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Topic: After Radiation

Forum: Radiation Therapy - Before, During, and After —

What to expect from treatment and ways to cope with side effects.

Posted on: Mar 8, 2011 08:02PM - edited Mar 8, 2011 08:05PM by FireKracker

FireKracker wrote:

OK NOW WHAT DO WE DO?

I finished the Rads 3 weeks ago.Now What???

Kind of cream?deoderant?soap?exercise?etc.

How do we get back to our life before BC?

And how long is this process.I would like to hear from other sistas what they are doing and how they are feeling after the RADS are over.

Focktober!!!!Pink stinks!!!!
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Nov 28, 2012 06:42PM Sherryc wrote:

Granny-I am doing great.  Took a trip to TN for a conference and then as soon as I returned I had to get ready for Thanksgiving at my house.  We do it the Saturday before Thanksgiving.  Then had Thanksgiving with my husbands family.  Decorated for Christmas and had surgery yesterday.  My implants were falling out of there pockets so the PS had to go back in and redo everything with more stitching to re-enforce the pockets.  Are you back home.  The storm really did a number on the NE

Sherry--lump left breast 9/30/10. No chemo, Zometa-6tx over 3 years.Oncotype score 23 with 14% recurrence rate. 34 rads. No family history, BRCA neg. 48 years old @ diagn. BMX/TE 3/26/2012, Exchange surgery 8/21/12, Revision surgery 11/27/12 Surgery 5/12/1997 Lumpectomy: Left Dx 9/27/2010, IDC, Left, 1cm, Stage IB, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 9/30/2010 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 12/3/2010 Hormonal Therapy 2/7/2011 Surgery 11/3/2011 Lumpectomy: Right Surgery 3/26/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left); Reconstruction (right) Surgery 11/27/2012 Reconstruction (left); Reconstruction (right)
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Nov 28, 2012 06:52PM FireKracker wrote:

Yes Sherry I am home....was away 1 month chasing the electric trail.

Im glad your doin good.You are such a trooper.I just hope this is all over for you and you heal quick without any problems...

huggs everyone.

Please check in for the holidays.miss all of you.



Focktober!!!!Pink stinks!!!!
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Dec 3, 2012 01:04PM GmaFoley wrote:

My grandson brought me a virus and shared it with everyone that came on Thanksgiving... I have sinus infection and bronchitis... wish things would just give me a break!!! 

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Dec 4, 2012 09:04PM FireKracker wrote:

GMA F---everyone i talk to is sick....i too had bronchitis...chronic/acute when i was in pa...also had pneumonia....and the funny thing is i took the shot for pneumonia months ago and i my dr said good now you will never get pneumonia...yah right.

also i have been pushing the sistas to get the shingle shot when they finish tx.I just read on another thread that someone who had the shingle shot still got the shingles....

well that just pisses me off.

i hope you feel betta by now.

sand the shitstorm continues.

where is all my sistas???????????????????????

Focktober!!!!Pink stinks!!!!
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Dec 31, 2012 08:42AM walley wrote:

Happy New Year Everyone!!!!!So thankful for all of youSmile

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Dec 31, 2012 09:14AM GmaFoley wrote:

Happy New Year Walley - I'm still lurking :)

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Dec 31, 2012 05:10PM FireKracker wrote:

Happy new year Wally and GMaF...lets hope 2013 will bring us all good things...Health first and the rest follows.

Thank you for showing up on this old thread....miss all you sistas.

Over 4 thousand messages....We did good sistas.Thanks to all of you

hugs,love and kisses

grannydukes

Focktober!!!!Pink stinks!!!!
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Jan 15, 2013 06:24AM walley wrote:

Hi everyone!!!!Hope you are all doing fine!Cool

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Jan 15, 2013 08:14AM GmaFoley wrote:

I'm hanging in there, but cut the sugar out of my diet 3 days ago and am going through some real mean withdrawl symptoms - hopefully no one crosses my path today - or this "nice" little Grammie will surprise them. Miss chatting with you all!

