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Jun 10, 2021 06:10PM
Oh no Btwnstars - so sorry to see you over here!
I picked Thursday as I figured I would feel fine on Friday and then have the weekend to recover. My first infusion was rough but after talking to the nurse practitioner - I have plans for the 2nd one later in June. The Taxotere gave me such bad body pains from the back of my skull down to my ankles. This time lots of Advil!! And since I just had my first infusion last week here is some advice for any newbie:
Start taking stool softeners the day before and have miralax on hand to start when you get home. The constipation is real!
Keep up on anti nausea meds for a few days then start seeing how you are doing. I was off them by Monday but Wednesday I needed one dose to get over some nausea. Eat lots of small meals through the day. For me the following has been feeling good on my tummy: pretzels, soda crackers, soup, yogurt, rice, chicken (all those “sick” foods our moms gave us when we were kids). They do want us to eat lots of protein - so do the best you can!
Heart burn has also been bad - but the smaller more frequent meals is helping.
Water water water. Before, day of and continue after - just drink drink drink. I felt so bloated a few days after chemo but then suddenly it all released and I kept having to go to the bathroom!!
Rinsing your mouth: I use biotine twice a day (morning and night) and I have a water bottle filled with baking soda and salt water sitting in the bathroom. Every time you go pee, swish as well.
Buy some candies to suck on for dry mouth. I haven’t found any sugar free options I am happy with as I don’t like artificial sweeteners, but hopefully with the swishing I won’t develop any cavities 😂
Rest!! I just don’t have the energy to get in my 10,000 steps per day but it is what it is. I at least try to move around as much as I can.
I also haven’t noticed a metallic taste in my mouth like some people but quite a few of the foods I love just don’t sound good - like coffee. However weak black tea with a little cream and sugar does go down well. At least I can get a little caffeine in me!
Everyone is so different but I think knowledge is the key to getting through it.
Does anyone else have any tips to add? My nurse practitioner said the first infusion is the toughest since you don’t know what to expect. She said my next one will be better. Hope she wasn’t bending the truth!
Age: 51 @ diagnosis. Oncotype Result: 16
4/26/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-
5/4/2016 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary
6/20/2016 Whole-breast: Breast
8/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
3/31/2021, IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- (FISH)
5/5/2021 Lymph node removal: Underarm/Axillary; Mastectomy: Left
6/3/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)