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Topic: July 2020 chemo club

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Jul 2, 2020 01:51PM - edited Aug 9, 2020 12:02PM by Iamloved

Iamloved wrote:

Well I am scheduled for July 13 for my port and July 14 7:15 am to start my "infusions"...so much nicer word than chemo. I hope others join to share this very scary journey. I plan to fast 48 hours before and the day of the infusions to reduce side effects. Wishing all a safe and healthty journey.

July Chemo club roll call

Iamloved (Joni ) Start date July 15 TCHP

Annathebrave (Anna ) Start date July 23 TCHP

Trynryan (Amy) TCHP start date 7/8

My name is Rona (username kukalona), started TC on July 10th

mtspacekace (Kacie) July 7. TCHP

kmom57 Four rounds of TC (Taxotere, Cytoxan), every 21 days.Started July 31. Finish oct 2.

melbo (Melissa) TCHP — start 7 augus

Shar2020 July 23 TCH

Brittonkb (Kim) 4 AC every other week started 8/3 followed by 12 weekly Taxol. Should finish 12/14 if all goes as planned.

Smichaels11 (Shauna) 7/1 TCHP

Christine aka: "BlusteryDay" - 4 AC + 4 DD Taxol. Started on July 17th

Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, Stage IIB, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 19, 2020 06:55AM Melbo wrote:

Iamloved -- this disease is awful. It absolutely has to be treated or it will kill us, but the treatment is so awful that it also could kill us. I'm sorry you had such a tough time with it that you had to stop some of the medicines -- but it sounds like it was the only call to make and your MO is clearly looking out for you. Still sucks though.

Last night I slept terribly - I'm assuming because of the steroids. I got about 4 hours total, despite taking benadryl for my allergic reaction, and later motrin PM for something that felt like restless leg syndrome. I suppose it doesn't matter that much since I will be sleeping non-stop soon enough.

Diagnosed two days before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 19, 2020 09:57AM - edited Oct 11, 2020 09:47PM by Shar2020

To anyone celebrating Rosh Hashanah this weekend, Happy Rosh Hashanah!

To those of you experiencing troubling side effects, I hope that eases soon and your oncology teams are able to help you get relief.

To everyone having chemo, tests, procedures and appointments this week, wishing you the best with minimal discomfort.

AnnaTheBrave, infusion #4 for us on Thursday. The days/weeks between infusions passed too quickly this time!

Wishing everyone a pleasant weekend.

Dx 6/1/2020, IDC, Right, 2cm, Stage IIA, Grade 3, ER+/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 22, 2020 09:18AM Melbo wrote:

It's day 5 of my 3rd cycle and I feel surprisingly good. I don't have diarrhea and I haven't had to nap yet during this cycle. Today I even felt good enough to tackle making babka since I wanted a project to work on. We shall see how it turns out. I'm not sure why I feel okay, but I will take it while I can get it. I hope everyone else is continuing to do well with your treatments.

Diagnosed two days before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 23, 2020 08:24AM - edited Sep 23, 2020 04:47PM by Shar2020

Melbo, that's great you are feeling well since your third infusion. I hope you enjoyed your babka. Except for excessive sleep and nosebleeds, I felt better after the third infusion than the first two. Hopefully, it continues with the fourth infusion tomorrow. I hope you continue to feel well, too.

Wishing everyone a pleasant Wednesday with minimal side effects.

Dx 6/1/2020, IDC, Right, 2cm, Stage IIA, Grade 3, ER+/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 23, 2020 12:03PM KMom57 wrote:

Melbo, glad to hear you are doing well this cycle.

I had my first PT session yesterday, trying to get rid of cording and get my ROM back before I start rads. Of all the treatment related things I’ve done so far, it was the most pleasant. I hate people touching my numb areas, feels creepy, but it wasn’t bad really. And I felt hopeful after. Surgeon tells me my ROM is really not bad, better than many at this point, but that’s small comfort when I try to reach for things and feel that pull, and the tightness and heaviness that’s present literally all the time. I keep thinking I’ll get used to it, but I’m not sure I will. I tell myself though if this is the worst that comes from this, I’m doing ok.

Hope everyone else is doing well this week.

Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 23, 2020 07:17PM Iamloved wrote:

Good evening ladies. I am looking for a way to thank my friend who has been taking me to my treatments. She liges 5 hours from my Breast center so it is quite a trip for her. I just really want to show her how much I appreciate her being with me. She is my best friend and I know she would not want a thing for her troubles. I failed to post our nat picture from September 17. She is a fun loving gal who loves golf like me. If you have any ideas let's hear them. I am open to anything. I hope everyone is getting thru their treatments. I am counting the weeks to being DONE with chemo and its side effects. Hoping to feel better for Thanksgiving 🦃🥧🍷

Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, Stage IIB, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 24, 2020 12:37PM AnnaTheBrave wrote:

Iamloved, what a wonderful friendship! What about planning a trip together once your treatments end and the world is more normal? Like a golf weekend somewhere beautiful next summer? If paying for both of you is out of reach financially, maybe she would want to pay for herself and you could take her out for a nice dinner or pay the greens fees or something. And of course a beautiful, heartfelt letter of thanks is perfect too! There are tons of beautiful pieces of art celebrating friendship and sisterhood on Etsy, and perhaps a little something like that along with a letter would be the right way to show your gratitude.

Shar2020, thinking of you today. Hope your treatment is off to a good start!

I’m having #4 right now and things are off to a slow start. My RBC numbers were low (RBC: 2.81, hematocrit: 26.7, hemoglobin: 9.4) so that explains why I’ve been so tired and so easily winded and why my muscles hurt. ALT (liver) was up to 55, so they are watching that too but not concerned. It took a while for the infusion team to check my blood numbers with my doctor, but thankfully there was no cause for a delay or any dose reductions. Just have to keep on keeping in. They are going to test my iron to see if they want to give me an iron infusion. I was worried they were talking about a blood transfusion, which makes me nervous, but no, just an IV bag of iron.

Thinking of you all! May you find quiet spaces to rest, binge-able shows on Netflix, helpful friends and family to feed you, and energy enough for the things you most enjoy

Dx 6/18/20, age 37, IDC, Right, Stage Ib, Grade 2, triple positive, TCHP regimen begun 7/23/2020, mom to a 5yo girl and 1yo boy
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Sep 24, 2020 07:52PM Iamloved wrote:

AnnaTheBrave... great idea!! Plus will give me something to plan and look forward too. Speaking of Netflix binge watching what is everyone's recommendation? I binged Downton Abby during my first 2 rounds. Now I can't see to get hooked on anything. Will take any ideas. Prayers for you AnnaTheBrave as you head into the homestretch of treatments. Praying for very few side effects!🤗

Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, Stage IIB, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 24, 2020 08:47PM KMom57 wrote:

Is anybody else really struggling emotionally? I’m on the verge of tears all the time. #4 is coming up and you’d think I’d be happy to be nearing the end, but I just feel scared and weepy and angry. Not just scared of the infusion but everything after I think. This whole thing. Feels like my family is tired of me, and my issues too, and I feel alone. I don’t complain to them, so it’s not that I’ve worn out my welcome with them. Exact opposite. I pretty much keep my bad days to myself, and take care of my daughter myself. I don’t know, maybe my imagination. I just feel alone and scared. And the closer I get to the end of chemo the more alone I feel.

Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 24, 2020 09:30PM Iamloved wrote:

KMom57...There are times when I realize I am fighting for my life and not just "sick". I cry a lot at night in bed before hubby comes to bed. I literally sob. I can't place why for sure but I think these drugs mess with our emotions more than we are told. I had #4 a week ago and I have been dwelling on the fact I have to go through this for 8 more weeks. I too try not to complain too much about my side effects or I diminish the toll this is taking on my body as no big deal. Why? I do not know...so people don't feel sorry for me? It is very scary to go thru this. People are caring but if they have never been thru it they cannot relate. Hang in there, use this sight to vent if you need and know you are never alone. I don't know if you are a spiritual gal but even meditations on YouTube can be comforting. Need to take my own advice!! Hugs to you this night!🤗🤗🤗🤗🤗

Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, Stage IIB, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 24, 2020 11:16PM Nottodaycancer2020 wrote:

iamloved-what a great photo! I am so jealous you get to bring friends along. I live in Arizona and we still can’t bring anyone in the office.

Anna the brave-glad it’s going well. I’m anxious to see the doctor Tomorrow. I got my labs back and I’m a little nervous. My red blood count is low also at 3.4...I’m also still having issues with elevated liver enzymes.

