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Topic: Starting Chemo April 2020

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Mar 25, 2020 02:16PM - edited Jun 20, 2020 12:21AM by jelloelloello

jelloelloello wrote:

Hey everyone! I'm starting the group for those of us starting chemotherapy in April 2020 (or the end of March, whatever works for you). Please join in!

I actually don't know my start date yet... I'm waiting to find out if I was approved for a clinical trial, which will determine my treatment plan and start date. The call/email should come this week, so I'm just anxiously waiting for it, but the plan is to start chemo next week. My treatment plan is 5-6 months of chemotherapy (AC-T), mastectomy plus lymph nodes, then radiation.

This is a super weird time to be dealing with cancer and the COVID-19/Coronavirus pandemic, but I think sharing the weirdness, frustrations, questions and positive thoughts with each other will be helpful.

Thanks! Much aloha!

Jess

-------------------------

APRIL 2020 ROLL CALL

Username (name we can call you) - [location] - known or likely start date for chemo

  • ARmom4 (Kelly) - [Arkansas, USA] - 3/27 / 4/17
  • AuthorSpot (Stacey) - [Illinois, USA] - 3/31
  • bazcla (Claud) - [Texas, USA] - 5/14
  • Bon43 (Bonnie) - [Nova Scotia, Canada] - 4/6
  • BostonGal (Allie) - [Massachusetts, USA] - 4/16
  • ByHisGraceTwice ( j ) - [Texas, USA] - 4/1
  • CCgirl (Nan) - [Massachusetts, USA] - 5/4 (but we're keeping her in the April family!)
  • CocoB122 - [Kansas, USA] - 4/?
  • Dawn1027 (Dawn) - end of April
  • Debra1111 (Debra) - 4/15
  • Dup403 - [Alberta, Canada] - 3/31
  • Emmyvan - [New York, USA] - 4/2
  • Faith2020 (Faith) - [Texas, USA] - 4/9
  • HI109 (Emma) - [New York, USA] - 3/31
  • hnsquared (Heather) - [Colorado, USA] - 4/1
  • hog_co-pilot (Les) - 4/30
  • Hurricaneblair (Erin) - [Illinois, USA] - 4/9
  • ipenelope (Katie) - [Minnesota, USA] - 4/20
  • JavaJana (Jana) - [Texas, USA] - 4/8
  • jelloelloello (Jess) - [California, USA] - 4/2
  • Jettie - 3/11 (started in March but there's room for everyone in the April family!)
  • JustyneF (Justyne) - [Illinois, USA] - 4/6
  • LiseC (Lise) - [Florida, USA] - 4/10
  • Molly5678 (Molly) - 4/15
  • Mudstick - 4/22
  • NicoleRod (Nicole) - 4/23
  • Oldest4Sis (Michelle) - [Delaware, USA] - 4/2
  • pennythepest (Penny) - 1/3... then a break... then started again in May
  • pjb61 - [Illinois, USA] - 4/20
  • Shareliz54 - [Nova Scotia, Canada] - 4/24
  • ShellyRM (Shelly) - [California, USA] - 4/22
  • Smitty1963 - 4/24
  • Sueshe55 (Robin) - [Florida, USA] - 5/26
  • Sugar77 (Sherri) - [Mississauga, Canada] - 4/3
  • sunandsea (Vilija) - [California, USA] - 4/30
  • wahoomama87 (Kris) - [Georgia, USA] - 4/10
  • zee72 (Zarin) - [Dubai, UAE] - 4/7

*** NEW! Join our private Facebook group! ***

If you're interested in connecting with us on Facebook, send a PM to wahoomama87 (Kris). Be sure to give her your email address that you use for FB. That's the only way she can "find" you to invite you, since we're not "friends" on there (yet)!

Dx 2/13/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH) Immunotherapy 4/2/2020 Chemotherapy 4/2/2020 AC + T (Taxol) Radiation Therapy Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right
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Apr 11, 2020 12:12PM wahoomama87 wrote:

BostonGal - my long time hairdresser met me somewhere and chopped mine off to a very short pixie. I'm still planning to shave it close if/when it starts to fall out - my husband will do it. We have clippers in the house because I cut my husband's hair myself, along with our 4 boys.

Bonnie - great idea about the template! I may try that. My brows are pretty dark, so I should be able to trace something.

