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Jan 21, 2010 08:55PM
Since finishing rads over 2 years ago, I am floored at the vast array of stinking symptoms and side effects that continue to bombard us. I remember, as a kid, knowing that radiation was a bad, bad thing. Yet they introduce it into our bodies as a healing and preventative measure. They never went over any of the awful-ness that happens for years after radiation treatments.
I have had all clear mammograms since the surgery and radiation. Until this past one in November, it showed a cyst in the 'scar' area. A Necrotic Fatty Cyst. Then, maybe because I knew it was there, it began to hurt. It began to feel harder and harder. I asked, BS inserted a needle and drew of fluid. Just fatty she said, nothing weird, and, "it's from the radiation". Like it was what we all had for lunch. Then the area began to turn pink, then red, she needled it again and then did a punch biopsy. Two rounds of antibiotics and a yeast infection from hell. On the Wed. before Christmas, so I had to wait throughout the entire Christmas weekend for B9 result. Harrowing.
boob still hurts. I protect it. Can't lie on that side. Have developed some lymphedema. And time after time after time, I remember that rads onc, when I would see him at the end of a week of rads saying, "see?, this is ALL we are doing to you". ALL??? All my ass. If I'd had a clue that this crap would still be bothering me on a daily basis... all from the rads. I would have refused it. After reading a lot of posts in this site, I believe I would choose mast over lump&rads again.
I always said, if they ever told me one of my breasts was sick, I'd say, cut that puppy off. But the reality came and they said they probably got it all in the original biopsy and the lumpectomy had clean margins the first time. I think the rads treatments were horrible to experience, miserable to have them in the late summer in the deep south, being of fair skin, I burned like MAD. Blisters the size of quarters under the breast and under the arm. I cried every day. And frankly, the idea that they cut my breast and took a hunk of it out completely freaked me out. I promise to be a complete basket case if they ever want to take more. It's taken me this long to come to terms with the little bit they took. To look at myself in the mirror, naked, again. To not cry every day.
Another friend has fibrosis on her lungs from the radiation. Others have Thyroid problems, from the radiation. I also have severe bone and joint disease up and down my spine - you guessed it, from the RADIATION. And we PAID them for this?
Emotionally distraught, financially destroyed, physically disabled, exasperating fatigue. BC blew up my life.
12/09 Necrotic cyst in scar tissue. Punch Biopsy, NED. Sept. 2012, Lymphedema, truncal.
6/6/2007, DCIS, 5cm, Stage I, Grade 1, 0/0 nodes, ER+