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Nov 25, 2021 08:47AM
Nov 26, 2021 04:20AM
Happy Thanksgiving everyone,
I was going to try to respond to everyone, but I don't quite have the energy to do so yet. I did my 1st TC infusion on 11/17. It went fine and I was SO thankful I had the port. Hardly felt a thing. The next two days were tolerable. I had some nausea, indigestion (controlled by Zofran once I got the timing down) and fatigue.
Friday early morning I thought I'd been run over by a train. Everything in my body hurt, bones/muscles, like when you have the flu, but times 10! And the fatigue was becoming debilitating. I finally emailed my doctor who said I could take Tylenol and Advil, alternating every 8 hours. It helped with the pain, but this fatigue is something I never felt before. There is no "pushing through it" like I am used to doing. So day 6 after the 1st infusion and I am still quite low on energy. Thankfully I have started to sleep better at night. Hoping to gain more energy as the days pass, and probably in time for my Dec. 8th infusion 2. And wondering, is it just me that is having so much fatigue I can't do anything?
A few things I learned - I am doing cold capping. It's called DigniCap. The cancer center has the equipment to cool the cap. I needed to purchase the cap and token for the machine. If I continue (I plan to), then I just purchase the token. The cap is placed on your head 30 prior to the beginning of the chemo drugs. And in my case, stays on for and additional 2 hours after the chemo has finished. For me, that was 6.5 hours. But, only the first 20 minutes are a brain freeze. Get past that and you'll be home free. I am only 8 days past my first infusion but I haven't lost any hair yet. My fingers are crossed.
Regarding neuropathy (tingling in hands and fingers after T) I had cotton gloves and cotton socks on. Then I held a frozen bottle of water in each hand (for lack of their normal procedure) and on each foot a bag of crushed ice was placed. I also chewed on a cup of ice chips during the T infusion. It was a cold hour for sure, but worth it. I felt a tingle or two after the infustion, but that's it. So far, no neuropathy or mouth sores.
I am also using TheraBreath each day and Biotene rinse, toothpaste and gel, as well. I'm staying hydrated and the other day added an electrolyte called Cure (curehydration.com also available on Amazon). It doesn't have a ton of sodium or other ingredients and I like the Berry Pomegranate). Even though I'm drinking enough water, adding this from time to time seems to help me feel better.
Okay I'm running out of energy so will end. Good luck to everyone. I am reading all of the posts and hopefully energy will begin to return and I can chime in more frequently.
8/26/2021, IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
Lumpectomy: Right; Lymph node removal: Sentinel