Kmom-hugs💗. I have been emotional also and pretty much cry when I really think about my diagnosis. It’s sucks. It’s hard for me to reach out on my bad days and like to process on my own. What I have found out previously after I lost my twin sons right after birth is that during these traumatic life moments we often end up having to teach our family how to handle and deal with everything. I believe going through breast cancer is the same in that way. They may often tip toe around everything and may leave us feeling alone. Hugs 🤗

It’s the day before chemo for me and it’s always a bit somber for me. I’m still trying to eat and enjoy everything that still tastes good and also dreading all of the side effects that will be coming. It’s infusion #4 for me tomorrow

34 years old, DX-DCIS on 6/25, DX-IDC-HER2 triple positive in July, 1 node involved, grade III, positive for CHEK2 gene, started TCHP regimen on 7/24/2020
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Sep 25, 2020 05:44AM Iamloved wrote:

Nottodaycancer2020...An extra prayer for you today. You have had a plateful in your young life. My sympathy on the loss of your children. Yes I am blessed with an incredible friend. My hubby works in agriculture and this is the busy season. So with the 2.5 hour drive one way 4 to 5 hour appointment, it is great to have her company. And your are so spot on with the tip toeing around. I feel it at work and with my boss who has asked me one time since my dx how I am doing. I guess those of us with this disease just know how to dig deeper to find the strength to get through each day. Perhaps I should consider that a gift from above.😁 I hope your side effects are minimal this round and that the meds do their job...wipe out the cancer cells not you! Hugs to you🤗

Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, Stage IIB, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 25, 2020 07:57AM Melbo wrote:

I’ve found that a lot of people just don’t know what to say or how to react to the cancer news. Even people who should be close to you aren’t sure what you need or how to make you feel better. I am a bit of an over sharer myself — so I started a caring bridge blog to update people on how I am doing. It helps people stay informed and connected to me and to understand a little bit of what I’m going through. I also update frequently on Facebook and when I’ve skipped a day or two people will mention it to my husband, just trying to check in to see how I’m doing. I know the idea of blogging seems icky to a lot of people, but so many people just have no idea what the experience is like and I want to try to educate them some, and help them help me when I’m feeling down.


kmom is there anyone in your personal circle you can open up a bit to? My experience is that if you put on a brave face people will respect that you are trying to stay strong and will react accordingly. But we all need safe places to vent and cry and rage against the situation.

Diagnosed two days before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 25, 2020 10:14AM AnnaTheBrave wrote:

KMom, I feel you. I would encourage you to check in with any wellness support your hospital or infusion center might offer. They likely have social workers and psychologists who specialize in caring for people living with cancer, and it can be great to talk to someone impartial, so you can complain about anyone and anything without having to censor yourself or worrying what you say will scare the person your talking to or get back to someone else. I have an appointment next week with my cancer center’s psychiatrist. What better time to start therapy than when I’ve already reached my out-of-pocket max! Another thought—self care is important. I don’t know if you are the type to stress about perfection, but remember that, sure, it’s great to eat well if and when you can, but don’t criticize yourself about your choices, and also eat for pleasure. If you want pie, enjoy that pie. If you live in an area where you can get a massage, mask up and make the first appointment of the day and enjoy the time to relax. If you have a good midwife or GYN, or if your MO has ideas, you might also ask for resources and non-estrogen-containing supplements that could help balance your hormones a bit, if some of the emotions are related to chemo-induced menopause. The only way out is through, and you are in it right now, but you will someday be through, and crying won't slow you down.

Iamloved, I am planning a two-week trip to a lake in Maine next August, to replace the one-week trip we had to cancel this past summer. So good to have something to look forward to! I hope a golf weekend (or more!) works out for you! I do recommend travel insurance for peace of mind. Also, if you liked Downton, you might like The Crown on Netflix. Same vibe. I think The Crown is kind of boring, but I mean that in a really good way! It’s soothing and pretty to look at and not stressful. It’s like the adult coloring book of television. If you want quirky hilarity, I love Arrested Development and, for a more heartfelt option, The Good Place. Also, a throwback—Golden Girls is on Hulu, and it totally holds up! I’ll see if I can think of any othe Downtonesque dramas that aren’t too heavy and let you know if I come up with anything!

NotToday, thinking of you—please let us know if your doctor has any wisdom to share about your labs. My iron levels all came back normal, which is good but also a bummer bc I think it means I just have to hope my body will rally on its own. Anxious they’ll keep dropping. I see my onco in a week.

