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Topic: Starting Chemo February 2021

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Jan 27, 2021 08:21PM

pdcinti wrote:

Thought I would get a thread started for those getting ready to start!

Dx 10/2020, ILC/IDC, Left, Stage IB, Grade 1, 8/12 nodes, ER+/PR+, HER2- Surgery 12/15/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/1/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Posts 61 - 90 (104 total)

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Feb 11, 2021 12:53PM LW422 wrote:

Hey AC602. I'm glad your treatment went smoothly. Now that we have #1 under our belts we know what to expect. I am still feeling pretty good; no nausea or headache or anything. Food does taste a little off but my appetite is still good. I notice that my face seems a little swollen and I suppose that's from the steroid.

Is your treatment Taxol, AC, or something else? I'm glad I got to start with Taxol so I can ease into it before facing the "red devil."

Hope you continue to feel OK this week; keep us updated.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Feb 11, 2021 01:32PM CAWR wrote:

Hi all. AB45, I'm sorry you had such a rough time of it. We'll be thinking about you.

Like LW422, my first two days were ok. Day of chemo (tues) and yesterday I felt tired but generally fine, likely because of the dexamethasone jack up. Sleeping was poor mon and tues nights, probably because of dex and pesky night sweats (started a couple of months ago, just for a few days each month). No real nausea and while I'm not terribly hungry, food still tastes normal.

Last night I slept terribly and did have some bone pain (got neulasta yest) that woke me up. So I'm tired today (day 3), still have joint pain and a weird occasional shooting pain where the onboard thing was on my stomach. Wicked heartburn because I'm taking alleve to address joint pain (pepcid isn't cutting it yet - but this reaction is normal for me when I take advil or alleve). I also have a sore throat.

That is my summary of today's fun!

Dx 12/2020, Right: Invasive ductal carcinoma Stage II, Grade; Ductal carcinoma in situ, No nodes involved, ER+/PR+, HER2 Surgery 1/2021, Right single mastectomy, no reconstruction Chemotherapy 2/9/2021, Cytoxan and Taxotere
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Feb 11, 2021 01:58PM mslo100 wrote:

I had my first TCHP on Monday. The infusion took over 7 hours but I was prepared for it to last that long So far, the only side effects have been insomnia and loss of taste. I'm only 3 days out from this first chemoand wondering if I dodged a bullet this time or should I expect more side effects in the next few days.

mslotin Dx 1/2021, IBC, Right, Stage IB, Grade 2, ER+/PR+, HER2+ Chemotherapy 2/8/2021 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Feb 11, 2021 02:00PM mslo100 wrote:

My first TCHP chemo was Monday. I was anxious, but the nurses were great! So far, my side effects have been insomnia and a loss of taste.


mslotin Dx 1/2021, IBC, Right, Stage IB, Grade 2, ER+/PR+, HER2+ Chemotherapy 2/8/2021 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Feb 11, 2021 09:46PM LW422 wrote:

Hello MSLO100--wow, 7 hours. That sounds like a really long time but I'm glad it went well for you. I've also had no significant SEs, thank goodness.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Feb 12, 2021 11:15AM JN5000 wrote:

Hi CAWR.

I'm glad you're done with one!! Congratulations! I wish it were easier. I'm wondering if your docs have suggested you try Claritin for bone pain. I've read on a few other posts that it helps. I don't mean to make suggestions -- just wondering about ways to address it. I hope you get better sleep tonight!!!

Dx 1/4/2021, ILC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 2/15/2021 Radiation Therapy Surgery Lumpectomy: Right; Lymph node removal: Sentinel
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Feb 12, 2021 01:13PM AB45 wrote:

Update for Ac Chemo Regimen, chemo was Wed, today is Friday. Definitely take clartin for bone pain, if you get neulsta shot, Ac chemo for me today is extreme fatigue, headaches, heartburn and light naseau. Hoping to see the light soon, this first chemo kicked my butt!!! The best advice I got was drink, drink, drink!!! No matter how bad u feel, keep drinking

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Feb 12, 2021 04:36PM CAWR wrote:

Hi all. Hope everyone is hanging in there. JN5000 and AB45 - yep, claritin was/is part of my neulasta arsenal, I forgot to mention it. I switched to tylenol instead of alleve and the heartburn is much better. I'll take the ache over heartburn anyday! I'm feeling better today, but perhaps I'm just more used to the laundry list that afflicts us? I was able to go for a slow walk today and zoom-meet with one of my graduate students. I'm pretty darn proud of those accomplishments and now I'm back to my (new) usual resting position.

