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Topic: Bonfire of the Goddesses

Forum: Life After Breast Cancer —

Managing life after a breast cancer diagnosis, including rediscovering intimacy, coping with fear of recurrence, reconnecting relationships, sharing hobbies and interests, and finding inspiration in daily life.

Posted on: Jan 23, 2011 11:28PM - edited May 20, 2017 09:34PM by jo1955

jo1955 wrote:

Jo - Lump, no chemo, 25 rads + 5 boosts, Tamox X5 years . cancerr free since Aug 30th, 2010. April 2014 - Latissimus Dorsi Flap Reconstruction. July 13, 2013 - Hysterectomy due to multiple uterine issues while on Tamoxifen.
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Posts 10171 - 10200 (10,261 total)

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May 24, 2017 03:31PM GmaFoley wrote:

PANS is an acronym for Pediatric Acute-onset Neuropsychiatric Syndrome, which is associated with a variety of different infections, whereas PANDAS is a disorder associated with only streptococcal infections—specifically group A strep.

Oh Lucy, Praying for you Grandson..

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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May 24, 2017 03:39PM - edited May 24, 2017 03:41PM by GmaFoley

Can I just throw in the whole healthcare system? I fell 6 months ago and hurt my wrist - it is now swelling and even more painful.. I called my doctor's office (lots of docs). First, my primary has quit. next, I won't be able to see my new primary until September she is so booked. So opted for a FNP that I love there - can't get in until July... they ask me is there anyone else I would like to try - I told them female, and doesn't shy away from my Drug sensitivity list. They finally email be back with one at the end of next week - during my work hours. They said if I didn't take that one it would be mid July.

Ok I know the Doc who started this group. He says, all the good docs are quitting the business or leaving town... He is trying his hardest to keep up with the demand. Just a big bummer on my part - I know the next question you all would be asking - why not just go to urgent care? Because soon as they see my drug sensitivity list - they refer me back to my primary and don't help me.

Maybe I should forget about throwing them in and just jump into the fire myself LoopyShocked

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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May 24, 2017 04:13PM Lucy55 wrote:

Thanks for the prayers ..my grandson's is PANS ..they have eliminated the PANDAS as he has no strep infection..they gave him course of antibiotics just in case anyway ..but no response to them ..he's been in hospital 2 weeks now ..

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/13/2014
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May 24, 2017 06:01PM FireKracker wrote:

no fire for u Gma Foley..don't even think about it

As for the broom it belongs to the group...anyone can have it

I'm sorry for ur pain Lucy

Into the fire it goes....

JOJO nice new pic u posted......

Focktober!!!!Pink stinks!!!!
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May 24, 2017 07:41PM duckyb1 wrote:

Still praying Lucy.....hope the litle man responds to his treatment....hugs

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast
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May 24, 2017 08:45PM Beatmon wrote:

So sorry about the grand baby being so sick.

I'm still around...enjoying reading you ladies banter!

I seem to have my own broomstick these days...or just call me a Rocky

Dx 7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/9/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 12/1/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2014 Reconstruction (left); Reconstruction (right) Dx 8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/27/2014 Herceptin (trastuzumab) Targeted Therapy 8/27/2014 Perjeta (pertuzumab) Chemotherapy 8/27/2014 Taxotere (docetaxel)
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May 24, 2017 09:49PM CeliaC wrote:

Lucy - Prayers for your grandson.

Hugs for all who need one.

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/21/2017 Whole-breast: Breast Hormonal Therapy 4/5/2017 Arimidex (anastrozole)
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May 25, 2017 11:45PM jo1955 wrote:

Lucy55 Sending prayers and positive thoughts

Jo - Lump, no chemo, 25 rads + 5 boosts, Tamox X5 years . cancerr free since Aug 30th, 2010. April 2014 - Latissimus Dorsi Flap Reconstruction. July 13, 2013 - Hysterectomy due to multiple uterine issues while on Tamoxifen.
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May 26, 2017 07:42AM duckyb1 wrote:

Headed to the shore today with my son and his family.......had 4 invites.....had to pick onr......3 of my kids have shore homes, and my grandaughter has one too.........as my MIL used to say "Ok we have to do "chance a piece"......this time it was son #2......LOL........

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast
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May 28, 2017 05:19PM FireKracker wrote:

Happy Memorial Day to those who celebrate it..

Focktober!!!!Pink stinks!!!!
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May 28, 2017 07:40PM jo1955 wrote:

Firecracker - That is so awesome. Thanks for posting it.

Jo - Lump, no chemo, 25 rads + 5 boosts, Tamox X5 years . cancerr free since Aug 30th, 2010. April 2014 - Latissimus Dorsi Flap Reconstruction. July 13, 2013 - Hysterectomy due to multiple uterine issues while on Tamoxifen.
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May 28, 2017 08:05PM FireKracker wrote:

I thought of u JOJO when I posted it

Thanks to u and DH for serving

U both make me proud

Focktober!!!!Pink stinks!!!!
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May 29, 2017 04:37AM Lucy55 wrote:

Ducky ..of course you have 4 invites ..your family loves you ..We all love you ..you are a very special lady ..😃

FK .. beautiful...