Dx 6/18/20, age 37, IDC, Right, Stage Ib, Grade 2, triple positive, TCHP regimen begun 7/23/2020, mom to a 5yo girl and 1yo boy
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Sep 25, 2020 11:52AM Nottodaycancer2020 wrote:

hello everyone-just sitting one the chemo room waiting to get started. My doctor was not concerned about my labs and said I’m doing good for where I am at. She said they will wait a week if my WBC gets below 2.0.

Iamloved- thank you💗 it’s been a roller coaster through some tough and amazing years. My twins were born in 2013. After the loss of them I have since been blessed with two more children. I thought going through that was enough pain to last a lifetime and then I got hit with this diagnosis.

34 years old, DX-DCIS on 6/25, DX-IDC-HER2 triple positive in July, 1 node involved, grade III, positive for CHEK2 gene, started TCHP regimen on 7/24/2020
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Sep 25, 2020 12:49PM KMom57 wrote:

Iamloved, Anna, Melbo, Nottoday, thank you. It helps knowing there are people out there.

Nottoday, hope #4 is going well. Thinking of you today.

Melbo, yes I have a couple of friends I could possibly open up to. One in particular...odd that we weren’t really super friends before my diagnosis, more an acquaintance, but when she found out, she didn’t say “can I do anything.” She is a strong, independent woman like me, so maybe she knew asking for help would be hard. Anyway, Instead she said, “You can’t go out during covid and treatment. So on Fridays, I’m running your errands with mine. I’m texting you on Thursdays and insisting you give me something to do on Friday.” Taught me something about how to offer help specifically. I have a couple of great friends like that. But most are so busy trying to navigate virtual school and Covid, I hate to dump my issues on them too.

Anna, yes I’m a perfectionist type, but I’m letting myself eat whatever sounds good regardless how healthy or not. I figure I’ll handle the diet aspect of this when I’m finished with chemo. But the counseling idea is a good one. This is a lot to handle emotionally for all of us in it. And I love your “the only way out is through.” My daughter and I always say the same thing about anything difficult but necessary.

Thanks again to all of you for the support. I made calls this morning to get things scheduled moving forward. One infusion left next week. Rad consult scheduled for next week. Forward I suppose. Not much other choice, eh?

Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 25, 2020 02:09PM - edited Oct 11, 2020 09:51PM by Shar2020

Nottoday, I hope your fourth infusion is going well today. My sincerest condolences to you on the painful loss of your twin boys at birth.

KMom57, I am glad you have a caring and supportive friend to run errands for you every week. I will echo what others have said re: getting additional professional resources for emotional support. In addition to the frightening diagnosis of breast cancer, treatments and surgery, the medications can wreck havoc on our mental health. After the dexamethasone wears off, I crash into dark, depressive episodes of despair. I just checked online and Gilda's Club offers many cancer support services in the U.S. and throughout Canada. For anyone in Canada, Wellspring has moved all their support groups online and there is a large selection of programs.

Iamloved, another awesome picture. She is a loyal and devoted friend! My suggestion would be an outing or event you can both enjoy together.

AnnaTheBrave, your fourth infusion is over! Yay! Sorry to read it got off to a slow start. Mine did, too, yesterday. About 10-15 minutes into the Herceptin infusion, I became sick so they paused it for half an hour and then continued it at a slower rate which was better. My first three infusions were uneventful from start to finish so that was unexpected. I hope all goes well for you in the weeks ahead.

Wishing everyone a comfortable weekend with minimal, or no, side effects.

Dx 6/1/2020, IDC, Right, 2cm, Stage IIA, Grade 3, ER+/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 25, 2020 03:56PM - edited Oct 11, 2020 09:54PM by Shar2020

A few of us have mentioned a metallic taste in the mouth caused by the chemo. Is anyone else experiencing a chemical or medicinal smell soon after the infusion starts and the smell does not go away with showers, changing clothes or brushing teeth? I noticed it lingers for a couple days after the infusions, but does not last as long as the metallic taste. It happens so soon after the infusion starts that I think it may be a sensory reaction and not something other people can actually smell. With masks and social distancing, I HOPE no one else can smell it. I don't want to be smelling like an industrial company! 🤣

Dx 6/1/2020, IDC, Right, 2cm, Stage IIA, Grade 3, ER+/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 25, 2020 04:51PM - edited Sep 25, 2020 04:53PM by KMom57

I have noticed a persistent unpleasant chemical smell which I thought was coming from my hair, or fromthe unscented shampoo the cold cap forces me to use, but perhaps not. Don't know what it is, But yes, I often get a whiff of something chemical that showering does not eliminate. Mine, however, doesn’t seem to go away between infusions. I frequently randomly can smell it just briefly.

Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 25, 2020 07:32PM Iamloved wrote:

KMom57...the way your friend stepped up by just doing instead of asking is a routine I need to put into practice. How beautiful! Sometimes we find the best friends in the least likely people. My coworker has stepped up big time for me at work. She does it all so cheerfully. Another life lesson for me. It is hard for me to ask for help even with my own children. Pride can be a terrible thing. I need to learn to be humble and just admit I need help. And then be thankful!!!

Shar2020...I never made the connection between dexamethasone and feeling depressed. I am gonna have to pay attention next treatment. I did meet one time with a therapist during my infusion. She offered some basic advice for dealing with felling depressed. I am just to sleepy during the infusions to be talking to anyone!😴😴😴

Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, Stage IIB, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 25, 2020 08:54PM Trynryan wrote:

Hello all! I have not posted in a while. The day before my 4th infusion I started antibiotics because my oncologist did not like the look of my port. About a week after stopping the antibiotics I noticed the last few days some irritation and a small opening from the last chemo that never totally healed up. Today I had an appointment with the surgical team to evaluate it, and to my surprise they said it was an infection risk and needed to come out TODAY! I had the procedure this afternoon and unfortunately a new port cannot go in until this is totally healed and there is no risk of infection. That means my last two chemo infusions will have to be done through my arm vein. Not looking forward to that. Anyone on this site not have a port for chemo? I will have to decide if it is worth it to put a new port in as I will need to have Herceptin for a year.
I thought my side effects after #4 were pretty manageable... just really noticing fatigue. My hemoglobin is dropping about one gram every three weeks. Even with all of this I am feeling hopeful that the end is in sight. (This part any way).

Virtual hugs for all of you hurting, tired and weary. Medicating

Dx 6/18/2020, IDC, Left, 5cm, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 7/8/2020 Herceptin (trastuzumab) Targeted Therapy 7/8/2020 Perjeta (pertuzumab) Chemotherapy 7/8/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 25, 2020 10:03PM - edited Sep 25, 2020 10:04PM by KMom57

Trynryan, I do not have a port, but my regimen isn't the same as yours so not sure my experience is relevant. That said, we have no problems finding a vein for IV, but I do now have three tender lumps on my arm where the three infusions have gone in. I'm told the drugs irritate the veins (they called it phlebitis), and that they will likely get better with time, though I should think “months" instead of days/weeks. It's only really been a problem when I needed a BP taken into my wrist area, and could not because one arm had the vein issue, and the other is compromised by ALND. Also is uncomfortable when I accidentally bump my arm, so I tend to guard it. I'm hoping it will go away. I was assured by my infusion nurse that it will.

Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 26, 2020 12:57AM Nottodaycancer2020 wrote:

I forgot to add- after I saw my oncologist before chemo today we had a discussion about getting a hysterectomy. My Gyno brought it up since I had a genetic abnormality for check2 which is what started my cancer. I am at risk for other cancers as well. I was told I have an increased risk of 15% more than general population of 3-5% To develop ovarian cancer. I feel like my leaning of going through with it but I am still so young and hate that I have to make these decisions. I always thought I was done having kids but loved keeping the idea open. I dunno just venting...

34 years old, DX-DCIS on 6/25, DX-IDC-HER2 triple positive in July, 1 node involved, grade III, positive for CHEK2 gene, started TCHP regimen on 7/24/2020
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Sep 26, 2020 05:39AM Positivelyhalffull wrote:

Trynryan- I'm in the August group, but popped in here to see how all of you who are ahead of me on the TCHP regimen are getting along. I've had two out of six infusions of TCHP and I'm scheduled to finish out a year with HP. There has never been any mention even of putting a port in for me. I've wondered why it seems I'm the only one with no port, but I've seen a lot of complaints about it being uncomfortable and I've had no trouble with the vein in my arm.

Dx 7/24/2020, IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR-, HER2+ Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 26, 2020 01:40PM Trynryan wrote:

kmom57 and positivelyhalffull thanks for sharing your experiences with no port! Definitely makes me feel better!

