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Topic: After Radiation

Forum: Radiation Therapy - Before, During, and After —

What to expect from treatment and ways to cope with side effects.

Posted on: Mar 8, 2011 07:02PM - edited Mar 8, 2011 07:05PM by FireKracker

FireKracker wrote:

OK NOW WHAT DO WE DO?

I finished the Rads 3 weeks ago.Now What???

Kind of cream?deoderant?soap?exercise?etc.

How do we get back to our life before BC?

And how long is this process.I would like to hear from other sistas what they are doing and how they are feeling after the RADS are over.

Focktober!!!!Pink stinks!!!!
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Oct 2, 2012 09:10PM chabba wrote:

I can think of only one good thing about BC, a very good thing!  Without it I would have never met you and all of my other wonderful sisters on BCO!

Dx 5/25/2010, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2-
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Oct 2, 2012 09:40PM ptdreamers wrote:

chabba, that's very sweet. I went to 2nd opinon on my seroma yesterday. Female surgeon, perhaps not the best bedside manner but she said I don't do bullshit. Seromas happen it doesn't matter who the surgeon is. radiated breasts don't do well with further surgery as a rule. She offered to drain and bind tightly which we did but as she said it may or may not help. I'm willing to try this and if it doesn't work I'll live with it. Having people like you to vent to and talk with is a life saver. I would love to have a WA meet with our sisters here and Oregon.

ptdreamers, “Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do. . Sail away. Catch the trade winds in your sails. Explore. Dream. Discover.” Dx 8/26/2011, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Oct 2, 2012 10:01PM chabba wrote:

ptdreamers, we have several in BC too though I'll admit I don't know as many of them nor do I know them as well as those of us in WA and OR.

Dx 5/25/2010, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2-
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Oct 2, 2012 10:33PM MostlySew wrote:

Ptdreamers,
Sounds like you got a pretty straight forward answer from that surgeon, even if not the one you wanted. It's pretty much the same answer I get down here (northern calif). Fingers crossed that the binding works for your seroma. Right now my PT is attempting to loosen up some of my very thick scar tissue. Hope she's successful by my next mammo!

Dx 6/9/2011, IDC, 2cm, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 7/7/2011 Lumpectomy: Right Surgery 8/15/2011 Lumpectomy: Right Radiation Therapy 9/14/2011 Breast, Lymph nodes Hormonal Therapy 11/3/2011 Arimidex (anastrozole)
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Oct 3, 2012 07:13AM GmaFoley wrote:

ptdreamers - My surgeon says better out than in..She should be able to express it with a needle.  I would think that would be better than what is happening with me. I blew a small hole in my new lumpectomy scar - where the old radiated scar and the new scar meet.. It reminded me of breaking my water when I had my son.. It scared me so bad I went to ER - they basically said, "Let it leak" - I have blown that same hole again Sunday... So your Surgeon is correct... Old radiated skin doesn't heal well.. I still have my hole and am still leaking... Not sure when to go back to the doc and say I have had enough.. BTW - the surgeon thinks it must have been a seroma, but I do have lymphedema in that breast and when I walk or exercise in any form, I get a very sharp pain and then the hole breaks open... I personally think mine is lymphedema fluid..

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 3, 2012 09:09AM ptdreamers wrote:

GndmaFoley, It is the same fluid, lymph fluid I believe. At any rate hope for the both of us to heal. If mine forms again she is mentioning a drain but not thrilled with that idea because of the healin issue.

ptdreamers, “Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do. . Sail away. Catch the trade winds in your sails. Explore. Dream. Discover.” Dx 8/26/2011, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Oct 9, 2012 09:16PM Sherryc wrote:

Denis I had more numbness after rads.  I had a lumpectomy for a B9 issue and 14 years later turned to BC.  after 1st lumpectomy had slight numbness after BC lumpectomy and rads had total numbness in breast.  A year and 2 months later was still numb when I had my MX.

Sherry--lump left breast 9/30/10. No chemo, Zometa-6tx over 3 years.Oncotype score 23 with 14% recurrence rate. 34 rads. No family history, BRCA neg. 48 years old @ diagn. BMX/TE 3/26/2012, Exchange surgery 8/21/12, Revision surgery 11/27/12 Surgery 5/12/1997 Lumpectomy: Left Dx 9/27/2010, IDC, Left, 1cm, Stage IB, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 9/30/2010 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 12/3/2010 Hormonal Therapy 2/7/2011 Surgery 11/3/2011 Lumpectomy: Right Surgery 3/26/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left); Reconstruction (right) Surgery 11/27/2012 Reconstruction (left); Reconstruction (right)
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Oct 18, 2012 02:15PM FireKracker wrote:

Hey!!!!!!whats goin on here?

Everttime I go away this thread is soo quiet.

Come on sistas....ya just gotta show up!!!!!!!

Miss all you ya.

huggggggggggggs Grannydukes

Focktober!!!!Pink stinks!!!!
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Oct 20, 2012 07:16AM walley wrote:

Hi Everyone,Hope you are all doing well.No posts I guess everyone is doing okay.Hi Grannydukes!