Sugar77 - good tip about the "shaving" - but will the tiny hair still fall out and get all over everything? I'm not getting a wig - I know I would find that horribly uncomfortable. I've gotten a ton of cute caps and scarves - ordered some and have had friends give me theirs from when they went through this. I know I'll like that much better.

Day 1 after chemo - feeling pretty good. A little dry in the mouth and some minor "intestinal" issues this morning. But nothing major. Hoping you are all doing well.

Kris

Dx 3/23/2020, IDC, Right, 2cm, Stage IIB, Grade 2, 1/4 nodes, ER+/PR+, HER2+ Chemotherapy 4/10/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/10/2020 Herceptin (trastuzumab) Targeted Therapy 4/10/2020 Perjeta (pertuzumab) Surgery 8/24/2020 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Apr 11, 2020 12:32PM - edited Apr 11, 2020 01:44PM by ByHisGraceTwice

Bonnie — Terrific idea to make a template cutout!

Everyone — Happy Easter!

So excited, I finished radiation of my lumbar spine yesterday! Experience from the hip radiation I did in November and December, side effects, especially fatigue, will continue for several weeks but so will killing cancer cells.

My first choice for a new medical oncologist didn't work out. She's doing so much research now she only takes new patients who fit in one of her clinical trials. My PCP is calling his next first choice for me, partner of the one now restricting to clinical trial patients. It's the medical oncologist who treated PCP's dad's breast cancer.

j

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)
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Apr 11, 2020 12:36PM BostonGal wrote:

Thank you Kris. I don't have clippers, just scissors and so I may have to play it by ear, improvise, get creative...

...all the things that I imagine will come in handy when dealing with cancer actually...

Ya, it actually might be easier for me to deal with longer clumps coming out than sneaky little "whiskers" ending up all over the place...

I am very glad you are feeling reasonably good after treatment! Thank God for advances in therapeutics...and much more.

BostonGal...I really need a "real" name! Allie? Something more exotic and fun?

Dx 1/2020, ILC, Right, 4cm, Stage IB, 4/4 nodes, ER+/PR+, HER2- Surgery 8/31/2020 Lymph node removal: Right Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol) Radiation Therapy
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Apr 11, 2020 02:16PM Sugar77 wrote:

Wahoomam87 - when the little wispy pieces begin to fall out, another tip is to use a lint rolller. It was a tip I learned on this site when I lost my hair before it really helped.

Surgery 9/24/2009 Lumpectomy: Right Dx 10/27/2009, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 12/6/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 12/5/2019, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/26/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 11, 2020 03:06PM Dolly2019 wrote:

Hi Bostongal,

Thanks for saying hi. I feel a little bit of an intruder here because I’m nit doing chemo. BUT, I have done it before and I just want to say that you ALL you ladies will get through this. The treatment will go quickly and you’ll all eventually be able to put this behind you. Not saying completely BUT you do eventually get to a point where you no longer worry about cancer. Honest.

Dolly

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Apr 11, 2020 04:24PM CCGirl wrote:

Thanks for responding, BostonGal and Sugar77. Although it isn't a club any of us would want to join, it's comforting to know I'm not alone.

Thanks to everyone who posted tips for dealing with hair falling out. The lint brush idea is great. And the visual I'm getting thinking about that is hilarious.

My husband had a funny idea for making masks to wear to chemo therapy. He suggested I construct them out of my old bras because he figures I don't need them any longer. I might try it since they're stretchy and have been washed so much, they would probably be soft and comfortable. Just thought I'd share since it made me smile.

Still don't know when the chemo will start but have been told it has to be before the end of the month since my surgery was on March 25th.

Dx 11/22/1998, IDC, Left, 1cm, Stage IA, Grade 1, ER+ Surgery 11/22/1998 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 2/1/1999 Whole-breast: Breast Hormonal Therapy 3/1/1999 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/11/2020, IDC, Left, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/25/2020 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 5/4/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 11, 2020 04:27PM CCGirl wrote:

Hi Jelloelloello,

Could you add me to the roll call?

