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Apr 15, 2020 01:40PM
Hi Everyone and welcome to all the new folks since I last posted.
I have good news to share. Finished Radiation to my lumbar spine on Friday 4/10/20. Had an echo on Monday to assess heart function after first “Herceptin“ treatment on 4/1/20. All good there.
Have confirmation of a new Medical Oncologist. Am so glad. I’ll see him on the 23rd.
Found out even more underhanded things the other Medical Oncologist had done, besides being incredibly rude to me and dismissive of my concerns which proved well founded.
He falsified my medical records after my allergic reaction saying he’d done the things I asked like extra saline, slower than normal infusion rate, benadryl, Pepcid, because of my concern for an allergic reaction — I was given zero premed and zero during infusion except what I brought with me.
When I was vomiting during infusion no zofran was given in the iv, I had to use the pills I’d brought with me because he couldn’t be found. I cleared with the chemo nurse before I took anything and every time I took another zofran. It took 16 mg of zofran to slow down the vomiting. I spent the next 12 hours with 102.5 fever, chills, shakes, and intermittent vomiting, and diarrhea. Two radiation treatments had to be postponed because of the allergic reaction.
I’m allergic to proteins in other animals and Herceptin is made from Chinese hamster ovary protein. Turned out I wasn’t even given the actual Herceptin but a bio similar which is made from mouse protein — Kanjinti. My consent form said Herceptin, not Kanjinti.
He Never Mentioned this as I stressed to him I had great concern specifically about mouse protein used in Rituxin and what horrific allergic reaction a friend (Who is allergic to nothing) had experienced. My allergic reactions can go as far as passing out and respiratory failure.
Oh — I also found out he’d gone to medical school at American University Of The Caribbean School Of Medicine. Ladies, please check your doctor’s credentials better than I did. This nut was referred to me by another doctor and I didn’t investigate his credentials myself. Also double check you’re actually getting what you’ve been told you were going to get
This is one happy woman I never have to see that man again.
11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC)
1/30/2017 Lumpectomy: Right
11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH)
11/18/2019 External: Bone
3/13/2020, IDC, Stage IV, metastasized to bone
3/18/2020 External: Bone
5/7/2020 Herceptin (trastuzumab)
5/19/2020 Taxol (paclitaxel)