Dx 12/2020, Right: Invasive ductal carcinoma Stage II, Grade; Ductal carcinoma in situ, No nodes involved, ER+/PR+, HER2 Surgery 1/2021, Right single mastectomy, no reconstruction Chemotherapy 2/9/2021, Cytoxan and Taxotere
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Feb 12, 2021 10:52PM LW422 wrote:

I have had a fairly easy week; today was day 4 and I felt a little weak and dizzy after dinner. I had to lie down for a little while and checked my blood pressure; it was low which concerned me a little. I guzzled a bunch of water (my new hobby) and now I feel OK. I read that Taxol can cause BP readings to go all over the place, up and down.

Hope everyone is doing OK.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Feb 13, 2021 01:31PM AB45 wrote:

LW422, Do you have to start AC after taxol or just taxol and you are done? I start taxol after Ac, I hear taxol may be a little easier than Ac, I sure hope so!! Ac has kicked my butt the first round, I dread thinking about any more Ac treatments after this one, they are cumulative so the MO expects them 2 get worse, guess I am wishing and hoping this will not be the case

Hope all is well for everyone going through your chemo recovery!! This is tough

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Feb 13, 2021 03:56PM LW422 wrote:

AB45--yes, I will have AC after 12 weeks of Taxol. I have also heard that AC is worse, so I dread it. Hope you are feeling OK.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Feb 14, 2021 09:44AM sbelizabeth wrote:

My chemo was almost 10 years ago and I don't know if my particular recipe is given much anymore. I was given the choice of AC+T or TAC, and I told them I wanted it over with as quickly as possible, so it was six rounds of TAC. I was one of the extremely lucky ones who tolerated chemo very well. Every round I had a couple of days (days 3 and 4 after chemo day) when I felt foggy and a little achy and tired. Chemo was always on Wednesday, and I always took Thursday off just to ride my bike and play. Friday and Saturday were foggy days, Sunday it was lifting, and I was back to work on Monday.

I had no problem working full time during chemo, but I wasn't working long shifts with the public anymore, just administrative. I found that if I had a bike ride every day, however gentle or brief, it helped a lot with feeling well. Exercise seems to be key to thriving in chemo.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Feb 14, 2021 01:35PM - edited Feb 14, 2021 01:38PM by AB45

Thanks for sharing sbelizabeth, they did not give me am option, just Ac-Taxol. Ac is 4 rounds @every 2 weeks and then taxol for 4 @every 2 weeks. I am hoping to get to a point of walks and a short exercise but right now it is ice and snow where I am. Chemo was Wed and today is Sunday, finally feeling better ,after days of chemo sickness that is indescribable, I think fluids are key to rush the toxins through, they say chemo is cumulative so it gets worse, all I can do is hope, it does not get much worse, I am extremely thankful for a better day, today, I will take this day in joy!! Any hints on the Ac journey is certainly appreciated because it has kicked my butt!!!!

Wishing more positive vibes to all of you and hoping u get relief and rest

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Feb 14, 2021 08:56PM JN5000 wrote:

Thinking about you, AB45, hoping the next one is better. You made it through one!

Dx 1/4/2021, ILC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 2/15/2021 Radiation Therapy Surgery Lumpectomy: Right; Lymph node removal: Sentinel
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Feb 14, 2021 09:16PM - edited Feb 14, 2021 10:18PM by sbelizabeth

For me, it was no worse for round #6 than round #1. Everyone's different. I'm glad you're feeling better today!

It was minus 15 degrees here this morning. The only exercise I got was to walk up and down the stairs a couple of times. When I did chemo I lived in California, and weather wasn't much of an issue.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Feb 15, 2021 07:06PM Jvfireball wrote:

Hi friends, starting Chemo Wednesday and starting to feeling pretty anxious about the unknowns. Just wanted to tell you all thank you!! I appreciate to community and friends I have found on this site.

Julie Dx 9/28/2020, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2-
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Feb 15, 2021 07:09PM AB45 wrote:

JVfireball, hang in there, everyone is different any maybe u will get lucky and not experience too many awful side effects, which chemo regimen will you be on?

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Feb 15, 2021 07:31PM Jvfireball wrote:

AB46


I'm doing TC, was originally going to be AC+P but when the full pathology came back ONCO decided TC was enough.


Thank you for the encouragement.

Julie Dx 9/28/2020, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2-
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Feb 16, 2021 07:39AM CAWR wrote:

JN5000 - did you have your first infusion yesterday? How are you?

JvFireball - I wish there was something I could say that would ease anxiety, but it seems to be standard for all of us. I'm glad that you are finding the group helpful.

We'll be checking in with y'all and thinking about each other as we each go through our stages.


