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Topic: Starting Chemo February 2021

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Jan 27, 2021 05:21PM

pdcinti wrote:

Thought I would get a thread started for those getting ready to start!

Dx 10/2020, ILC/IDC, Left, Stage IB, Grade 1, 8/12 nodes, ER+/PR+, HER2- Surgery 12/15/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/31/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 27, 2021 05:27PM pdcinti wrote:

Hi!

I'm supposed to be starting TC next Monday - if the PS gives me the all-clear on Friday. I'm a little nervous - mostly from the unknown. But the different posts here have helped with knowing the possibilities. I'm looking forward to "meeting" the rest of you!

Dx 10/2020, ILC/IDC, Left, Stage IB, Grade 1, 8/12 nodes, ER+/PR+, HER2- Surgery 12/15/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/31/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 28, 2021 02:39AM - edited Jan 28, 2021 02:40AM by ChathamLady

starting tomorrow

Can't sleep - talking to God

Worried about side effects / quality life

Trying to be optimistic but do daun

Prayers.

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Jan 28, 2021 03:52AM Moderators wrote:

pdcinti, welcome to Breastcancer.org and thank you SOOO much for starting this thread! Hope you all stay connected here, and please keep us posted on how you're doing!

Best wishes.

From the Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jan 28, 2021 05:50AM pdcinti wrote:

ChathamLady - I totally understand. Lots of praying and just trying to stay positive, but it's so hard with the unknowns. What type of chemo are you getting? How often?

I'll be saying prayers for you and sending you peace!!

Dx 10/2020, ILC/IDC, Left, Stage IB, Grade 1, 8/12 nodes, ER+/PR+, HER2- Surgery 12/15/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/31/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 28, 2021 06:28AM ChathamLady wrote:

Arrimidex and Ibrance. Forgive spelling errors

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Jan 28, 2021 08:41AM pdcinti wrote:

Hopefully you have glanced through some of the threads - especially the helpful tips ones. They have helped me to feel a little more prepared!! I'm taking different meds than you - but it's all a not pleasant necessity!! Hang in there!!

Dx 10/2020, ILC/IDC, Left, Stage IB, Grade 1, 8/12 nodes, ER+/PR+, HER2- Surgery 12/15/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/31/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 28, 2021 05:37PM ConniefromConnecticut wrote:

I'm starting chemo on 2/1 ... Monday. I will be getting Taxol x 12 weekly with Herceptin and Progeta every three weeks. Planning to cold cap -- my Dignicap came today. My port was put in yesterday ... and I have a wig consult tomorrow just in case.

Connie From Connecticut
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Jan 30, 2021 12:34PM pdcinti wrote:

Hi Connie!! I start on Monday too!! Spending my weekend trying to get some things together so I don't have to leave the house much next week. How is your port feeling? And how was your wig consult?

Dx 10/2020, ILC/IDC, Left, Stage IB, Grade 1, 8/12 nodes, ER+/PR+, HER2- Surgery 12/15/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/31/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 30, 2021 02:07PM LW422 wrote:

Hello everyone. I'm getting my port installed Monday and meet with MO on Tuesday, so I'm expecting my chemo to start later in the week. I'm nervous about the port but then again I'm nervous about everything. I wish I could get a handle on this anxiety.

Tell me what to expect with the port installation. Did anyone have any problems with the procedure?

I think my chemo is going to be Taxol for 12 weeks and then AC, whatever that is.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Jan 30, 2021 03:00PM Maddy83f wrote:

Hello everyone. I started chemo exactly a year ago - AC & T and am dropping by because I found it so hopeful last year when others who came before me would share their experience. I have a friend who went thru chemo 10 years before I did - she told me to focus on drinking water, eating protein and walking throughout my chemo treatment. She also told me that I should get a 'stockpile' of various food that might be appealing to me when I felt nauseous. I got some crackers, canned peaches, ginger ale etc. I still have days where I feel as though ginger ale is the only beverage that will sit well in my stomach. The thought of starting chemo can become overwhelming - I visualized it as this great big thing that I needed to 'pop' like a balloon to reduce its overwhelming presence. I had a port and am very glad I did. I started taking Claritin a week before I started chemo and took it everyday and never experienced the bone pain from the nulesta. If you feel nauseous - reach out to your MO - they have an arsenal of prescriptions for the side effects - but can only prescribe them if you ask and let them know whatever you are doing isn't working. I will checking in to see how you are all doing - and to answer any questions you may have. I know it is hard to believe but you will get thru this!

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Jan 30, 2021 07:11PM LW422 wrote:

Thanks, Maddy. It's nice to hear from those who have walked this path before us.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Jan 31, 2021 05:38AM - edited Jan 31, 2021 06:11AM by AC602

Just got diagnosed 3 weeks ago. Starting Chemo o 2/9, every other week for 16 weeks, then surgery, then radiation. Still can't believe this is happening. Will become more real when I get my port this week. Anyone using the cooling cap. I haven’t decided yet. Thinking not, don’t like being cold, overwhelmed by the prep, etc. and extra time in a chair and managing chemo seems like plenty. Thanks all

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Jan 31, 2021 06:26AM Moderators wrote:

Welcome AC602, glad you found us here. You may want to look at this thread, if you haven't already: Cold Caps Users Past and Present.


