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Topic: When does the "Cancerversary" year start?

Forum: Life After Breast Cancer —

Managing life after a breast cancer diagnosis, including rediscovering intimacy, coping with fear of recurrence, reconnecting relationships, sharing hobbies and interests, and finding inspiration in daily life.

Posted on: Sep 11, 2019 04:04PM

kber wrote:

Date of Diagnosis?

Date of "no residual cancer" pathology results?

If you say you are "a one year survivor" or "20 year survivor", when did the clock start ticking?

Dx 11/2018, IDC, Left, 5cm, Stage IIB, ER-/PR-, HER2- Chemotherapy 12/6/2018 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 5/27/2019 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 7/16/2019 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 11, 2019 04:37PM Meow13 wrote:

I think it is what you want to go on, I have mine the date my tumors were surgically removed.

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Sep 11, 2019 04:39PM Lucy55 wrote:

The date of surgery is when I count mine from too ..

Surgery 8/26/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014 Surgery
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Sep 11, 2019 04:57PM kber wrote:

I had neoadjuvant chemo, so no surgery until 6+ months after diagnosis. Plus I achieved a path Complete Response (yay!) so technically I had "no residual cancer" going into surgery, but we didn't know it until after the surgery path report.

It would seem like there would be some "official' guidance, but I can't find anything easily on line.

Dx 11/2018, IDC, Left, 5cm, Stage IIB, ER-/PR-, HER2- Chemotherapy 12/6/2018 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 5/27/2019 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 7/16/2019 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 11, 2019 05:06PM Meow13 wrote:

That must be a relief, I also had a mastectomy and the pathology results really eased my mind. I know it can't tell you anything about cancer cells that may have passed through lymph nodes but I like the odds that are actually in my favor of never seeing this cancer again.

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Sep 11, 2019 07:28PM ksusan wrote:

My MO counts from surgery (chemo was afterward) and she's my hero, so I do what she does.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 11, 2019 08:13PM Runrcrb wrote:

my oncologist counts from diagnosis

Dx 6/27/2016, IDC, Right, 1cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Dx 6/27/2016, ILC/IDC, Right, 2cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Surgery 9/22/2016 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/9/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/23/2017 Aromasin (exemestane) Surgery 12/13/2017 Reconstruction (right): DIEP flap
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Sep 11, 2019 08:25PM Xxxxxxxxxxxxxxx wrote:

Interesting question. I also believe that the account starts on dx day since the treatments have different durations and, sometimes, there is no way of knowing if they are preventive or curative (adjuvant chemo, rads... How can we know if they really took care of a traveling cell?) The same applies to Herceptin and Tamoxifen... 🤔🤔🤔

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Sep 12, 2019 05:48PM Boston12 wrote:

My RO says the date of diagnosis.

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Sep 12, 2019 06:37PM kber wrote:

Thanks for all the answers! Really appreciated

Dx 11/2018, IDC, Left, 5cm, Stage IIB, ER-/PR-, HER2- Chemotherapy 12/6/2018 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 5/27/2019 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 7/16/2019 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 12, 2019 08:12PM Ingerp wrote:

Really—whatever works for you. I guess I consider date of dx mine—the day I found out I had cancer. I remember that and my last days of chemo and Herceptin. I wouldn’t mind if they all faded in my memory.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/18/2018 Taxol (paclitaxel) Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Radiation Therapy 8/20/2018 Whole-breast: Breast
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Sep 24, 2019 08:32AM - edited Sep 24, 2019 08:35AM by Xxxxxxxxxxxxxxx

Today is my first cancervery, I guess, since 1 year ago I received the result of my biopsy ... I'm still in active treatment (rads)... I didn't get the "Ned" yet so I don't know if I can call myself a survivor

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Sep 24, 2019 01:27PM MountainMia wrote:

I think for statistical purposes (the research databases) they use date of diagnosis.

Yndorian, I just looked up the word "survivor." One of the definitions given is "a person who copes well with difficulties in their life." YES. You are a survivor.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Apr 29, 2020 11:55PM Togethertolearn wrote:

Mine is today. One year from diagnosis.

Diagnosed 2019, age 45. Dx 4/2019, Right, <1cm, Grade 3, 0/2 nodes, ER+/PR+, HER2-

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