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All TopicsForum: Moving Beyond Cancer → Topic: Anyone Else Get Calls From "The Breast Cancer Society?"

Topic: Anyone Else Get Calls From "The Breast Cancer Society?"

Forum: Moving Beyond Cancer —

Managing life after a breast cancer diagnosis, including rediscovering intimacy, coping with fear of recurrence, reconnecting relationships, sharing hobbies and interests, and finding inspiration in daily life.

Posted on: Aug 24, 2013 05:35AM

Kim14 wrote:

I am a 5-year survivor of Stage 2 invasive breast cancer. It was one of the worst things I've ever been through in my life, so I really do like to just forget about the whole ordeal.

However, I have recently received a few phone calls from a place calling itself "The Breast Cancer Society". The woman on the phone says, "We help a woman with breast cancer", but doesn't say HOW they help her. When I tried to ask questions, she vaguely claimed they gave financial and other assistance, which appears to be untrue. (Just Google 'Arizona Breast Cancer Society" and you'll see that they have a horrible track record as a "charity").

I recently saw a CNN report about the Arizona-based "Breast Cancer Society". CNN warned that the so-called "charity" is nothing but a scam. I went through Hell with breast cancer and nobody helped me with my astronomical medical bills. Even worse, The Breast Cancer Society is run by a family who also has "charities" for pediatric cancer, a general cancer fund, etc. All of these alleged "charities" have received an "F" grade from charity watchdog groups.

Anderson Cooper on CNN said they are shameless scammers who didn't want to answer the CNN reporter's questions. It really makes me mad that scammers are trying to line their own pockets by claiming to help "a woman with breast cancer", when this is NOT the case. The "charity" spokesperson couldn't even answer basic questions about where the donations go or what the money is used for.

Worst of all, they seem to be preying on women who have a history of breast cancer. (They probably assume we will be more sympathetic to their cause then the average person). Many breast cancer patients and survivors have reported very aggressive marketing calls from this organization. I've never before received a telemarketing call for any other kind of cancer or disease. I get letters from organizations fighting cancer and other diseases, but NEVER phone calls.

What I don't understand is how on Earth did they get my phone number? Or find out that I am a breast cancer survivor? I have an unlisted phone number and am on the national "Do Not Call" list. Somehow they must be getting access to our medical records, which I believe is a violation of the HIPPA privacy laws. I have no idea how they did this, other than perhaps hacking into hospital or health insurance records.

I wondered if anyone else has received calls from this organization? If so, how did you handle it? I know NOT to give them money in a million years, but I'm not quite sure how to get the phone calls to STOP. I've received several calls, told them I wasn't interested, but the calls continue. The worst part is that it is a VERY unpleasant reminder of an incredibly chaotic time in my life. I just want to put it behind me and NOT be reminded of it. Thanks for any advice.

May God bless all who must fight this disease.

Kim

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Aug 24, 2013 12:53PM - edited Aug 24, 2013 12:59PM by leggo

Hi Kim. I'm in Canada and we get phone calls on a weekly basis for every disease under the sun, but not cancer. For the most part, the calls are legit. Having said that, a call from a cancer society is not, just like you said. At least here anyway. All fund raising is done through the private sector. I wouldn't assume though, that the scammers got your number BECAUSE you had cancer. Phone numbers are bought and sold between companies all the time for solicitation purposes. For example, something as benign as a store purchase can give access to your phone number. Not too much that can be done about it, other than blocking the number so they can't call back.

"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
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Aug 24, 2013 10:13PM Soccermom4force wrote:

I got a call from them too. I told them I was going to report them to the FCC, which I did. I am on the DO NOT CALL LIST as well.