Happy Memorial Day to you all ...xx

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/13/2014
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May 29, 2017 03:53PM FireKracker wrote:

it's raining all day in Pa

Cold too.

Not the normal Memorial Day.....

Maybe God wants us to plray instead of BBQ

Ya think???

Focktober!!!!Pink stinks!!!!
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May 29, 2017 08:03PM duckyb1 wrote:

Back home from a fantastic weekend down the shore...no beach a tad chilly and the weather could not make up its mind if it wanted to rain or the sun to come out.......but my son has a gorgerous deck that looks out toward the beach and ocean, so even if its cloudy, you can still sit out.....and part of it is covered so even in the rain its fun.............fantastic food......you name it they give it to me......and time with my grandaughter, and grandson......she is 23, and he is 18.......hugs to alls...This is my son and his wife......these are 2 of their children ...they have 4.

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast
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May 31, 2017 10:45PM Bluebird-DE wrote:

Ducky, that is what life is made of. Glad you had that time with your family.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Radiation Therapy External: Lymph nodes Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left
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Jun 1, 2017 06:22AM Lucy55 wrote:

Ducky .. beautiful family photos ..I love seeing them !


Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/13/2014
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Jun 1, 2017 10:36AM duckyb1 wrote:

I'm very lucky.........

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast
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Jun 1, 2017 05:23PM Lucy55 wrote:

My little grandson is still very ill ..please keep him in your prayers ..

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/13/2014
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Jun 3, 2017 03:27PM FireKracker wrote:

Focktober!!!!Pink stinks!!!!
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Jun 3, 2017 03:28PM - edited Jun 3, 2017 05:14PM by FireKracker

prayers for ur grandson Lucy

Lots of the

Focktober!!!!Pink stinks!!!!
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Jun 6, 2017 12:00PM duckyb1 wrote:

Here is Grayson (who most of you know her story)....at her first recital of course she could not dance, but she did her thing from her wheelchair...

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast
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Jun 6, 2017 12:31PM M0mmyof2 wrote:

Nice!!!!

If you value your freedom, thank a servicemember both serving and retired!
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Jun 6, 2017 01:26PM Lucy55 wrote:

FK ...thank you so much for the prayers ..

Ducky ..your twinnie's both look gorgeous !!

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/13/2014
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Jun 6, 2017 01:46PM duckyb1 wrote:

The. sad thing was it wasb't until the day of rehershal that my grandaughter realized there was a downward slant in the stage floor....Grayson could not control her wheelchair on the slant so the one thng she could do which was all the arm dance moves she couldn't do because her wheelchair would start to go forward when she took her hands off the wheels.....

Finally she managed to get herself in a position where she could get to a straight floor, and tried her best to catch up......why they didn't do something to put her in a spot where she could be seen without her having to move forward on her own is beyond me........but I guess to the instructors it wasn't important ......needless to say I was not happy....gonna show you the video if I can....not great but also you were forbidden to take video's......my son didn't care...why????? because the wanted you to buy theirs which was $30.00.......Really.........ok, could not send it...sorry....

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast
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Jun 6, 2017 02:51PM FireKracker wrote:

ducky

I'm so sorry things went crappy for Grayson

I'm sure she did her best

She is so beautiful

I saved the pic to show my Greyson...

I no he is gonna ask me if she is his cousin...lol

Focktober!!!!Pink stinks!!!!
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Jun 6, 2017 05:21PM duckyb1 wrote:

FK....tell her yes, they are cousins in name.....LOL

Sad thing is had they been more considerate of her needs at the dance school they would have realzed she could not control a wheel chair on a slanted floor....then they said "well how about if we put the brakes on......my grandaughter said then she can't move anywhere....after a full year of collecting money for this little girl, plus her twin sister they could not have done something ....i wish I could get the video to work so you could see her

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast
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Jun 9, 2017 06:39PM - edited Jun 9, 2017 09:20PM by FireKracker

I have been so busy with my son and his go fund me page I haven't even seen the boys

The weekend is finally here and I will show Greyson her picture

She is so beautiful,so is her sista

Sending hugs to the gang

Prayers to

Focktober!!!!Pink stinks!!!!
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Jul 19, 2017 01:40PM Bluebird-DE wrote:

into the fire - one rheumatologist with poor attitude and no drive to help me. plop plop.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Radiation Therapy External: Lymph nodes Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left
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Jul 19, 2017 10:08PM duckyb1 wrote:

Hi everyone.......warm by the fire......just like it is here in Pa..........Phew...

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast

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