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Jan 15, 2013 11:12AM LindaKR wrote:

Gma - is it chromium that you should take to help with sugar withdrawal - hmmmm - I should have looked it up for you first, but there is some supplement you can take to help with the sugar cravings when you cut back on sugar.  Good luck, I know you'll feel better with out that poison in your system - have you cut out white flour too?  I know they make a huge difference for me.  Take care,

Linda

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema. Dx 3/19/2010, IDC, 4cm, Stage IIIA, Grade 2, 5/18 nodes, ER+/PR+, HER2+ Surgery 4/2/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 5/15/2010 Herceptin (trastuzumab) Chemotherapy 5/15/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 9/15/2010 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Radiation Therapy 9/25/2010 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Jan 15, 2013 11:23AM GmaFoley wrote:

Linda, yes all white flour and sugar.. the main thing was the carbs were taking over my plate - now it has more veggies and protein.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Jan 15, 2013 11:38AM LindaKR wrote:

That happened to me over Christmas, now I've cut waaaayyyy back on the bad stuff, and am starting to feel some better.

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema. Dx 3/19/2010, IDC, 4cm, Stage IIIA, Grade 2, 5/18 nodes, ER+/PR+, HER2+ Surgery 4/2/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 5/15/2010 Herceptin (trastuzumab) Chemotherapy 5/15/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 9/15/2010 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Radiation Therapy 9/25/2010 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Jan 16, 2013 10:50PM FireKracker wrote:

Show me the way........sugar is killin me....been sooo bad.

Focktober!!!!Pink stinks!!!!
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Jan 21, 2013 11:19AM ToriGirl wrote:

Wow, I've missed out on so much!

Sounds like everyone is hanging in there though and that's what counts!

The first few weeks of this year had me sick too! First an intestinal bug, okay for about a few days, then a nasty cold from my nephews! Yuck! So glad to be feeling better though!

Hubby left on Dec 22nd.... Been one month already! Only 11 to go! But, I did find out he does get a 15 day break in the middle. So we are trying to decide where to meet! Yay!

Got our house on the market too last week. Definitely no fun when you are feeling fine, just miserable when you feel yucky. But, it's done and now we wait!

Weather has been up and down here. Nothing else exciting going on. Just excited to see you are all still posting!

Prayers are always being said by me for all of us!

Much love,

Tori

"Sorrow carves the opening for joy later..." Dx 6/4/2010, IDC, 1cm, Stage IIA, 1/11 nodes, ER+/PR+, HER2-
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Feb 6, 2013 09:16AM GmaFoley wrote:

Can you ladies jump into my pocket tonight - but don't be too noisy at the party - its a overnight sleep study.Wink

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 8, 2013 06:50PM FireKracker wrote:

Wow GmaF....just saw this post.Hope everything went just fine with that sleep study.

This thread is really played out to the max.

Please pm me and let me know how you made out without the pocket party.

Miss talkin to all my after rads sistas/

big huggggg

grannydukes

Focktober!!!!Pink stinks!!!!
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Feb 8, 2013 07:26PM walley wrote:

Gmaf sorry I missed the pocket party,please let us know how it went:)

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Feb 8, 2013 08:36PM FireKracker wrote:

Hey Walley---nice to see ya.

I  wish everyone would check in once in a while

I miss my girls!!!!!!!!!!!

hugggggggggs

grannydukes

Focktober!!!!Pink stinks!!!!
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Feb 9, 2013 12:32AM GmaFoley wrote:

GrannyDukes & Walley - It took me longer to get to sleep but at 1am they said I met the criteria and they got good information... we will put the CPAP on now for the rest of the night. Thank goodness I brought my own mask.. Got to sleep in until 6:15 LOL.. While checking out they told me it would be 2 weeks before I get results and use my CPAP until they talk to me.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 9, 2013 09:38AM walley wrote:

Gmaf please let us know your results:)grannyD always look to see if any posts.I am coming up on my 2 year since

my diagnosis.I can't tell you how much all the ladies helped me get through.Thank all o fyou.Have a great weekend!

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Feb 9, 2013 08:49PM FireKracker wrote:

Well Gmaf you are bringing my baby out in the open again.I thought we did pretty good for 3 yrs running.

I finish the 3 yr.after rads this month.Dont remember the day.dont wanna either.

Please let us know through here how you made out with that study.....remember this is AFTER RADS.lol.

Congrarts Walley....we came a long way baby.

huggs to both of you

K

GrannyD

Focktober!!!!Pink stinks!!!!
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Feb 13, 2013 09:46AM GmaFoley wrote:

Hello again,

Long time back did we have a discussion on radiation damage traveling down to the hip on the same side?  I went to see my pain management doc after having a grand time with the grandsons, I managed to flare up my hip/bursa some how and can't hardly walk. My doc and I started talking and reminded me all my aches and pains seem to be on my right side.. the pain was so bad that he gave me a anti-inflammatory & pain shot as I can't ingest antiinflammatory meds..  But it got me wondering, if something else is going on?  I walked a little yesterday and traveled to get my new compression cami and this morning I am having horrible pain again.. I am taking muscle relaxers but doesn't seem to cut it - think I have to go back to tylenol #3s.. Any suggestions on what I can do? - Ice, stretching, resting - that is what I have been trying.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 13, 2013 05:31PM FireKracker wrote:

Ice,rest and stretching all the time usually does the trick...tylenol#3 does work but its like a bandaide.

