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Topic: Our "Central Address Book"

Forum: Life After Breast Cancer —

Managing life after a breast cancer diagnosis, including rediscovering intimacy, coping with fear of recurrence, reconnecting relationships, sharing hobbies and interests, and finding inspiration in daily life.

Posted on: Jul 16, 2008 12:36PM - edited Sep 7, 2010 09:59AM by nowheregirl

nowheregirl wrote:

Hi everyone,

As some of you may know, I was trying to make a list of our stage IV sisters with their contact information including their emergency contacts. Been working on it and finally I can tell you that it's done! The only difference between what I originally suggested and what now I think is that I would want this to be available for everyone (not only stage IV sisters but everyone on these boards) who wants to join. I have already contacted Melissa and made sure neither making the list nor posting about it is against the rules. So now it's official. I will explain how this works.

      

The link to the website is http://tkt.hostned.ws/cgi-bin/AddrBook/addybook.cgi

             

On this page, you post your information by yourself. Of course you can see all the information posted on the page as well so that you can send stuff to those in need or do a card shower. It is easy as pie so do not worry. I have prepared several fields where you can fill in the information about yourself. Some of them can be left blank if you want. If there's anyone in particular who you communicate with here on BCO and would want them to contact you or your emergency contact if you went MIA, you can specify the name of that person and notify them of that. If you are registered by someone else as their contact person, you will check in with that person and give us an update if asked.

                
To protect information from identity theft, this website is password-protected. You need to PM me for the details on how you can gain access. YOUR USERNAME AND PASSWORD THAT YOU ARE USING HERE ON BCO DOES NOT WORK. (Do not PM me with your information. You need to post it by yourself.) However you will not be given the details unless you are either:
1. a member of these discussion boards on BCO of 6 months+ and have made 30+ posts
2. a member of these discussion boards on BCO of 2 months+ and have made 40+ posts

           

I apologize that this may sound a little too unfriedly to those are new here or haven't posted much but as a person that manages everyone's personal information on this website, I am responsible for protecting their personal information from being disclosed to an unauthorized third party. Your understanding will be appreciated.

         

I hope this help us unite as a worldwide family and make our bond even stronger. PM me for the details or any questions.

         

Hugs,

Fumi

            

[edited on 7th Sept. 2010 to change the URL]

           

Dx 7/7/2005, IDC, Right, 3cm, Stage IIB, Grade 1, 2/9 nodes, ER+/PR+, HER2- Chemotherapy 7/8/2005 AC + T (Taxol) Hormonal Therapy 3/10/2006 Surgery 3/22/2006 Lumpectomy: Right Chemotherapy 4/7/2006 Taxol (paclitaxel) Radiation Therapy 8/21/2006 Breast, Lymph nodes
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Page 1 of 1 (19 results)

Posts 1 - 19 (19 total)

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Jul 16, 2008 12:58PM Bren-2007 wrote:

Wow Fumi!!

 Thanks for all your hard work!!!

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Jul 16, 2008 01:17PM BethNY wrote:

You are such a blessing to us Fumi.... I appreciate everything you do so very much...

Be your own hero
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Jul 16, 2008 01:36PM OneBadBoob wrote:

YOU ARE THE WOMAN, DEAR FUMI!

Thanks so much for all you do for us!

Jane - Dance as if no one is watching!! Dx 7/7/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Jul 16, 2008 01:54PM Sige wrote:

Way to go Fumi...!!!

"Religion is about creation, and for that reason religion should be about the earth." - Laurie Cabot Surgery 3/25/2006 Lumpectomy: Left; Lymph node removal: Left, Sentinel Dx 4/3/2006, DCIS, 1cm, Stage I, Grade 3, 0/22 nodes, ER+/PR+, HER2- Radiation Therapy 8/1/2006 Breast, Lymph nodes Hormonal Therapy 9/22/2006
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Jul 16, 2008 11:15PM djd wrote:

Fumi,

As usual, your tireless efforts to help others along this journey amaze and inspire me.

I have added my information and look forward to this growing into a useful tool to help us all support one another through good times and bad.

you rock!

D

Donna Dx 12/13/2004, IDC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Jul 20, 2008 10:39PM iodine wrote:

There you go again!  You just never cease to amaze us all, Sweet Lady.  Thanks so much for all your efforts.  You are so appreciated.

Dotti---BE NOT AFRAID, Pope John Paul
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Jul 21, 2008 04:08PM - edited Jul 21, 2008 04:13PM by livesstrong

Thanks Fumi!!! You ROCK!!! But when I click on the link it asks for a username & password.  HELP!!!!

Valerie 

Someday I'll wish upon a star and wake up where the clouds are far behind me.
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Jul 22, 2008 11:41AM FitChik wrote:

Valerie...You have to PM Fumi with your request. And I agree....our Fumi does rock!

~Marin

"Above all, be the heroine of your life, not the victim." ~Nora Ephron
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Jul 22, 2008 11:57AM Pepper_B wrote:

Fumi,

 You have added so much to our lives and we are certainly blessed to have you!!! 

Whoever said," winning isn't everything", never had to fight BREAST CANCER!
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Jul 24, 2008 10:25PM Odalys wrote:

Fumi - this is an excellent idea!  Thanks for all that you do. Smile

Love and hugs,

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Jul 29, 2008 01:53PM newvickie wrote:

bumping

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Aug 1, 2008 07:24PM Raye99 wrote:

Fumi-.  Thank you for all you do and that is quite a lot- we are truly blessed to have you, Fumi.

 xoxo

Raye 

Dx 7/14/2006, IDC, 5cm, Stage IIB, Grade 3, 3/9 nodes, ER-/PR-, HER2-
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Mar 31, 2009 02:25PM Roberta77 wrote:

Hey, this site sounds super interesting, but I was unable to access it.

Friends are the gems of life Dx 11/12/2008, IDC, 2cm, Stage I, 0/3 nodes, mets, ER+/PR-
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Apr 23, 2009 08:34PM Reneepals wrote:

Fumi can I get the pasasword

Renee
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Jun 25, 2009 03:03PM lvtwoqlt wrote:

bumping topic to top of active list.

Sheila

Women are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt Diagnosed ADH Feb 2005, ADH Sept 2006 Surgery 2/12/2005 Lumpectomy: Left Surgery 9/10/2006 Lumpectomy: Right Hormonal Therapy 10/12/2006 Dx 4/27/2007, DCIS, Stage 0, Grade 1, 0/7 nodes Surgery 6/1/2007 Mastectomy: Left, Right
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Jul 5, 2010 09:03PM larryp7639 wrote:

This Post has been removed by the Community.
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Jul 6, 2010 07:35AM Leah_S wrote:

Reported the post - bye bye creep.

But Fumi - you are THE ONE! Thank you for what you do for all of us. I've added my info.

Leah

Dx 11/3/2008, IDC, 1cm, Stage IV, Grade 3, 6/17 nodes, ER+/PR+, HER2-
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Apr 6, 2014 10:19PM 2nd_time_around wrote:

bump.    Smile

**AKA 2TA ** Any day I wake up, it's a good day. ~ ~ "You don't know strength until strength is the only choice you have." (Author unknown)..... Yes, this is my 2nd occurrence, not recurrence; 1st in 1996, 2nd in 2012, bilateral recon in 2012
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Jul 25, 2014 12:18AM 2nd_time_around wrote:

bump

**AKA 2TA ** Any day I wake up, it's a good day. ~ ~ "You don't know strength until strength is the only choice you have." (Author unknown)..... Yes, this is my 2nd occurrence, not recurrence; 1st in 1996, 2nd in 2012, bilateral recon in 2012

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