CCGirl (Nan) [Cape Cod, MA] - late April

Dx 11/22/1998, IDC, Left, 1cm, Stage IA, Grade 1, ER+ Surgery 11/22/1998 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 2/1/1999 Whole-breast: Breast Hormonal Therapy 3/1/1999 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/11/2020, IDC, Left, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/25/2020 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 5/4/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 11, 2020 04:48PM - edited Apr 11, 2020 05:31PM by LiseC

Hello all! I'm Lise. I'm 43 years old, have been married for 13 years and have a 4 year old son. I was diagnosed with IDC hormone positive her 2 negative stage 3 cancer in my left breast a few weeks ago. I will be doing 12 weekly taxol infusions then 4 AC every other week. After that I am having a mastectomy (waiting on genetic testing to see if I need a bilateral) then radiation. I had my first taxol yesterday and am still felling pretty good today. Had a bit of a reaction to the taxol so they had to stop the infusion, give me some benadryl, wait about 20 minutes there started back up at half speed. After that I tolerated the infusion well. I was able to take my son on a walk and work on some laundry today.

I'm lucky to work for the College of Medicine at a large university on Florida so I don't have to travel for treatment or doctors appointments, granted most have been through telemedicine when possible. I am also able to work from home due to COVID and even after the university "opens" back up again, I will be able to continue to work from home.

Good luck to you all!!


P.S. can you add me to the roll call - LiseC (Lise) Florida, USA 4/10

Diagnosed at 42, married 13 years and have a 4 year old son Dx 2/23/2020, IDC, Left, 2cm, Stage IIIA, Grade 3, ER+/PR+, HER2- Chemotherapy 4/9/2020 AC + T (Taxol) Hormonal Therapy Zoladex (goserelin)
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Apr 11, 2020 06:39PM Hurricaneblair wrote:

For everyone who was talking about when and how to cut hair, here is a link to an article that I found helpful. I have shoulder length hair and I am thinking of having my 19 year old cut it into a bob next week. And then, when it starts coming out, my hubby has clippers to help.

https://hatsscarvesandmore.com/blogs/news/chemotherapy-hair-loss-to-shave-or-not-to-shave


this is me on Thursday before Chemo Day 1....Erin


Dx 3/25/2020, ILC/IDC, Right, 3cm, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 4/8/2020 Perjeta (pertuzumab) Chemotherapy 4/8/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 11, 2020 06:48PM Hurricaneblair wrote:

Hello to Lise, Molly, Dolly, and Nan...and any others who have recently joined us! Thank you for sharing your journeys with us. We all have a lot to learn from one another.

Kris...glad my soul sister is continuing to do well...I would say today has been uneventful...which is great! Been trying to go out on some sort of walk every day. Others who are further on this journey said activity of some kind just about every day is so beneficial on this journey.

Erin

Dx 3/25/2020, ILC/IDC, Right, 3cm, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 4/8/2020 Perjeta (pertuzumab) Chemotherapy 4/8/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 11, 2020 08:32PM BostonGal wrote:

Pretty picture Erin!

Thank you so much for the link and exercise recommendation.

BostonGal

Dx 1/2020, ILC, Right, 4cm, Stage IB, 4/4 nodes, ER+/PR+, HER2- Surgery 8/31/2020 Lymph node removal: Right Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol) Radiation Therapy
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Apr 11, 2020 09:19PM Hl109 wrote:

Just stopping by to say hi to all the ladies just joined this group. Welcome!

Erin- thank you for the link. Now I know exactly how to deal with the hair loss situation.

I remember someone asked about if I have any reaction to Herceptin. So my first herceptin infusion was on March 24th, the day after that I had palpitations, heart rate went up to 130 bpm, so I spent 6 hours in ER, getting fluids and potassium through the IV. My palpitation went way and have normal heart rate. Now I have mild numbness on my hand. I only had taxol for 15 minutes before they stopped it. My oncologist is going to give me a lower dose of Abraxane and see how I will do next week. Hopefully I am not going to be passed out again.(fingers crossed)

Dx 1/15/2020, DCIS/IDC, Left, 3cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
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Apr 12, 2020 06:05AM Bon43 wrote:

Hey Erin

Love the pic! Thanks for the link - did you order anything from the site? They have cute hats and scarves.

Thanks

B

Bonnie Dx 3/10/2020, IDC, Right, 3cm, Stage IIB, ER-/PR-, HER2+ Chemotherapy 4/5/2020 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Apr 12, 2020 06:35AM zee72 wrote:

hi All,

Finding it difficult to track...but who all are on the track for weekly chemo of Taxol and Carboplatin and every third week of herceptin and perjeta along with chemo.

Wondering when the hair loss will start. Where I live it is difficult to receive any online orders. Also really don’t have any scarves on hand. Will probably have to go for the shaved look.