To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jan 31, 2021 07:40AM pdcinti wrote:

LW - I had my port placed a little over 2 weeks ago. It was pretty easy. I had a twilight sedative - so basically I fell asleep and woke up when it was over. I went home and napped. The weirdest part was the sensation that your skin is pulling in that area - I felt it especially when I stood up. That only lasted a day or two and I read that it's normal. So nothing to worry about. My MO prescribed a numbing cream that I will put on in the morning before I go in for chemo with a little piece of plastic wrap over it to help when they access the port. Hopefully you will find it as easy as I have - especially compared to accessing through an IV. My veins are awful, so this will be much better.

Dx 10/2020, ILC/IDC, Left, Stage IB, Grade 1, 8/12 nodes, ER+/PR+, HER2- Surgery 12/15/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/31/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 31, 2021 09:16AM LW422 wrote:

Hello AC602 and sorry that we have to meet under these circumstances. I got my final diagnosis 11 days ago and it already seems like another lifetime. My port will be installed tomorrow and then I suppose it will be real... I'm officially a cancer patient. I don't plan to cold cap but I will use the icing of my hands and feet; I don't want neuropathy if I can avoid it. (Of course I dread losing my hair but hopefully that's temporary.)

I hope we can compare notes as we travel this scary road together. My very best wishes to you.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Jan 31, 2021 09:27AM LW422 wrote:

Hi pdcinti. Thanks for that; I'm dreading the port but I know it's a necessary evil. Sounds like it's not so bad after all. My best wishes for successful treatment to you.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Jan 31, 2021 12:26PM - edited Jan 31, 2021 12:26PM by AB45

Hello,

I was given this thread as I had started one like this so I wanted to pop in. I can relate to all of the anxiety and talks with God. I am also battling fears. I have port surgery this week and will start Ac/Taxol on the 2nd week of Feb

Wishing my best to all of us!

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Jan 31, 2021 12:51PM LW422 wrote:

Hi there AB45. Sounds like you and I will both be getting our ports this week. Good luck and I hope we both have an easy time of it.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Jan 31, 2021 04:17PM Maddy83f wrote:

For those getting ports this week - I had same experience as pdcinti when my port was put in a year ago. it was a short easy process - I was also in 'twilight' and just went home and rested afterwards. I also had the numbing cream to put on the port every morning before chemo - I slathered it on and covered it with Saran Wrap while traveling. I never felt a thing when the port was accessed. Another 'plus' - the port was on the upper right part of my chest so when I was getting the chemo - the IV pole was behind me. it allowed me to ignore the chemo and it was easy to distract myself.

I will be thinking of all of you - sending love and strength. you can do this!

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Jan 31, 2021 04:53PM AB45 wrote:

AC602, are you on Ac/Taxol? U start chemo a day before me

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Jan 31, 2021 04:54PM AB45 wrote:

Maddy83f, when you got your infusion, did you ever feel dizzy or woozy on your regimen?

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Jan 31, 2021 04:55PM AB45 wrote:

LW422, what day is your port surgery?

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Jan 31, 2021 05:28PM Maddy83f wrote:

AB45 I never got dizzy or woozy during my infusions. I was fairly comfortable - loved the warm blankets and the nurses were wonderful.

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Jan 31, 2021 06:44PM LW422 wrote:

AB45--my port is being installed tomorrow. I'm kind of nervous tonight. I meet with my MO on Tuesday so I guess I'll find out when chemo starts then.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Jan 31, 2021 10:10PM Akmill27 wrote:

starting 2/8 and scared about so many things- the side effects, trying to work, not being there for my 3 little kids, all the unknowns ... but trying to stay positive and know this is what needs to happen to get better

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Jan 31, 2021 10:21PM LW422 wrote:

Hello AKMill27. Seems that all of us are feeling the same anxiety, but hopefully we can get through this together. I'm sorry that you have to deal with this as a young working mother. I had a meltdown earlier tonight but finally pulled myself together. I should be in bed but I know I'd just lay there staring at the ceiling. Cancer SUCKS.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Feb 1, 2021 03:59PM LW422 wrote:

I had the port placement surgery today and so far, so good. I have a bandage over the port site under my collarbone, and a bandage on my jugular vein in my neck. It wasn't painful at first but it has been a few hours and it's getting sore; kind of hurts to turn my head and I have a headache. I'm going to take a Tramadol and go to bed early.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Feb 2, 2021 09:10AM LW422 wrote:

Met with my MO this morning; my chemo starts next Tuesday. I was asked to consider participating in a clinical trial but I'm not sure I want to do that. I'm doing some research about it this afternoon because they want an answer ASAP. Either way, I'm starting treatment next week.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Feb 2, 2021 11:50AM AC602 wrote:

LW422- Thanks so much for writing! I am glad there is someone else out there who isn't going to use the cap. But I totally agree with you about the ice for hands and feet.

I too dread losing my hair, but am also thinking about shaving my head as a proactive step. I'll let you know what I decide. Yes I would be happy to stay in touch as we progress on this journey. Best wishes back to you!

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Feb 2, 2021 11:56AM AC602 wrote:

AB45- Yes I am doing AC/Taxol. Good luck to you and all of us!

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