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Topic: After Radiation

Forum: Radiation Therapy - Before, During, and After —

What to expect from treatment and ways to cope with side effects.

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Posted on: Mar 8, 2011 08:02PM - edited Mar 8, 2011 08:05PM by FireKracker

FireKracker wrote:

OK NOW WHAT DO WE DO?

I finished the Rads 3 weeks ago.Now What???

Kind of cream?deoderant?soap?exercise?etc.

How do we get back to our life before BC?

And how long is this process.I would like to hear from other sistas what they are doing and how they are feeling after the RADS are over.

Focktober!!!!Pink stinks!!!!
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Feb 17, 2014 09:45PM TB90 wrote:

Sunny:  This does not appear to be a very active thread.  There is one called radiation therapy, ten years out, or something like that.  It has been much more active, so check that one out.  I will find the proper name. 

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/17/2013 Mastectomy: Left Radiation Therapy 2/19/2014 Breast
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Feb 17, 2014 09:47PM TB90 wrote:

Long-term radiation side affects, 10 years after . . .

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/17/2013 Mastectomy: Left Radiation Therapy 2/19/2014 Breast
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Feb 17, 2014 10:28PM Sunny1012 wrote:

hi TB90,

I see that your diagnosis timeline is close to mine I was diagnosed 10/28/13 and surgery 1/8/14.  Now time for radiation.  Are you doing radiation and if so how are you doing?

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Feb 17, 2014 11:10PM FireKracker wrote:

yes this thread has ben quiet for quite some time

BUT

if u want some real good info read from the begining

We all finished treatment at the same time,and there is a lot of info that says it all

Any thing u can think of we had,done,liked,disliked and we were quite blunt about it.

Ill be checkin in if anyone needs help and some of the other sistas will be more then glad to give you any info.

Please dont be so fast to jump ship..

Focktober!!!!Pink stinks!!!!
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Feb 18, 2014 09:58AM GmaFoley wrote:

TB90 - All I have to say is if you can take the short 16 treatment route - do it - Many people have no problems, some people like me have permanent nerve damage from the full force 28 day treatment.  My sisters both had the 16 day and have no problems at all.  Good luck and you are always welcome here to ask questions. It is on my favorites list, so if someone says something I see it.  FireKracker was correct though. Start a page 1 and read through - I think all your questions will be answered.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Apr 5, 2016 09:58PM Frustratedwithdrain wrote:

I have just started radiation so I have no side effects yet. For those of you that had side effects how long after you started did they appear?

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Apr 5, 2016 10:30PM Kicks wrote:

My burns came the day after last rad. No problems at all during rads. The deepest of the burns did finally heal 4 mths after last rad. It took using Domeboro soaks to finally dry it up.

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes
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Apr 6, 2016 12:45AM Hopeful82014 wrote:

I started tx midweek and by maybe Tuesday of the following week started to see pinkness. The pinkness built slowly. I felt tired early on in the process but that was intermittent and unpredictable.

I never really burned much - mostly pink to dark pink and it started fading as soob as treatment ended - actually, once the boosts started the rest started to fade. I still have some issues with tightness and tenderness of the underlying tissues but my skin loomed completely normal again pretty quickly. My RO said I would do very well and she was right!

Good luck with your treatment!
Dx IDC
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Apr 6, 2016 01:50PM GmaFoley wrote:

Unfortunately for me, I started the pink within the first week and had 28 treatments. By the time I was done I was very red and had damage to my lymph nodes.. It took a long while to heal. I would keep them aware and don't let them brush you off if you feel burned.. I got the "you don't know what pink is" snicker snicker..... At the end, when the original radiologist saw me he scrunched his nose and said, "I didn't think you would burn that bad" My skin did go back to normal..

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Apr 6, 2016 04:01PM Kkubsky wrote:

I have had 13 out of 18 treatments and so far no big SEs. A bit of redness in the crease under my boob....started this week. No real fatigue from the radiation, mostly mental stress fatigue. My boob might be feeling a little beat up but it has been I suppose!! Hoping it doesn't get worse these last few days.....

Dx 1/28/2016, DCIS, Left, 1cm, Stage 0, Grade 3, ER-/PR- Surgery 2/24/2016 Lumpectomy: Left Radiation Therapy 3/21/2016 Whole-breast: Breast
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Apr 8, 2016 12:16AM mom45 wrote:

I finished radiation 4 days ago. I'm really burnt on top of my breast and open raw spots on the bottom. I am miserable right now. A bra is not possible. I'm using a spray cream they gave on the bottom.it forms,sort of, a barrier for the skin.As long as I lay on my back. I'm a 42 dd. So it stays warm and moist in that area. Hurting and wondering if this will ever heal!��













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Apr 8, 2016 10:26AM Tessio wrote:

Hi ladies,

I am five weeks post 30 radiation treatments. My skin has healed and everything looked good at my radiation follow up appointment 3 days ago. My energy level has been cruddy the past 2 weeks. The last 2 days I've noticed increased shortness of breath, stairs are a nightmare right now. Of course it had to happen after my follow up appointment.

I've also started Tamoxifan 2 weeks ago and my hemoglobin was low on Tuesday due to a heavy period. TMI !! :)

I will call my doctor today, but wanted to check in with my warriors too. Anyone else get shortness of breath post radiation? Thank you!!