Hope everyone is having a happy Easter!

Zarin

Dx 3/23/2020, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR-, HER2+ (FISH) Chemotherapy 4/7/2020 Carboplatin (Paraplatin), Taxol (paclitaxel) Targeted Therapy 4/7/2020 Herceptin (trastuzumab) Chemotherapy 4/7/2020 Chemotherapy
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Apr 12, 2020 08:19AM BostonGal wrote:

Fond greetings to all,

It is a beautiful spring day here in Massachusetts. I hope that in this season when we celebrate new life - I noted my yard is becoming very green and all the birds are singing - we can feel the warmth of the hope, peace, joy, and love that surrounds us.

BostonGal ...

Dx 1/2020, ILC, Right, 4cm, Stage IB, 4/4 nodes, ER+/PR+, HER2- Surgery 8/31/2020 Lymph node removal: Right Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol) Radiation Therapy
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Apr 12, 2020 02:19PM Hurricaneblair wrote:

Bonnie..I just ordered a few things from them yesterday, so I will let you know what I think....Erin

Dx 3/25/2020, ILC/IDC, Right, 3cm, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 4/8/2020 Perjeta (pertuzumab) Chemotherapy 4/8/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 13, 2020 08:10AM wahoomama87 wrote:

Erin- thanks for that hair loss article. Very helpful! I already cut mine pretty short before I started chemo, so I'll just have to shave it down with the #2 comb on our clippers. My husband has offered to do the deed when it's time. How are you feeling today? I'm definitely feeling the fatigue setting in. Those that are ahead of me (post-chem Day 3), how long did that go on? I'm a very energetic person normally and this is such a weird feeling. Hope everyone had a lovely Easter!


Kris


Dx 3/23/2020, IDC, Right, 2cm, Stage IIB, Grade 2, 1/4 nodes, ER+/PR+, HER2+ Chemotherapy 4/10/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/10/2020 Herceptin (trastuzumab) Targeted Therapy 4/10/2020 Perjeta (pertuzumab) Surgery 8/24/2020 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Apr 13, 2020 09:56AM - edited Apr 13, 2020 09:59AM by Sugar77

Kris - I'm a few days ahead of you so I can tell you my recent experience. I had my first chemo on Friday, April 3. Like you, I started to feel tired around day 3 (Monday in my case). I felt achy and tired for about three days throughout the week and felt almost normal by Good Friday. At that point, I needed to take Immodium once over two days but otherwise felt really good. Hope this helps.

Surgery 9/24/2009 Lumpectomy: Right Dx 10/27/2009, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 12/6/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 12/5/2019, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/26/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 13, 2020 12:26PM wahoomama87 wrote:

Sherri -


Thanks - that helps! That's what I've read also, but I was curious if that was the actual experience. It's kicking my butt today, for sure. I feel like I'm in a total fog.

Kris

Dx 3/23/2020, IDC, Right, 2cm, Stage IIB, Grade 2, 1/4 nodes, ER+/PR+, HER2+ Chemotherapy 4/10/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/10/2020 Herceptin (trastuzumab) Targeted Therapy 4/10/2020 Perjeta (pertuzumab) Surgery 8/24/2020 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Apr 13, 2020 02:27PM LiseC wrote:

Kris - I’m day 4 today and feel out of it. I’m trying to work from home but having a hard time focusing. I’ve cleaned up the kitchen but can’t motivate myself to walk. I think I need a lazy day today. Hope you feel better soon!

Lise

Diagnosed at 42, married 13 years and have a 4 year old son Dx 2/23/2020, IDC, Left, 2cm, Stage IIIA, Grade 3, ER+/PR+, HER2- Chemotherapy 4/9/2020 AC + T (Taxol) Hormonal Therapy Zoladex (goserelin)
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Apr 13, 2020 05:15PM hnsquared wrote:

Erin...thank you for the article on hair loss. I’ve been told it will go but not been given much help with how to manage. I think that will be the hardest part....just a daily reminder that I have cancer. I was scheduled to get my gray roots covered one more time and planned to have my hair cut shorter before my first chemo but then the salons closed. It’s below my shoulders and my husband has volunteered to cut it in a bob but I can’t imagine what that would look like. I bought a wig online but it’s hard to tell how it will look because I still have so much hair it fits weird. I hate hats so I imagine this will all be a challenge for me.

