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Apr 14, 2020 05:23PM
Apr 14, 2020 05:37PM
I can't believe I haven't posted in a week, and since then, we've had so many new members: Welcome to Authorspot (Stacey), hnsquared (Heather), Molly5678 (Molly), LiseC (Lise), and CCgirl (Nan), as well as Dolly2019 (Dolly) who is joining us on behalf of her mother. I've added you all to the Roll Call at the top to help us keep track of each other. :) If I missed anyone, please let me know!
I had my 2nd chemo session last Thursday (4/9). I think I'm on the same regimen as Justyne, Heather and Lise: I'm starting with 12 weekly doses of Taxol (which I found out is 4 "cycles," each cycle broken into 3 doses), followed by 4 cycles of AC (Adriamycin and cyclophosphamide) given every two weeks. My pre-meds are Benadryl and a steroid that I think people call Dexa. I'm also part of a clinical trial so I am receiving an immunotherapy called Cemiplimab (my nurse calls it "cemi").
For my first round, I didn't have bad side effects at all. Mild fatigue and body aches, no nausea. Now in my second round, I again feel the fatigue and aches around Day 4 and Day 5. I also know that I feel great on Day 2 (the day after, lots of energy because of the steroids), Day 6 and Day 7. (Counting a 7 day cycle, starting with chemo day as Day 1.) They do say that Taxol is "chemo-light" so maybe it isn't expected to give strong side effects anyway. Maybe it's because I've been pushing fluids so well! Whatever the reason, I'm super thankful and relieved so far. Maybe things will get worse later, but at least for now, I'm celebrating the good days!
I'm super impressed with how most of you are still working—Zarin, Kris, Heather… probably more that I missed! My mind has been really, really having a hard time focusing and I have, like, no attention span-- for the whole month of March and since. Maybe it was the emotions of the cancer diagnosis, maybe the anxiety of the looming health crisis, but I was totally overwhelmed mentally. I mean, I felt like I was acting ok and looking ok, but I think my mind was working so hard to hold it together on the outside that it really was just too much for me on the inside. I couldn't focus at work and the stress of wrapping up projects and training people to take over while I went on leave was tough. I am currently off work for the month of April and I'm already nervous about going back (not really going anywhere- working from home, of course), though I don't really have a choice because money/life/etc.
Anyway, there have been so many great conversations in this group! I will try to post again soon to answer some other things, but I wanted to finally jump back in now to say hi and that I'm really thankful for all of you.
2/13/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH)
4/2/2020 AC + T (Taxol)
Lymph node removal: Underarm/Axillary; Mastectomy: Right