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Jan 8, 2021 05:16AM
Sending a huge massive hug to you all lovely ladies - i got a lump in my throat reading how each of us is basically going through the very same motions of overwhelming feelings and physical hardship! I imagined if we could join together for a pyjama party, a nice movie and some good hearted laughs.
Rainyday - i will stay with you in this group till the last one of us will get through this. Hope it will even out with the side effects. x
Sharon - thank you for sharing, i cried myself to sleep for the first time in ages last night. Just felt so sad and overwhelmed like you say. Re-work, I took sick leave from 16th Oct when i had the operation, came back for a couple of days, totally freaked out that i have no patience for people which is the key part of my job and thought i needed to retreat instead of causing a scene. If i didn't have the option of taking the leave, i would think i'd have to resign, the mental capacity for me to do my job is just not good enough at the moment (about 3 good days before each chemo) I hope i will be able to do some sort of phased return during the radiotherapy. Only issue is that my hospital is an hour and a half each way from home so everyday trips will take half a day.
Puncapher & Jo - my initial consultation for radiotherapy was via a video link. I would recommend you have that, because (at least for me) it was for information purposes. The dr went over the key risks, the odds of them happening, based on my current health levels, and explained what procedures i will require. I wrongly thought my i will only need the breast and the underarm done, but it transpires that these areas are captured by the breast radiation in any case. Because i have 2/4 lymphs involved, i also need the area above the collar bone (this is apparently where the rest of the axilla lymphs are hiding) and the central breast bone (because my cancer was in the middle of the breast, so the closer it is to the middle the more chance of needing the central radiation also). With the latter procedure, i am given a choice to have this done or not so im doing some research now into lung and heart impact. Im 99% that i will do it. It wasn't an easy one to digest, but i always prefer to know in advance - so see how you feel about getting information?
As i have managed well with the bloods so far on the accelerated 2 weekly DD cycle, my pencilled start date is 8th Feb. Basically, they gave me the 3rd week to recover fully, which i feel happy with. The driver for me to pursue things as fast as possible is that because i want to start hormonal therapy asap. We have 6 embryos waiting patiently and as i will turn 40 in April, im not so patient lol. Because of the low oncotype score, the medical oncologist has said that he will allow me to come off them after 1 year to have a go at trying for a year so this is my motivation to get this done soonest. I will get tattooed next thursday.
Re- SE, i've got all eased now apart from numbness in the fingers and cramps in the calves. These give me the heebie-jeebies as i keep thinking it could be thrombosis and start panicking...silly.
Love and a really good day to you all,
9/25/2020, DCIS/IDC, Right, 1cm, Stage IIA, Grade 2, 2/4 nodes, ER+/PR+, HER2-
10/16/2020 Lumpectomy: Right; Lymph node removal: Sentinel
11/27/2020 Taxol (paclitaxel)
2/15/2021 Whole-breast: Breast, Lymph nodes