I’m on a different program than a lot of you. AC T but I’m doing 12 weeks of taxol first. I’ve completed 2 weeks and still feel good. I get treatment on Wednesday and was dragging a little Saturday. I’ve been working everyday but treatment day. I’ve also been walking and doing some strength training. I’m lifting a little lighter but trying to keep my lean muscle.

Stacey....once this is over we should definitely meet in St. Louis to celebrate😃

Heather

Dx 2/20/2020, IDC, Left, Stage IB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/21/2020 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 11/11/2020 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy Herceptin (trastuzumab)
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Apr 13, 2020 06:01PM Hurricaneblair wrote:

I guess I am still feeling mostly okay,..definitely better than I envisioned. Today is Day 4 after 1st chemo and I would agree with what others are mentioning. I am more tired today and at times feel like I am in a fog and difficult to focus. I guess, I am in good company! On Wednesday, I will be going to a “cancer care closet” at a nearby hospital that has a much larger wig and head covering selection. Heather, you are right, this hair loss thing will be hard because it is a daily reminder of what we are going through. I try to tell myself that this is just for a season.

Heather & Stacey....i am in the St Louis Metro area, so count me in for the celebration!

Erin

Dx 3/25/2020, ILC/IDC, Right, 3cm, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 4/8/2020 Perjeta (pertuzumab) Chemotherapy 4/8/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 13, 2020 06:13PM CCGirl wrote:

Hi everyone,

Just got a call from oncologist. Evidently, his colleague at Dana Farber would like to see an Onkatype (not sure how to spell this) test on mastectomy tissues before deciding on chemo regime. Will take another 2 weeks. My oncologist says they would prefer to wait until beginning of May to start chemo anyway because of covid peak. Asked him to send me a copy of the pathology report from the mastectomy since I haven't had a chance to see it. I think my case is a bit cloudy. Not sure if this is good or bad, but whatever it is, it’s deferred.

Thinking of you all and sending good thoughts and hopes that you’re all hanging in there.

Nan

Dx 11/22/1998, IDC, Left, 1cm, Stage IA, Grade 1, ER+ Surgery 11/22/1998 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 2/1/1999 Whole-breast: Breast Hormonal Therapy 3/1/1999 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/11/2020, IDC, Left, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/25/2020 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 5/4/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 14, 2020 07:59AM zee72 wrote:

Hi All,

Earlier this afternoon got done with the second weekly chemo session. Hoping to see a trend in how I feel so that I can organize my week better. I need to go into the hospital for work once a week for tele consults. I’m keeping this day as Monday, the day before my chemo. This along with the intermittent fasting, regular walks and yoga is keeping me active and in good spirits.

Good luck with everyone getting chemo this week.

Zarin

Dx 3/23/2020, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR-, HER2+ (FISH) Chemotherapy 4/7/2020 Carboplatin (Paraplatin), Taxol (paclitaxel) Targeted Therapy 4/7/2020 Herceptin (trastuzumab) Chemotherapy 4/7/2020 Chemotherapy
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Apr 14, 2020 09:29AM wahoomama87 wrote:

Hey all -


Just checking in. Still feel pretty foggy today, although slightly better than yesterday? It's hard to focus! Trying to work and just being deliberate about what I'm doing. Anyone experiencing any acid reflux? I'm having some intermittent symptoms and trying to figure out how to control that without taking any more medications. Got out and walked yesterday and going to do the same today. Hope you are all hanging in there.

Kris

Dx 3/23/2020, IDC, Right, 2cm, Stage IIB, Grade 2, 1/4 nodes, ER+/PR+, HER2+ Chemotherapy 4/10/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/10/2020 Herceptin (trastuzumab) Targeted Therapy 4/10/2020 Perjeta (pertuzumab) Surgery 8/24/2020 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Apr 14, 2020 10:13AM Sugar77 wrote:

Kris - when I did chemo the first time, I remember my oncologist prescribing Zantac for acid reflux. It really helped. This time, I needed Imodium more and didn't want to mix medicines.

Surgery 9/24/2009 Lumpectomy: Right Dx 10/27/2009, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 12/6/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 12/5/2019, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/26/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 14, 2020 10:17AM wahoomama87 wrote:

Sherri -

Thanks. I hate taking any kind of meds - I'm such a natural solutions person (this whole chemo thing is killing me!) I'm keeping track of the symptoms and when they are occurring to see if there is a pattern. Definitely, I think when my stomach gets empty, it's worse. I'm noticing it most in the morning and right before dinner, if I haven't eaten since lunch. I'm playing around with it. Obviously, if it gets unbearable, I'll take what I need, but I'm hoping I can figure it out.