I find if i do too much not only is my body killin me but that arm...oh damn it hurts like hell if i do too much.

everything in moderation.

waiting to hear your other results.

take it easy and breathe...smell the roses and then blow out the candles...10x....it helps to relax the entire bod.I do it at least 2x a day.Try it....

huggs Grannydukes

Focktober!!!!Pink stinks!!!!
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Feb 17, 2013 07:57PM GmaFoley wrote:

Hey Grannydukes, Hugs4u, Walley and Ducky - you have stuck by me through thick and thin.. I have a mild case of everything but I just can't do it anymore..  breast, nerve damage, sleep apnea and now bursitis in the hip... I'm done Just can't fight.. I know I am one of the lucky ones that survived, but a person can only take so much.... what happens happens ....

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 17, 2013 08:50PM FireKracker wrote:

OK GmaF...i too have a mild case of everything.....i hear you but dont understand....

You cannot give up...bullshit with the im done!!!!!!

I just had a son who had a failed brain surgery.14 hrs.for nuthin...nuthin.he had an aneurism and he still has it and dont know about it.

I have to go for stomach surgery if i dont im gonna have to get a colustomy(sp) the bag to poop in.

Sure somedays i wanna say enuf...but i put 1 foot in front of the other and move.is it easy?hell no its not easy but God has a plan for both of us and it doesnt include givin up...

When you reach bottom the only thing you can do is go UP.

please pm me if you feel like talkin.

PLEASE DONT SAY YOU ARE DONE.

Focktober!!!!Pink stinks!!!!
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Feb 18, 2013 08:34AM walley wrote:

GMAfoley.........What Grannydukes said!!!!! I know it is so hard.Just when you think everything is getting better something else pops up.Hang in there, we will be here to listen and help anyway we can!WinkJust take it one day at a time(((hugs))))

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Feb 18, 2013 12:43PM FireKracker wrote:

Where are all the other sistas????????where? We need support and we need it now.

GmaF...I hope you heard me yesterday.....

Im goin to the dr. soon....Ill be back and i hope to find 1-some other sistas to come here for support and 2-a message from you that you heard me.......otherwise im gonna have to get busy and call in the troops one by one.

ill be back!!!!!!

Focktober!!!!Pink stinks!!!!
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Feb 18, 2013 12:54PM - edited Feb 18, 2013 12:55PM by CarolynVM

Okay, GmaFoley.  We don't know one another but we share a whole lot of life.  This sense of defeat is a sickening sensation I've had also.  I think your Grammie Esther also knew that feeling.  You quote what she learned.  "Grammie Esther: Imagine God in His HUGE rocking chair, rocking you and saying, 'It will be ok,  you can do it. I will be right here for you'."  If Grammie Esther knew this, she learned it from her needs.  Your grandchildren will learn this wisdom from you just as mine will learn from me.  We can't quit on ourselves without quitting for these precious children who will someday need our strength and wisdom for themselves.  I quote my great-grandmother.  You quote your grammie.  Someone will quote us if we've lived a life worth quoting.  That's how life works.

"All bads got goods." (Swiss quotation) -- Oncotype Score 28 -- Lymphedema dx 03/06/13 Dx 11/12/2012, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 11/21/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 2/5/2013 Breast, Lymph nodes Hormonal Therapy 4/15/2013 Aromasin (exemestane) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Feb 18, 2013 12:58PM GmaFoley wrote:

I heared just so depressed - granny i PM'd you.  Wish my docs were more understanding about the LE.. in pain and tired - don't make a good combination

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 18, 2013 01:04PM ptdreamers wrote:

GmaFoley, Granny Dukes, One day at a time, sometimes it just seems so hard. There is a very caring group of sisters here who share your miseries. Sometimes we are all having difficulties and sometimes one or two have it bad but we all know and care. Pain is so debilitating that it makes it seem hopeless but it is not.  Work on getting that under control and things will come around again. In both of your pockets. Hugs

ptdreamers, “Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do. . Sail away. Catch the trade winds in your sails. Explore. Dream. Discover.” Dx 8/26/2011, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2-

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