Enjoy your weekend:)Cool

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Oct 20, 2012 03:09PM GmaFoley wrote:

I'm not doing so hot ladies - ended up with a seroma that burst through the scar from my last lumpectomy in August... BS cauterized in on tuesday leaving me with an open wound... by thursday it got infected... the antibiotic ointment he ordered for me - i was allergic to  (I think- swelled the opening where I applied it and it is all red) - so I'm on a z-pak and feel like someone has used my breast as a punching bag.. Sorry to be so down... but I am not feeling good at all..

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 20, 2012 03:34PM Omaz wrote:

Gma - I am so sorry to hear that - sounds so uncomfortable!!  I hope the antibiotics start working quick and it heals up.  That really sucks.

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Oct 20, 2012 07:18PM chabba wrote:

Esther, Prayers that you heal and recover quickly!

Dx 5/25/2010, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2-
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Oct 20, 2012 07:57PM GmaFoley wrote:

Thank you.. It hurts so bad but the breast skin isn't as red as it was. My DH said I need a depends bra..(.I leak bad yucky stuff) That made me laugh but it's not funny at the same time. I'm trying to stay positive.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 20, 2012 08:09PM FireKracker wrote:

Oh damn...GmaF....it will get betta,its gotta get betta.it betta get betta.....

Why havnt you come here for support?????...you know we love and miss you...

Just wanna give you a big hugggggggggggg.

and please keep us posted....

Focktober!!!!Pink stinks!!!!
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Oct 21, 2012 03:52AM walley wrote:

GmaFoley

sending a big hug for you ,makes me so sadCrySending prayer that you will feel better fast.

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Oct 21, 2012 05:06AM purple32 wrote:

but the breast skin isn't as red as it was.




Now there's a good sign!  Now hang onto that - one day at a time until you are much better.

(((HUGS)))

LE on left from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2+ Surgery 4/30/2012 Lumpectomy: Left
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Oct 21, 2012 09:07AM Omaz wrote:

How are you feeling today Gma?

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Oct 21, 2012 10:49AM GmaFoley wrote:

On ipod can't type well. Hole is smaller..still yellow goo coming out. Taking pain meds. Guess one out of three is still good :)

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 21, 2012 05:55PM GmaFoley wrote:

Question??? The hole is starting to get smaller but I am still leaking alot of yellow yuck and it hurts like you wouldn't believe (maybe you all do know how much that hurts)... Even though it looks like it is healing on the outside - can I be in trouble on the inside??? I have 2 more days on the z-pak.. just keep it cleaned out and keep up with the antibiotics???? Should I be calling the surgeon on Monday or can I wait until tuesday and give him a call??? I know that is really a stupid question, isn't it??

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 21, 2012 07:09PM chabba wrote:

I'd call on Monday unless I developed a fever before then.  At the first sign of a fever I'd call urgent care of ER and describe the situation  and see what they say.  If the feaver came on fast and elevated fast I'd go straight to ER.  I have no medical training but I have always been told high fevers with infections are dangerous.

Dx 5/25/2010, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2-
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Oct 21, 2012 07:18PM Omaz wrote:

I agree with Chabba.  Gma - I sure hope you feel better soon.

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Oct 22, 2012 01:06PM FireKracker wrote:

Today is Monday....GMAF---why dont you give the dr.a call?

Always betta to be safe then sorry.

Please let us know how you make out.

Prayers going your way right now.

Focktober!!!!Pink stinks!!!!
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Oct 22, 2012 01:21PM Omaz wrote:

Gma - How are you doin today?

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Oct 22, 2012 01:49PM GmaFoley wrote:

Called the doc - he is in surgery but nurse will relay the message - The hole is getting smaller but I am still dripping yellow goo and I'm still in pain. Last pill in the z-pac is this afternoon... I don't know what to say except the hole is getting smaller and I hope that is a good thing..really teary eyed and crying at everything today... Think I'm going to go into my LE therapist appt today - just to talk things through  and see what he thinks...

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 22, 2012 06:00PM FireKracker wrote:

Thinkin of you GRAM-E..prayin too.

here is hopin that this is the end as you end that z pack...good luck

huggggggggggs K

Focktober!!!!Pink stinks!!!!
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Oct 22, 2012 08:54PM GmaFoley wrote:

BS called back. Said no more antibiotics, let it leak, and see you next week.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 23, 2012 08:14PM FireKracker wrote:

Let it leak and see you next week......wow...a man of many words.

how you doin today?

Focktober!!!!Pink stinks!!!!
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Oct 23, 2012 08:16PM Omaz wrote:

Gma - How're you doing today?

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Oct 24, 2012 07:27AM GmaFoley wrote:

Thank you for caring about me :-)  Hole is a little smaller but real red around the hole - the rest of the breast is swollen but the red rash is gone.. taking pain meds still... BS said it would take about 3 weeks to close the hole if it was going to close - 1 week to go....  I see him next week some time - forgot to make the appt.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 24, 2012 08:18AM Omaz wrote:

Gma - No fever right?  

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