Kris


Dx 3/23/2020, IDC, Right, 2cm, Stage IIB, Grade 2, 1/4 nodes, ER+/PR+, HER2+ Chemotherapy 4/10/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/10/2020 Herceptin (trastuzumab) Targeted Therapy 4/10/2020 Perjeta (pertuzumab) Surgery 8/24/2020 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Apr 14, 2020 11:04AM BostonGal wrote:

Zarin, that is so inspiring.

My best wishes

BostonGala

Dx 1/2020, ILC, Right, 4cm, Stage IB, 4/4 nodes, ER+/PR+, HER2- Surgery 8/31/2020 Lymph node removal: Right Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol) Radiation Therapy
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Apr 14, 2020 05:05PM Hurricaneblair wrote:

Hello Friends....here are a couple of links to blogs that I just discovered and thought some of you might find interesting

1. https://www.eyelineher.org/ young lady with alopecia...several videos about drawing on eyebrows, applying false eyelashes, and tying/wrapping scarves.

2. https://www.mycancerchic.com/style-beauty/hair/hair-timeline/ young lady who battled breast cancer...is about 3 years out from treatment

3. https://www.suburbanturban.com/ shop with head coverings and tutorials...a bit pricey...located in UK

I am sure somewhere else in this community this info was already posted...oh well, here it is again.

Erin

Dx 3/25/2020, ILC/IDC, Right, 3cm, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 4/8/2020 Perjeta (pertuzumab) Chemotherapy 4/8/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 14, 2020 05:23PM - edited Apr 14, 2020 05:37PM by jelloelloello

I can't believe I haven't posted in a week, and since then, we've had so many new members: Welcome to Authorspot (Stacey), hnsquared (Heather), Molly5678 (Molly), LiseC (Lise), and CCgirl (Nan), as well as Dolly2019 (Dolly) who is joining us on behalf of her mother. I've added you all to the Roll Call at the top to help us keep track of each other. :) If I missed anyone, please let me know!

I had my 2nd chemo session last Thursday (4/9). I think I'm on the same regimen as Justyne, Heather and Lise: I'm starting with 12 weekly doses of Taxol (which I found out is 4 "cycles," each cycle broken into 3 doses), followed by 4 cycles of AC (Adriamycin and cyclophosphamide) given every two weeks. My pre-meds are Benadryl and a steroid that I think people call Dexa. I'm also part of a clinical trial so I am receiving an immunotherapy called Cemiplimab (my nurse calls it "cemi").

For my first round, I didn't have bad side effects at all. Mild fatigue and body aches, no nausea. Now in my second round, I again feel the fatigue and aches around Day 4 and Day 5. I also know that I feel great on Day 2 (the day after, lots of energy because of the steroids), Day 6 and Day 7. (Counting a 7 day cycle, starting with chemo day as Day 1.) They do say that Taxol is "chemo-light" so maybe it isn't expected to give strong side effects anyway. Maybe it's because I've been pushing fluids so well! Whatever the reason, I'm super thankful and relieved so far. Maybe things will get worse later, but at least for now, I'm celebrating the good days!

I'm super impressed with how most of you are still working—Zarin, Kris, Heather… probably more that I missed! My mind has been really, really having a hard time focusing and I have, like, no attention span-- for the whole month of March and since. Maybe it was the emotions of the cancer diagnosis, maybe the anxiety of the looming health crisis, but I was totally overwhelmed mentally. I mean, I felt like I was acting ok and looking ok, but I think my mind was working so hard to hold it together on the outside that it really was just too much for me on the inside. I couldn't focus at work and the stress of wrapping up projects and training people to take over while I went on leave was tough. I am currently off work for the month of April and I'm already nervous about going back (not really going anywhere- working from home, of course), though I don't really have a choice because money/life/etc.

Anyway, there have been so many great conversations in this group! I will try to post again soon to answer some other things, but I wanted to finally jump back in now to say hi and that I'm really thankful for all of you.

Dx 2/13/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH) Immunotherapy 4/2/2020 Chemotherapy 4/2/2020 AC + T (Taxol) Radiation Therapy Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right

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