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Topic: After Radiation

Forum: Radiation Therapy - Before, During, and After —

What to expect from treatment and ways to cope with side effects.

Posted on: Mar 8, 2011 08:02PM - edited Mar 8, 2011 08:05PM by FireKracker

FireKracker wrote:

OK NOW WHAT DO WE DO?

I finished the Rads 3 weeks ago.Now What???

Kind of cream?deoderant?soap?exercise?etc.

How do we get back to our life before BC?

And how long is this process.I would like to hear from other sistas what they are doing and how they are feeling after the RADS are over.

Focktober!!!!Pink stinks!!!!
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Mar 27, 2013 11:19PM ToriGirl wrote:

Granny!

Always a sight for sore eyes!

Missed you something fierce!

Crazy busy for me right now, but doing my best to get here and check on everyone as much as I can...

I could use an extra prayer or two if anyone can..

Love and prayers for all...

Tori

"Sorrow carves the opening for joy later..." Dx 6/4/2010, IDC, 1cm, Stage IIA, 1/11 nodes, ER+/PR+, HER2-
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Mar 29, 2013 06:20PM FireKracker wrote:

Torigirl-----you know that i always say an extra prayer for you honey!!!!!

We have been walkin together for yrs.now...

stay busy and stay well

hugggs grannydukes

Focktober!!!!Pink stinks!!!!
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Mar 29, 2013 08:02PM artpetals wrote:

Hi girls!

I have read back a few pages and I like this group!

I have one more day of radiation on Monday (28 days total). My chemo SEs were starting to go away but two weeks into radiation I started feeling them again! So I have been taking more Percocet to get through rads but I am hopeful that my feet and hands and legs will get better as I recover from radiation.

This week I have been uber-tired and the hot flashes have gotten more intense. And then the day before yesterday I had to use my hands to pushmyself up off the sofa, so evidently my weak chemo legs are back, also.

Did any of you notice your hot flashes getting worse during the last days of radiation? Did they get a little less intense as you recovered from radiation?

new2BC, I had subclinical lymphedema before radiation started. I went to PT and learned the drainage exercises and got a compression sleeve. My PT told me to wear the compression sleeve every day during radiation as she said if I were going to get full-blown lymphedema, it could happen during radiation. My radiologist agreed that radiation is an increased risk for lymphedema, so I have done my exercises and worn the compression sleeve most of the days. And when I fly in the future, I will wear the sleeve. So far, the arm is in good shape although the tissue expander area is swollen. Evidently lymphedema can even show up 20 years after a mastectomy.

This week I have had brain fog and temporarily lost a jacket, my cell phone, and an insurance form!

Will you all do the happy dance with me Monday after my last treatment?

I would appreciate your prayers for clear thinking and energy by Thursday as I have a job interview!

P.S. I am 53 and I backpacked 50 miles in six days in Yosemite before my mastectomy last year...I had survived a horrific divorce when I was diagnosed with the BC. The chemo and radiation have definitely knocked my legs out from under me!

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Mar 30, 2013 06:36AM walley wrote:

Sending prayers for all you ladies.Have a Happy Easter everyoneSmile

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Apr 1, 2013 03:38PM GmaFoley wrote:

Ladies - I came to say my goodbyes. I love you all but can't stay..

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Apr 1, 2013 05:57PM FireKracker wrote:

happy Easter Wally.

GmaF....gonna miss you....please pm your after rads friends.We love youxoxoxo

grannydukes

Focktober!!!!Pink stinks!!!!
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Apr 1, 2013 06:57PM Waitingforthenextstep wrote:

artpetals,

           I have been having a similar experience.  I had a 4 week break between taxol and rads.  I had bad SE's from the taxol, body aches, achy leaden legs.  After a while I started to feel better, aches really subsided.  After 10 rad tx's the fatigue and aches came back.  I have been resting after rads, but am so over it.  5 more tx's to go, hoping my skin will hold out.  

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Apr 2, 2013 03:04PM FireKracker wrote:

Hello new york.my home town.

just want to give you a bit of advice...

this thread is goin for a long time.at the beg.we had a large group who all finished the rads together.there is a ton of great info from the very beg.Its really worth reading.

All the best.

huggs grannydukes

Focktober!!!!Pink stinks!!!!
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Apr 13, 2013 03:37PM walley wrote:

Hi everyone, hope all is well.Have a great weekend!

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Apr 13, 2013 08:17PM FireKracker wrote:

Gee Wally...every once in a while you show up and bring this thread back to life.Thank you for that.

Miss seeing your smiling face.please come back often.

huggs Grannydukes

Focktober!!!!Pink stinks!!!!
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Apr 26, 2013 03:31PM walley wrote:

Hi, everyone have a great weekend.Cool

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Jul 14, 2013 05:50PM - edited Jul 14, 2013 05:50PM by walley

Hi Everyone,

Hope everybody is doing well.Haven't seen anyone on here for awhile.Have a great week:)

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Jul 14, 2013 08:52PM CLYDAY wrote:

Hi ladies...so I finished RADS Thursday and my skin seems to be healing up.  I know some have said it sometimes gets worse after RADS....is it still a possibility if my skin is healing?? I am lubing the girl up several times a day and stretching some.  Any thoughts would be appreciated!!

Dx 9/21/2012, IDC, 1cm, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/8/2012 AC + T (Taxol) Surgery 4/3/2013 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 5/28/2013 Breast, Lymph nodes Surgery 5/15/2014 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement Surgery 10/29/2014 Reconstruction (left)
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Jul 14, 2013 09:30PM GmaFoley wrote:

If it looks like it is getting better you are probably ok. But it takes a very long time to heal. Remember, this heals from the inside out. Be good to yourself and keep creaming yourself up. Congrats on finishing rads!

