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Dec 23, 2020 09:42AM
Good Morning. I had chemo Friday and today is Wednesday. Wow Monday and Tuesday were bad, but I guess still better than it could be. I was achy all over, headache, and lethargic/weak. Today I am feeling a bit better. I just need to take ibuprofen regularly and a lot of it to feel okay. I am taking claritin for the bone pain from neulasta but not sure how much it helps.
The taste buds seem a bit better this time but not good. I have had 3 cycles and they all have been different. The first one my taste buds were awful but only for about 9 days and I cracked a tooth chewing on ice. :( and the bone pain was really bad the first time. The second time the bone pain was better but my taste buds didn't come back for 14-16 days. This time the bone pain was bad and the taste buds are bad but they seem to be a bit better. I can eat certain foods. I have a hard time drinking anything though. I try to eat soups and stuff to get the liquid. The first two cycles I was hyper (from the steroids??) but just before the third cycle and now I am so lethargic and weak. I keep moving but I am trying to rest too. I only have one more cycle and I can't wait to get it over with.
Danni - sorry about the nausea. My stomach hasn't been too bad. A day here or there it cramps but no nausea. I would love to sleep that much but I just can't seem to sleep even though I am tired. I was always a good sleeper before chemo and all these drugs (steroids). I cold capped but I kind of wish I would have just let it go. It is still a mess and it sheds. We will see when it starts to grow back.
JoW - I go through days I don't feel like eating but just a bit in my stomach helps. I find 2-3 potato chips or fries help. Not sure why. don't worry about TMI - that is what we all are here for is to help each other.
Lisa - I haven't had thrush or any real mouth sores. I have been using biotene toothpaste and mouthwash. I hate that nothing tastes good especially during the holidays. :(
puncapher - hope today's infusion is going well. My best day is the infusion day. Not sure why.
I am wondering what each of you is getting and where you are in your journey.
I had a left mastectomy 9/14 and an expander implant put in. I have been getting fills in it since. My surgery went great they got good margins and none of my lymph nodes were positive. They ended up taking 8; not meaning to. So I thought I was fine just implant fills and then exchange surgery when they put the real permanent implant in and take out the expander (which can be uncomfortable). Well my mammoprint (like an oncotype) came back slightly high so they wanted me to do 4 rounds of chemo TC Taxotere Cytoxan so I am doing that. Not sure if I want to take any other medicines when this is through. I feel like I am done.
I had the mastectomy so I wouldn't need radiation so no radiation for me. I just didn't want it. My sister had it and 25 years later since has skin problems, but I am sure they are better nowadays. They didn't say anything about a bell and I never heard anyone the last three times I was there. I'm there from 9 to 3 so a long day (because of the cold capping).
Oh I'm 60 by the way. I turned 60 on my mastectomy surgery date 9/14 so I am past menopause. I still work full-time but I have been working remotely. I used to travel alot but I haven't traveled since Feb 2020. I am married with 4 grown sons.
I would love to hear your stories.
7/31/2020, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- (FISH)
9/14/2020 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement
11/6/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
2/1/2021 Reconstruction (left): Silicone implant
2/8/2021 Femara (letrozole)