Dx 6/18/2020, IDC, Left, 5cm, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 7/8/2020 Herceptin (trastuzumab) Targeted Therapy 7/8/2020 Perjeta (pertuzumab) Chemotherapy 7/8/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 27, 2020 08:30AM brittonkb wrote:

Hi everyone! I finished my 4th AC and now will start the first of my 12 weekly Taxol tomorrow. I'm a bit nervous something will go wrong, but hopeful it goes smoothly. Anyone else on here doing weekly taxol? I'll finish on 12/14 assuming all goes to plan.

Iamloved - What a wonderful friend! I think Anna gave great ideas for way to thank her!

I know there has been some discussion about how some people don't know how to respond. I have found some friends have been much more evasive than I would have expected. On the flip side, there are a couple girls who were really just acquaintances before this who have reached out to me quite a bit. I don't hold anything against the girls who don't know how to react, but also really look forward to these new friendships too.

Have a great week everyone!

Dx 4/29/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 3/13 nodes, ER+/PR+, HER2- (IHC) Surgery 5/20/2020 Lumpectomy; Lymph node removal: Sentinel Surgery 7/6/2020 Lymph node removal: Underarm/Axillary Chemotherapy 8/3/2020 AC + T (Taxol) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Sep 27, 2020 03:19PM cdw2020 wrote:

I had the exact same thing happen!! Had #4 without a port and it went great! Will do 5 and 6 the same. Deciding if I want to get one for the next year.

Do not worry about the chemo with out the port:).

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Sep 27, 2020 06:37PM - edited Sep 27, 2020 06:40PM by Shar2020

Nottoday, that's more in your young life than some people have in an entire lifetime. I am so very sorry.

Brittonkb, I have met women at the clinic on the AC-T regimen/schedule you mentioned and they said the Taxol was easier than the Adriamycin and Cyclophosphamide infusions. Wishing you the best as you start with the Taxol tomorrow.

Trynryan, I have no port, either, and I have had four infusions so far. There have been no problems with accessing the veins in my arms for infusions, venipunctures or contrast injections. Make sure you're well hydrated and that will help.

KMom, thanks for your response regarding the chemical smell... I am not the only one who has noticed it!

Iamloved, in the midst of an infusion would be a difficult time to talk with someone when you're sleepy. At the chemo clinic I go to, there are approximately 15 patients in one room in three U-shaped alcoves, and everyone hears everyone's conversations when the social workers, pharmacists, etc., meet with them during their infusions. I heard there is an oncology therapist, too, but I hope that's in a more private setting.

Wishing everyone a comfortable week with minimal discomfort.

Dx 6/1/2020, IDC, Right, 2cm, Stage IIA, Grade 3, ER+/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 28, 2020 10:09AM AnnaTheBrave wrote:

Hi, all, hope everyone is having a decent morning. NotToday, I wanted to circle back to your thoughts about hysterectomy. I would just suggest that there’s maybe not a rush, and that waiting a year or two (or perhaps longer) before having a hysterectomy wouldn’t impact your health. I think there’s a great deal of power that comes from closing doors yourself rather than having them closed for you during the heat and drama of active treatment. You will receive additional monitoring regardless of the steps you take and the timeline you choose, so you should go at your pace with a supportive doctor. It sounds like you have all that in place—just wanted to add my two cents and encourage you to make decisions when you are ready to make them.

I am waiting for a call back from the triage line to try to understand exactly how crappy I should feel before I worry about the anemia they detected before my last infusion. I’m so exhausted by the anxiety and uncertainty of everything. Is my heart beating fast bc my hemoglobin is low or because I’m anxious? Is it beating too fast? Exactly how out-of-breath is acceptable after walking up one flight of stairs? I wish I didn’t even know that my RBC numbers were low! I know they wouldn’t have given me the chemo if it looked risky, but I’m so in my head about trying to figure out what’s chemo, what’s anemia, and what’s anxiety! I see my MO on Friday..It’s going to be a long week!

Dx 6/18/20, age 37, IDC, Right, Stage Ib, Grade 2, triple positive, TCHP regimen begun 7/23/2020, mom to a 5yo girl and 1yo boy
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Sep 28, 2020 11:51AM KMom57 wrote:

Good morning all. Sitting waiting on the doctor for a radiation consult. I was out in the waiting room and it suddenly struck me, how the heck did I end up here? This was so not the vision i had of my life at this point. I looked around and thought, nobody in here knows how the heck they got here, or ever dreamed this for themselves. Cancer sucks. It just really does.

Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)

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