten days now and most all discomfort is gone. Warned not to lift or weight bear for a couple weeks and to let my body guide me. If I felt it, stop what I was doing and give it another few days. Right after told to keep ice on for 20 minutes, off for 20 and repeat. Made a big difference

j

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)
Log in to post a reply

Apr 6, 2020 10:40AM - edited Apr 6, 2020 10:41AM by jelloelloello

Today is Monday morning (where I am in California), so I wanted to give a shout-out to everyone that is supposed to start chemo this week!

  • Justyne (JustyneF): starting today!
  • Erin (Hurricaneblair): maybe starting Tuesday... Let us know if you were able to make your appointment!
  • Jana (JavaJana): starting Wednesday!
  • anyone else?

I am so excited for all of you to take this big first step in your cancer fight! I know it may be scary, but we are all here for you, going through it alongside you, sharing the same fears, worries and questions as you. We're in it together, and that makes me feel better so I hope it does for you, too.

Also a big shout-out to those of you who have already started chemo and are now in your first or second dose. Let us know how it's going, what patterns you've discovered about your side effects, and things you're glad you did or things you wish you did differently.

Thanks to all of us for creating such an awesome, supportive group! I'm so happy to get to know you all. If I missed anyone in the Roll Call, please let me know.

Thanks! -Jess

Dx 2/13/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH) Immunotherapy 4/2/2020 Chemotherapy 4/2/2020 AC + T (Taxol) Radiation Therapy Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right
Log in to post a reply

Apr 6, 2020 10:40AM AuthorSpot wrote:

Zarin— the port is not bad at all. Mine actually flipped over and had to be redone. They said that is super rare though. Lol. But you will have to hold off on the weight bearing yoga for a week or so.

Jess—my real name is Stacey and I live in Illinois. 😉

So I had my first AC treatment last Tuesday, and everything has been relatively easy so far. However, this morning I woke up and hurt all over. Bad headache, sore throat, muscle and bone aches. No fever or chills. I took some Tylenol and it’s a bit better. Seems like a weird delayed reaction. Anyone else

Dx 3/2/2020, IDC, Left, 6cm+, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2-
Log in to post a reply

Apr 6, 2020 11:25AM - edited Apr 6, 2020 11:25AM by jelloelloello

Hi Stacey (AuthorSpot)! Thanks for sharing your info-- I've added it to our list. :) I'm not taking AC (doing Taxol first, then AC afterwards), but I also have had a relatively easy time so far for my first infusion. I didn't feel much until yesterday, which was Day 4 for me-- muscle and bone aches, sore throat. I slept A LOT-- three-hour nap in the afternoon and good sleep at night-- and then this morning (Day 5), I woke up feeling pretty good! No headache, some body aches but mostly I just feel tender like I'm bruised all over but not actually in pain.

Dx 2/13/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH) Immunotherapy 4/2/2020 Chemotherapy 4/2/2020 AC + T (Taxol) Radiation Therapy Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right
Log in to post a reply

Apr 6, 2020 11:25AM jelloelloello wrote:

Fun idea for chemo:

So I've been home during quarantine (L.A. is on lockdown, in addition to my own self-quarantining) and working on cleaning my closet, and I came up with a fun new plan for my chemo treatments. I've decided to dress up for each one, since it's literally the only time I get to leave the house anyway! For my first treatment last Thursday, I just wore my favorite, comfy outfit: a sweater tunic and fleece-lined leggings. But here's my plan for upcoming treatments with fun themes:

2nd treatment: Fancy day - will wear a nice dress and actually put on makeup (it's been a few months since the last time I wore makeup!)

3rd treatment: Disney day - will dress for a fun day at the parks, including Mickey ears

4th treatment: Rave day - will wear some fun, bright things from my rave days, or at least some kandi (bead bracelets)!

5th treatment: Hawaii day - will wear some aloha wear to pretend I'm at home (I'm originally from Hawaii) or on a relaxing tropical vacation

I have 12 weekly treatments of Taxol to work with, but that's all I came up with so far. And maybe I will keep it going through the upcoming 8 weeks of AC treatment, too. I guess I'll just see how I feel!

Dx 2/13/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH) Immunotherapy 4/2/2020 Chemotherapy 4/2/2020 AC + T (Taxol) Radiation Therapy Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right
Log in to post a reply

Apr 6, 2020 11:34AM Sugar77 wrote:

jelloelloello - love this idea so much!! I'm inspired now, too, to spiff up my outfits for my infusions. I'm home in quarantine as well but haven't had the energy to go in my closet. Maybe in a few days I'll muster up some interest in doing more around the house. I'm three days out from chemo and am really trying to take a daily walk (socially distanced, of course) outside. I did 5300 steps on yesterday's walk but it wore me out and my husband and daughter had to cook supper :)

Surgery 9/24/2009 Lumpectomy: Right Dx 10/27/2009, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 12/6/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 12/5/2019, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/26/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 6, 2020 01:27PM pjb61 wrote:

Hi all. I'm enjoying reading about all of your experiences. I won't be starting until the 20th, so not much to contribute yet myself. I do have a suggestion though. It would be helpful to know what type of chemo each of you are receiving. Some have it in their profile and some don't. When someone says they had side effects, I always wonder if they are taking a drug I will be taking.

I wish you all the best! Thinking of each of you and saying prayers that we all get through this. Not exactly a good time to be immuno-compromised but what can we do? It's not like we planned it!

Dx 2/5/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 3/3/2020 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 4/20/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Apr 6, 2020 05:04PM Hl109 wrote:

Sugar77- It is eye opening for me knowing that the infusion time does not to be fixed. I always have the impression it has to be finished in a fixed time.

Unfortunately there is trial and error for us going through this chemo journey.

Dx 1/15/2020, DCIS/IDC, Left, 3cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
Log in to post a reply

Apr 6, 2020 05:29PM - edited Apr 6, 2020 06:32PM by BostonGal

Hi all,

I'm catching up on the new posts. God bless you all.

THE PORT! Yup. It's a foreign object in the chest and I hope with time, I might not even notice it! The itching around its incision has calmed down. But I am definitely not planning on over using my arms for anything given the port and the mastectomy. I reached to turn off a lamp last night and I was reminded of that! It felt like a giant rubber band was being stretched in my arm pit and it slipped! Time and patience are the keywords I guess.

Had my chemo training today - very positive experience.

BostonGal

Dx 1/2020, ILC, Right, 4cm, Stage IB, 4/4 nodes, ER+/PR+, HER2- Surgery 8/31/2020 Lymph node removal: Right Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol) Radiation Therapy
Log in to post a reply

Apr 6, 2020 06:19PM Hl109 wrote:

Zarin - hope everything goes well with the port. I don’t have a port. My treatment is once every three weeks. 4 times, so I will have my vein poked 4 times.

Dx 1/15/2020, DCIS/IDC, Left, 3cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
Log in to post a reply

Apr 6, 2020 06:47PM ByHisGraceTwice wrote:

Emma - which did you react to the Abraxane or Herceptin? Are you feeling better?

BostonGal — what did they teach in chemo training? Anyone else have chemo training? I haven’t been offered anything like that.

Zarin — you doing okay after today’s port install?

j

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)

Page 3 of 29 (867 results)