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 16, 2013 06:42AM walley wrote:

Hi Ladies,Just checking in on all of you.Looking forward to Fall! My favorite time of year.Hope all is well wth everyone:)

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Sep 16, 2013 10:58AM FireKracker wrote:

Hi Wally
You are so faithful to this thread
Most of the sistas have left when they felt it was time to move on.
GmsF...you too are so faithful.
Thanks.
Remember when we started this thread 3yrs.ago..Time does fly.
Would love to see the sistas check in.
Big huggs
Grannydukes

Focktober!!!!Pink stinks!!!!
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Sep 30, 2013 09:20PM ToriGirl wrote:

Always to see everyone still replying on this thread...I'm still praying for us all....big hugs and love to you all...

Tori

"Sorrow carves the opening for joy later..." Dx 6/4/2010, IDC, 1cm, Stage IIA, 1/11 nodes, ER+/PR+, HER2-
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Oct 2, 2013 07:09PM oropallo wrote:

I also do yoga and in the meditation relaxation phase have a hard time putting my affected arm above my head without pain or tightness. Was suppose to have 5 weeks of radiation but only completed 3. (chickened out for the rest). I though it was just getting back in the swing of working out but too much time has passes and am sore all the time. Both exercising and sleeping on my stomach as I used to. Had a double mastectomy with DIEP. Only the radiated side hurts and is tight. Oh well....dont know what to do about it. Just keep exercising it and hope for the best, I guess. UGH.
R

Dx 9/11/2012, IDC, Right, 3cm, Stage IIB, Grade 3, ER+/PR+, HER2- Surgery 10/10/2012 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 12/7/2012 Hormonal Therapy Radiation Therapy
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Oct 2, 2013 07:19PM FireKracker wrote:

Torigirl---soo glad you checked in.
Most of the sistas have moved on.
And it's soo good to hear things are going well for u.
I see we have a newbee...welcome to the thread that is very inactive.
May I suggest either u start from the begining(doubtful) or you go to the radiation recovery thread as it is much more active...sorry .
BTW I still have pain under the arm and I'm 3yrs.out.
Good luck..
Big huggggg
Grannydukes

Focktober!!!!Pink stinks!!!!
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Oct 18, 2013 06:29AM walley wrote:

Have a great weekend everyone. Hope everyone is doing well:)

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Oct 18, 2013 10:08AM FireKracker wrote:

hi faithful Wally

How u doin?

Focktober!!!!Pink stinks!!!!
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Oct 19, 2013 05:29AM walley wrote:

Doing great grannydukes! Have a great day:)

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Oct 19, 2013 10:30AM FireKracker wrote:

I think its just u and me on here now....always nice to see you.have a wonderful weekend,

Focktober!!!!Pink stinks!!!!
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Oct 19, 2013 08:26PM - edited Oct 19, 2013 08:27PM by GmaFoley

I'm here - kinda - not really - but will say hi - still having trouble with dizzy and nausea - down 14 lbs from not finding food appetizing any more - but I'm still kicking and working 46 hours a week - 40 at home computer job and 6 at fabric store on Sat.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 19, 2013 10:57PM FireKracker wrote:

GmaF..

U and Wally r the only ones who stop by here

Thank u for keeping this thread still goin

I'm always soo sorry to hear all the crap ur having still.

Always u are in my prayers.

You are one of the strongest sistas I no.

Bigggg hugggggggggg

FireKracker

Focktober!!!!Pink stinks!!!!
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Oct 25, 2013 04:40PM ToriGirl wrote:

Just checking in ladies...I will always check in here to see how my sisters are doing...

Love you all...praying everyday for you and your intentions...

Halloween almost here and I"m excited! Really haven't even noticed all the "pink" stuff!

Hugs!

"Sorrow carves the opening for joy later..." Dx 6/4/2010, IDC, 1cm, Stage IIA, 1/11 nodes, ER+/PR+, HER2-
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Oct 26, 2013 07:30AM walley wrote:

Hi Ladies,

How is everyone doing? I love Fall:)My favorite season:) I live in Fort Myers, Fl and it is just now starting to cool down. Everyone have a great weekend:)

Happy Halloween!!!!!!

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Dec 16, 2013 08:40AM GmaFoley wrote:

A retreat place for all: community.breastcancer.org/for... - feel free to contribute peaceful pictures.


I am still fighting nerve pain, 2.5 years now from the radiation. Now adding dizzy and nausea(for 4 months now; getting off the Gralise for the nerve pain and the pain is still there. Going in Tuesday to see my PCP because my Great pain doc left town and his associate ignores me. I'm tired and I figured others might need a retreat like me - hence my new topic where we can go and remember God is in control of my life and I trust Him to put the proper people and doctors in my way to help me. HUGS to all.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Jan 12, 2014 03:22PM ToriGirl wrote:

Sisters....

Praying this new year brings you so much joy that you burst...

Hugs and more hugs,

Tori

"Sorrow carves the opening for joy later..." Dx 6/4/2010, IDC, 1cm, Stage IIA, 1/11 nodes, ER+/PR+, HER2-
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Feb 17, 2014 09:32PM Sunny1012 wrote:

hello all--I am new to all this.  I am due to start radiation soon but I am worried about long term side effects.  I would love for you all to let me know how you are currently doing, if you believe the benefits outweigh the risks and if you had it to do again would you?  Any side effects after the fact and Any other advice would be helpful.  I am ready to just run the other way as I feel any decision I make, I lose.  Please respond soon.  Thank you all.  

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