Dx 12/2020, Right: Invasive ductal carcinoma Stage II, Grade; Ductal carcinoma in situ, No nodes involved, ER+/PR+, HER2 Surgery 1/2021, Right single mastectomy, no reconstruction Chemotherapy 2/9/2021, Cytoxan and Taxotere
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Feb 16, 2021 03:03PM Jvfireball wrote:

CAWR...Thank you very much!

Julie Dx 9/28/2020, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2-
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Feb 16, 2021 09:50PM LW422 wrote:

Good luck tomorrow, JVFireball. Let us know how it goes.

Thanks to the winter storm in Houston, my treatment was canceled today and rescheduled for Friday. Looks like my new weekly treatment day will now be Friday instead of Tuesday.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Feb 17, 2021 12:19PM JN5000 wrote:

Hi all.

I hope everyone on this list is doing okay -- we'll get through it!!

Thinking about you jvFireball! And AB45, I hope you're feeling a better every day.

LW422 -- stay warm! I will be thinking about you on Friday.

CAWR I start AC a week from today. I get the port on Tuesday, the day before. I hope you're doing okay!

Dx 1/4/2021, ILC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 2/15/2021 Radiation Therapy Surgery Lumpectomy: Right; Lymph node removal: Sentinel
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Feb 17, 2021 01:39PM Spalermo111 wrote:

Hi! I’m very nee to this journey! My 2nd treatment will be tomorrow. After reading your response, I noticed you said you take alleve for the bone pain, and it’s causing heart burn. I’m taking gel tablets of Claritin, it’s helping with the bone pain, and also not causing heart burn. Just thought I’d pass that forward! Good luck with everything!

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Feb 18, 2021 12:02PM Jvfireball wrote:

Hi all.....so emotional roller coaster yesterday. I was all prepped and psyched up and lets go get er done. Checked in to the infusion center and got told they just got word from my PS that we wanted me to finish all fills for my expanders before starting Chemo...uuuugggghhh!! Anyway, I have one more appointment next Tuesday with plastics, then I can start chemo on Wednesday the 24th.

Big picture its only a week, it was just the okay, here we go and just kidding....everything happens for a reason...so this will be okay too it was just frustrating.

Praying for all you girls too!

Julie Dx 9/28/2020, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2-
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Feb 18, 2021 12:29PM AB45 wrote:

JVfireball

That's tough but maybe look at it this way, may have been a good thing, maybe your body needed one more week before chemo, I know easier said than done but sometimes we just have to force ourselves to look at just one positive. This cancer journey is not for the faint of heart, I have chemo the same day as you next time, sending positive vibes

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Feb 18, 2021 04:36PM Maddy83f wrote:

Jvfireball - sorry to hear about the last minute delay. A leak was identified in one of my expanders after I had started chemo and they could only fill it right before my chemo (every 2 weeks). I think it was because of concern over infection but honestly I can't remember specifics. Enjoy this extra week and take care of yourself!

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Feb 19, 2021 01:41AM LW422 wrote:

So MD Anderson canceled all outpatient appointments for the remainder of this week due to the winter storm in Houston, so no chemo this week for me. I'm hoping that missing an entire week of chemo doesn't mess me up, but it couldn't be avoided. Not sure what day I'll be rescheduled next week for chemo #2.

Hope everyone is doing well and not having a difficult time with treatment.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Feb 19, 2021 12:28PM Jvfireball wrote:

AB45 and Maddy83f,

Thank you both for the encouragement.....the extra week must of been needed. Doing better with it...just that day was hard or frustrating...Next Wednesday here we come!

Thanks....Julie

Julie Dx 9/28/2020, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2-
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Feb 22, 2021 01:53PM CAWR wrote:

Hi all. Soooooo has anyone else started losing their hair? Mine started yesterday. Thin little clumps that come out any time I run my fingers (usually absently) through.

I hope everyone is hanging in there, that schedules get back on track, and prep for and expectations of side effects will be better for the second round (or manageable for the first).

Dx 12/2020, Right: Invasive ductal carcinoma Stage II, Grade; Ductal carcinoma in situ, No nodes involved, ER+/PR+, HER2 Surgery 1/2021, Right single mastectomy, no reconstruction Chemotherapy 2/9/2021, Cytoxan and Taxotere
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Feb 22, 2021 07:19PM LW422 wrote:

Hey CAWR. I'm not losing any significant hair yet, but I've only had one Taxol. I had to skip last week due to the stupid weather in Houston shutting down the entire town.

I spoke with my MO today and he said he didn't believe missing a week would have any significant effect on my treatment. My chemo appointment is on Thursday this week instead of Tuesday, so he wants to start "walking them back" to be on Tuesday again. Just when I thought 2020 was the worst year ever, along comes 2021. :yucky:

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)

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