Managing life after a breast cancer diagnosis, including rediscovering intimacy, coping with fear of recurrence, reconnecting relationships, sharing hobbies and interests, and finding inspiration in daily life.
Posted on: Jul 16, 2008 12:36PM - edited Sep 7, 2010 09:59AM by nowheregirl
As some of you may know, I was trying to make a list of our stage IV sisters with their contact information including their emergency contacts. Been working on it and finally I can tell you that it's done! The only difference between what I originally suggested and what now I think is that I would want this to be available for everyone (not only stage IV sisters but everyone on these boards) who wants to join. I have already contacted Melissa and made sure neither making the list nor posting about it is against the rules. So now it's official. I will explain how this works.
The link to the website is http://tkt.hostned.ws/cgi-bin/AddrBook/addybook.cgi
On this page, you post your information by yourself. Of course you can see all the information posted on the page as well so that you can send stuff to those in need or do a card shower. It is easy as pie so do not worry. I have prepared several fields where you can fill in the information about yourself. Some of them can be left blank if you want. If there's anyone in particular who you communicate with here on BCO and would want them to contact you or your emergency contact if you went MIA, you can specify the name of that person and notify them of that. If you are registered by someone else as their contact person, you will check in with that person and give us an update if asked.
To protect information from identity theft, this website is password-protected. You need to PM me for the details on how you can gain access. YOUR USERNAME AND PASSWORD THAT YOU ARE USING HERE ON BCO DOES NOT WORK. (Do not PM me with your information. You need to post it by yourself.) However you will not be given the details unless you are either:
1. a member of these discussion boards on BCO of 6 months+ and have made 30+ posts
2. a member of these discussion boards on BCO of 2 months+ and have made 40+ posts
I apologize that this may sound a little too unfriedly to those are new here or haven't posted much but as a person that manages everyone's personal information on this website, I am responsible for protecting their personal information from being disclosed to an unauthorized third party. Your understanding will be appreciated.
I hope this help us unite as a worldwide family and make our bond even stronger. PM me for the details or any questions.
[edited on 7th Sept. 2010 to change the URL]
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Jul 16, 2008 01:54PM Sige wrote:
Way to go Fumi...!!!
Jul 16, 2008 11:15PM djd wrote:
As usual, your tireless efforts to help others along this journey amaze and inspire me.
I have added my information and look forward to this growing into a useful tool to help us all support one another through good times and bad.
Jun 25, 2009 03:03PM lvtwoqlt wrote:
bumping topic to top of active list.
Apr 6, 2014 10:19PM 2nd_time_around wrote:
Jul 25, 2014 12:18AM 2nd_time_around wrote:
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