Nov 20, 2020 08:57AM marie914 wrote:
Good Morning! I haven't posted in awhile. I have been feeling really good the past week. My first chemo was 10/4 and 10/6 late evening I started to hurt and it continued for about a week so about 9 days after chemo. I did Dignity cold capping and so far so good. It is about 16 days out and I see a few extra strands of hair falling out but nothing too bad.
Magpie - same here with my mouth. I never got mouth sores but nothing tasted good including anything to drink. I finally could only stomach cold stuff and crushed ice. I even chipped a tooth :( on the ice. Now I can drink hot coffee and tea again and food tastes better but still not normal but at least I can eat again. I used biotene toothpaste, mouthwsh and these kind lozenges for dry mouth that I liked because I can put them in my mouth at night and they just dissolve - no choking. - OraCoat XyliMelts Dry Mouth Relief Moisturizing Oral Adhering Discs Mild Mint with Xylitol, for Dry Mouth, Stimulates Saliva, Non-Acidic, Day and Night Use,
Pat - not sure if I welcomed you - glad to have you I heard it falls out all over - we shall see. :)
Wordgirl - I went back and forth about going bald or trying the cold capping I had lump sum from my critical care insurance so I thought I would try the cold capping I did not want to go flat but now I am who cares. Whatever works for you. It doesn't define me. I have trouble with constipation only during anesthesia or chemo it appears so I have to stay on it as well. I only had diarrhea twice in one day and imodium fixed that.
Sharon0706 - my first chemo went so well and I was so nervous The cold capping didn't bother me at all. I let my hair go gray too during COVID but it is just streaked for now. I am taking Claritin every morning every day since I had a bad reaction to the Neulasta - severe bone pain. I did take Claritin the day of chemo and the days after but it didn't seem to help. I talk to my oncologist this Tuesday 11/24 and see if she has any other ideas.
I tried heating pad for the pain and it helped alot. I have muscle relaxer because of my implant expander but I didn't even think of using them. I will ask oncologist if I can. My expander is up to 550 ccs and it holds 600 ccs but can be overfilled. I go today for my maybe last fill of 100 ccs. Not sure. I am a big girl (fat) so she thinks a 700-800 silicone implant will work for me.
JoW888 - Good luck with your chemo next week. My chemo day was a breeze. I did ice my feet the whole time and the ice packs didn't melt. The hands I kept taking my hands out to type on my phone :( but I am going to keep trying with them.
Etincelle82… how are you doing? We started the same day and cold capped. I haven't lost much hair yet just a few extra strands. I had a few more days of pain but similar to your situation.
renbird - hope your chemo went well yesterday - check in when you can.
Sorry if I missed anyone but I need to leave for the plastic surgery.
Let's keep this thread alive - it really helps to hear from others going through it too. And update your profile on the top right corner - click on the person and down area and then click on diagnoses and treatments. It helps others to know what you are doing instead of asking you or having to look back at your posts.
Have a great day!