Warmly,

Marcia

" I expect to pass through life but once. If therefore,there be any kindness I can show, or any good thing I can do to any fellow human being, let me do it now, as I shall not pass this way again." Dx 12/2/2004, IDC, 2cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR+, HER2+ (FISH)
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Aug 26, 2013 12:52AM hbcheryl wrote:

I got a call too but I turned the tables and when she asked could she send an envelope and they would be pleased with any donation I told her "oh I thought you were going to send me money" she started blubbering and I just hung up but I have caller ID and they called me 3 times last week and I too am on the Do Not Call list

Dx 7/25/2008, IDC, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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May 16, 2014 06:47PM pipers_dream wrote:

OMG, that was the one that called me last night and I just finished writing a post on a thread called, "Is there a cure for stupid."  I was enormously irritated by the woman after she said I was "sweeter than a kitten with mittens."  Now I'm glad I was rude to her, lol, as I was feeling kind of bad about that today.  

Breast cancer should not be something to fear but rather a call to go deeper in this journey called life. Dx 11/14/2013, ILC, 5cm, Grade 2, ER+/PR+, HER2-
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May 16, 2014 07:16PM Fiaranch1 wrote:

Kim,

I got the same call about 6 months ago we have a non pub number and also are on the blocked/do not call list .  It is a scam, but I do not believe they have OUR medical records as when they called they asked to speak with my husband . I told the lie I always tell phone solicitors "he is out of the country for 6 months , how may I help you ? .  She proceeds with we are calling to solicit donations for women without insurance  to receive mammograms and we noticed that we have not yet received your donation this year.  I said well you need to update your records as I have given a substantial donation this year.   She responds "thank you if you could provide the specifics of your donation I will ensure it is noted in our files" . I said I donated both of my breasts to cancer in October of this year.  That is more of a donation than alot people give in a lifetime.  She started stammering hung up .....................  We have not received any further calls :-)

"And the day came when the risk it took to remain tight inside the bud was more painful than the risk it took to blossom". Anais Nin Dx 9/16/2013, IDC, 1cm, Stage I, Grade 1, 1/2 nodes, ER+/PR+, HER2- Surgery 10/22/2013 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 11/22/2013 Arimidex (anastrozole)
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Jan 13, 2015 11:35AM CidneyI wrote:

I got a call the exact same day I found out I had breast cancer. I thought it was odd that someone was calling me to ask for a donation within minutes of just getting back from the breast care surgeon office telling me the big news. So yeah, how did these people know to call me?

Dx 9/11/2014, DCIS, 2cm, Stage IIA, 0/5 nodes, PR- Surgery 9/11/2014 Lumpectomy: Right Surgery 9/18/2014 Lymph node removal: Right, Sentinel Radiation Therapy 9/24/2014 3DCRT: Breast Hormonal Therapy 10/23/2014
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Jan 7, 2016 05:18PM Itzy wrote:

I have had 2 phone solicitations for breast cancer since my diagnosis. They asked for me by name, which most robocalls do not. I've received thousands of phone solicitations over the years, but none related to breast cancer, and now 2 since my diagnosis. I want to know the source of the lists they work from.

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Feb 16, 2017 09:57AM cliff wrote:

I got the call too, and asked them if they knew men got breast cancer, cause I have it right now. they havnt called back. there are some good ones out there, when I found out I was paying 2500 after insurance paid 1090 for each monthly exgiva shot, I asked my cancer center about a generic. they got a foundation ( un named) to pay for most. are the real ones anonomous?

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 3/31/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 16, 2017 10:46AM Denise-G wrote:

They called me and I responded with this: "You hit the jackpot today! Myself, my mom and I all were diagnosed with breast cancer within 3 years. WE NEED HELP", I screamed. She hung up, of course.



www.denise4health.info my BC Blog with over 175 informative posts - stop by and say hello! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 11/23/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/27/2011 AC + T (Taxol) Targeted Therapy 2/28/2012 Herceptin (trastuzumab) Hormonal Therapy 10/11/2012 Arimidex (anastrozole)
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Feb 16, 2017 11:44AM farmerlucy wrote:

I have too. Ironically the caller ID showed "Breast Cancer", so dh and I had a chuckle when he said "Breast Cancer is calling." Been there done that. I don't answer those calls.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal

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