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Topic: Do you like your MO? Urgent recommendation needed in the DC area

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Sep 23, 2021 05:44PM

Penguino wrote:

Hi all, I'm so grateful for this forum and have been reading voraciously since diagnosis in Jan. I was just notified that my Medical Oncologist is leaving, and am wondering if anyone has one they trust and would recommend in the Washington, DC area?

I've been at MedStar Georgetown University Hospital since diagnosis with HER2+ multifocal IDC/DCIS, Stage II. The Lombardi Cancer Center at GUH was supposed to be fantastic but honestly it has mostly been… problematic. (This is actually the second time in under a year that my assigned MO has moved away, and that's the least of the issues.)

I've already completed NA chemo and surgery, and just started adjuvant Kadcyla on Monday. Radiation is set to start . I do absolutely love and want to stick with my breast surgeon - he might actually be magical, he's so skilled (I'll ask him tomorrow but don't think he can recommend someone outside the MedStar system). Does anyone know if I would be allowed to mix and match doctors like this, or am I stuck with the MedStar system?

Finally, my husband and I share one car so getting to Baltimore for Johns Hopkins would be doable but pretty difficult. Our insurance has been accepted by nearly every provider around here so at least that's not likely to be a problem.

I just really would love an MO who listens, has a nurse who returns calls/emails, and is up to speed on the latest research. Bonus points for expertise with Her2+ cancers. I'd be so very grateful for any suggestions anyone might be able to offer. And my heartfelt thanks to all of you who contribute to and moderate this amazing community!

DX at 41, IDC&DCIS. HER2+, 3 tumors totaling ~7cm. Substantial chemo complications, neoadj chemo completed 08/2021. LX 08/23/21 (no reconstruction due to continuing complications): clear margins, clean nodes, 3 cm residual IDC. Dx 1/20/2021, DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER-/PR-, HER2+ (IHC) Dx 2/8/2021, IDC, Right, 1cm, Stage IIA, Grade 3, ER-/PR-, HER2+ (IHC) Dx 2/8/2021, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2+ (IHC) Targeted Therapy 3/4/2021 Targeted Therapy 3/4/2021 Perjeta (pertuzumab) Chemotherapy 3/4/2021 Taxol (paclitaxel) Targeted Therapy 5/27/2021 Herceptin (trastuzumab) Surgery 8/23/2021 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 9/20/2021 Kadcyla (T-DM1, ado-trastuzumab)
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Sep 23, 2021 08:24PM - edited Sep 23, 2021 08:27PM by KeepingCalm

sent you a private messag

Dx 2/2020, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2020 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 5/6/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy
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Sep 24, 2021 12:19AM Penguino wrote:

KeepingCalm, thank you SO much!

DX at 41, IDC&DCIS. HER2+, 3 tumors totaling ~7cm. Substantial chemo complications, neoadj chemo completed 08/2021. LX 08/23/21 (no reconstruction due to continuing complications): clear margins, clean nodes, 3 cm residual IDC. Dx 1/20/2021, DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER-/PR-, HER2+ (IHC) Dx 2/8/2021, IDC, Right, 1cm, Stage IIA, Grade 3, ER-/PR-, HER2+ (IHC) Dx 2/8/2021, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2+ (IHC) Targeted Therapy 3/4/2021 Targeted Therapy 3/4/2021 Perjeta (pertuzumab) Chemotherapy 3/4/2021 Taxol (paclitaxel) Targeted Therapy 5/27/2021 Herceptin (trastuzumab) Surgery 8/23/2021 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 9/20/2021 Kadcyla (T-DM1, ado-trastuzumab)
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Sep 24, 2021 08:43AM BevJen wrote:

Penguino,

If you want someone in the DC area, your other option that has an NCCN connect would be Sibley. Sibley is now owned by Hopkins, and their breast center is part of the Sidney Kimmel Cancer Center that is "headquartered" in Baltimore. There are several breast oncologists at Sibley.

Worth some investigation.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Radiation Therapy for Bone Mets to Femur (Both sides) April 2021 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Sep 24, 2021 10:59AM Penguino wrote:

BevJen, thank you! Do you have experience receiving treatment at Sibley, or know others who do? If so, were you/they generally happy with the care?

DX at 41, IDC&DCIS. HER2+, 3 tumors totaling ~7cm. Substantial chemo complications, neoadj chemo completed 08/2021. LX 08/23/21 (no reconstruction due to continuing complications): clear margins, clean nodes, 3 cm residual IDC. Dx 1/20/2021, DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER-/PR-, HER2+ (IHC) Dx 2/8/2021, IDC, Right, 1cm, Stage IIA, Grade 3, ER-/PR-, HER2+ (IHC) Dx 2/8/2021, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2+ (IHC) Targeted Therapy 3/4/2021 Targeted Therapy 3/4/2021 Perjeta (pertuzumab) Chemotherapy 3/4/2021 Taxol (paclitaxel) Targeted Therapy 5/27/2021 Herceptin (trastuzumab) Surgery 8/23/2021 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 9/20/2021 Kadcyla (T-DM1, ado-trastuzumab)
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Sep 24, 2021 11:22AM BevJen wrote:

Penguino --

Just sent you a PM.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Radiation Therapy for Bone Mets to Femur (Both sides) April 2021 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Sep 24, 2021 12:14PM Melbo wrote:

there must be something about this area - I’m at the Anne Arundel medical center in Annapolis and I will get my third MO next month. However, I will say I have been happy with the first two — they listened to me and were always very responsive and had a good nurse line/system. Both have just moved on for contract reasons. Hopefully my third one will also be good, but at least for me I am done with active treatment so it’s not quite so pressing.

Good Luck

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/20/2020 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/31/2021 Whole-breast: Breast, Lymph nodes

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