Dx 7/2015, DCIS/ILC, Left, 3cm, Stage IIB, 1/2 nodes, ER+, HER2- Surgery 8/30/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 10/14/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes, Chest wall
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Apr 8, 2016 10:36AM - edited Apr 8, 2016 10:40AM by GmaFoley

Mom46 -

It will get worse before it gets better hunny. I started to take pictures to see the progress because when I was in the middle of it you don't see improvement. It really helped me realize I was improving. I didn't wear a bra and when I started to my skin was so sensitive I wore a pure cotton tank inside-out under my bra. I saw improvement daily but will take about 2 weeks. Keep it clean and you will be ok.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Apr 8, 2016 10:40AM GmaFoley wrote:

Tessio - I was very tired and any exertion made it hard to breathe. It should pass but if you have any concerns about your breathing, don't hesitate to call the doc. You need to be able to breathe... My asthma did flare about the same time too.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Apr 10, 2016 03:06PM Tessio wrote:

Thank you Gma Foley! I have an appointment tomorrow, but am feeling much better today. Of course, it is the weekend and I have not been exerting myself. W


Dx 7/2015, DCIS/ILC, Left, 3cm, Stage IIB, 1/2 nodes, ER+, HER2- Surgery 8/30/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 10/14/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes, Chest wall
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Dec 10, 2017 12:32PM Rhyfelwr wrote:

New here, and will be finishing rads this week. I feel like an absolute mess, and don't know what "after" really means. Are there any others out there lurking who want to join this board and give it a reboot of new sisters?

Just thought I would raise the flag and see what happens. BTW, this is my first ever post.

Rhyfelwr (Warrior, in Welsh. I wish I felt like one. Most days, I feel like a Victim.)

Dx DCIS 5/5/2017; Lump 5/12/17; SLN biopsy 5/19/17 (my bs and I had this Friday thing going); Stage IIA, Hr+/HER2-; AC x4; Taxol x 12; Rads x20

Rhyfelwr Dx 5/5/2017, IDC, Left, Stage IIA, Grade 2, 1/10 nodes, ER+/PR+, HER2- Chemotherapy 6/14/2017 AC + T (Taxol) Radiation Therapy 11/15/2017 Whole-breast: Breast, Lymph nodes
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Dec 10, 2017 12:40PM Georgia1 wrote:

Hi there, warrior sister! I am still in radiation land, with number 11 of 15 set for Monday. So I guess we both finish this week! There are a bunch of us over in the "radiation in December" topic thread if you want to say hi over there. It's a more active thread. But welcome! We all have "feel like a mess" days as well as "I can kick cancer's butt" days so that, at least, is perfectly normal.


Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 10, 2017 12:57PM DodgersGirl wrote:

Rhyfelwr - I finished rads about 10 days ago and wondered what's next.....so I started a new thread for those who went through dx or tx in 2017 to give us a place to continue to help each other.

if you are interested, please take a look at this thread

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Dec 2, 2019 01:28PM BiddyBridget wrote:

Hi! I just started my radiation treatment. I’m trying to read as much as I can to plan ahead. I appreciate the recommendations on the lotions that provide relief. Is there a post or discussion where people have shared their different experiences with tiredness related to your radiation? I have to plan as much as possible in advance for work (Within reason of course :) )

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Jan 27, 2020 09:04PM Lauramv wrote:

Hello all. Just saw your thread and would like input on best topical for pealed burnt skin under armpit. Just finished rads, and while chest is red, the armpit area was burnt black, and now has pealed in the last few days. Trying aquafor, and aloe and lidocaine gel for the pain.Any feedback would be wonderful!

Dx 9/30/2019, IDC, Right, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Radiation Therapy 12/18/2019 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 2/19/2020 Arimidex (anastrozole)
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Feb 2, 2020 08:34PM AutismMom1 wrote:

To Lauramv - my skin did not get that bad, but I used Natural Care Gel by Bard (my aunt's RO had given her some to use so I figured it must be good!) and I used Calendula Salve and Aloe. Also, toward the end of my radiation treatments I found a product called Miaderm (created by ROs) which I also liked and it seemed to have as ingredients a lot of those natural products I was using. Hope you heal quickly!

ILC Jan. 2019 Dx @ 46 Dx ILC, 4cm, Stage IIIA, 1/3 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Lymph nodes, Chest wall Surgery Mastectomy Hormonal Therapy Arimidex (anastrozole)
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Feb 5, 2020 12:21PM MarciaM wrote:

Thank you dearest ! Warning ladies with sensitive skin or psoriasis!

I’m glad I discontinued radiation as some ten years later I’ve only now discovered how brutal this treatment was in me . Not only did I develop lynpadema but I had severe radiation damage to my breast’s clavicle and a rare form of psoriasis that’s chronicly infection with cellulitis!

I’m suffering terribly for years never understood what this skin condition is - a diagnosis of a rare trope of psoriasis and cellulitis has required almost constant monitoring and antibiotics.

I’m relived that light therapy has helped me somewhat but this is a very chronic dieease resulting from just 3 days of radiation!

Ladies with skin conditions like eczema or psoriasis beware . I had stage 4 and had been misdiagnosed at the time of radiation subsequently

I’ve had a brain tumor that was there at time of rads so it wouldn’t have affected outcome it’s too long a story here but I had surgery for that abs steriotactuc rads which worked out perfectly for me I’m Happy thst im


Still here some 10 years later . I use alternative therapy - diet essential oils and reiki which has all helped me be cancer free .

My opinion is that if you’re cancer free after chemo . I think you should think twice what you’re up against with radiation ! Very harmful and very ineffective for me ! 😐

I wish alt the best

Marcia

Marcia M Hormonal Therapy 5/19/2010 Arimidex (anastrozole) Dx 10/26/2010, IDC, 4cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR- Dx 10/27/2010, IDC, 5cm, Stage IV, Grade 3, ER+/PR-, HER2- Surgery 11/3/2010 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 1/2/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 5/14/2011 Breast, Lymph nodes

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