Topic: May 2012 radiation

Forum: Radiation Therapy - Before, During, and After — What to expect from treatment and ways to cope with side effects.

Posted on: Apr 30, 2012 04:39PM - edited Jul 31, 2012 09:51AM by mckenna

Posted on: Apr 30, 2012 04:39PM - edited Jul 31, 2012 09:51AM by mckenna

mckenna wrote:

anyone else starting radiation in may?

END OF RAD DATES:

SILVIAZARA: 6/7 Cool

JAN24: 6/12 Cool

JITTERSMOM: 6/12 Cool

BEACHBUM22: 6/14 Cool

MCKENNA: 6/18 Cool

ETHEIZE: 6/18 Cool

ANNIEM353: 6/22 Cool

BLINTHEDESERT: 6/25 Cool

ELAINE2TERVS: 6/25 Cool 

MOPSY: 6/26 Cool

JOANNE2012: 6/27 Cool

PATTY: 6/28 Cool

DIZZY: 6/29 Cool

SPOKANELLIE: 6/29 Cool

GOODIE: 7/2 Cool

RACHEL: 7/2 Cool

STLMOM: 7/9 Cool

AEM47: 7/12 Cool

SELIZABETH: 7/17 Cool

JNBG88: 7/11 Cool

NEENERS: 7/17 Cool

SUSANNAH 7/28 Cool

Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool  Cool 

Dx 3/23/2012, DCIS, 1cm, Stage 0, Grade 1, ER+/PR+
Log in to post a reply

Page 18 of 147 (1,463 results)

Log in to post a reply

May 16, 2012 04:48PM mckenna wrote:

welcome zwoman.  have you had your simulation yet?  how many treatments do you have to have?

Dx 3/23/2012, DCIS, 1cm, Stage 0, Grade 1, ER+/PR+
Log in to post a reply

May 16, 2012 07:16PM Dizzy215 wrote:

Well so far, so good, although 2hrs after my first treatment yesterday. my breast was so tender. Not so much the skin, more in the tissues , a bit like a pre-menstrual tenderness, only 10 x worse!  Mentioned it to my techs today but they said they had never heard of that happening after the first treatment.  It seemed to get better overnight and I managed to do boot camp wearing my extra sturdy sports bra, but again after today's treatment It feels tender again. Maybe i'm due to have a period & the radiation is just exacerbating the tenderness.....the other boob is a little sore too.

A tiny bit pink but no skin soreness and no fatigue but then again, I'm only 2 days in!

I definitely felt very emotional yesterday. I haven't needed chemo, so can't say which was worse, but I'm ok today and my session only lasted 10 mins.  Oh and by the way, I got the tattoos on the sides but they agreed just to mark me in the middle, so i was pleased about that. Going to book myself a massage for Friday!!

    

Dx 3/5/2012, IDC, 4cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 4/9/2012 Lumpectomy: Right Radiation Therapy 5/15/2012
Log in to post a reply

May 16, 2012 10:07PM mckenna wrote:

My boob feels the same but I am about to start and I still have this adema so think that is also contributing to the sore breast feeling. I would love a massage. Good for you. I am going to Chicago for a mom's weekend in August and I plan on treating myself to a massage.

Dx 3/23/2012, DCIS, 1cm, Stage 0, Grade 1, ER+/PR+
Log in to post a reply

May 17, 2012 01:03AM Spokanellie wrote:

BLinthedesert - The nurse said to put the emu oil on at bedtime. She also said it goes a long way (really oily), so I pour about 1/4 tsp on my palm, spread it around between my two hands and then smooth it all over the affected breast, from the cleavage to a midline under my arm and from my nipple up to my collarbone.

Lotions and potions - I've been lurking on the April/May Rads thread to see what we're in for, and I learned about MiaDerm there. Highly recommended, but expensive. (4 oz about $28) The women there were ordering it directly from the company, but I found it on Amazon and I get free 2-day shipping. It arrived today, so I took it with me to my treatment for approval and the nurse said, "Absolutely! It's the very best, but we don't give it to our patients because no local pharmacies carry it." The other thread warned we'd need 4 tubes, applying it 3-4 times a day, but I only ordered one until I could get that approval. Might just order another now to have one at home and one at work.

Anyway, the nurse suggested the best plan would be to layer the MiaDerm against my skin with the Aloe Vera on top of that 3 times a day. And at night put on the MiaDerm first again and then the Emu Oil. She said just keep layering all day long and then wash it off in the morning before treatment (10:10am most days). Then when I get to work, I'll start all over again. I also got confirmation that I should start all this NOW, preventatively, and not wait until I see pink or feel tenderness.

Joanne - are you our first graduate??

mckenna - I'm trying to work up to 64 oz water a day (from my usual 32). I'm not there yet, but I can't imagine getting 3 quarts! You MUST be floating!! Are you young enough you're not getting up during the night? I find even the water with my evening meds and toothbrushing get me up at 2:00 am Undecided

beachbum22, silviazara, Zwoman - welcome aboard!

I have a funny story about my compression sleeve (lymphedema), but I'll save it for another post. Laughing

It's just a speedbump, right? Dx 2/22/2012, ILC, 1cm, Stage IIA, Grade 2, 1/24 nodes, ER+/PR+, HER2- Surgery 3/28/2012 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Radiation Therapy 5/15/2012 Breast Hormonal Therapy 6/1/2012 Femara (letrozole)
Log in to post a reply

May 17, 2012 02:46AM KaSA wrote:

Hi all. I start radiation on Monday after 8 cycles of chemo. Not sure what to expect but I hope it will be an easier road.

Dx 9/30/2011, DCIS, 1cm, Stage IIIA, Grade 3, 5/13 nodes, ER-/PR-, HER2- Surgery 10/12/2011 Lymph node removal: Left; Mastectomy: Left Chemotherapy 11/23/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

May 17, 2012 08:33AM schatzi14 wrote:

KaSA...my experience with rads was a non-event...was just a normal pre-BC  day...maybe I was just one of the lucky ones but the other gals waiting for their appts were the same. Most had their session and went off to work. For me, compared to chemo, it was a breeze. I wish you the same.

Dx 7/25/2011, IDC, 2cm, Stage II, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 8/18/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Hormonal Therapy 3/1/2012 Arimidex (anastrozole)
Log in to post a reply

May 17, 2012 08:35AM schatzi14 wrote:

Spokanellie...love to hear about your experience with the compression sleeve...it's been disheartening for me...am giving up!

Dx 7/25/2011, IDC, 2cm, Stage II, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 8/18/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Hormonal Therapy 3/1/2012 Arimidex (anastrozole)
Log in to post a reply

May 17, 2012 09:33AM Joanne_53 wrote:

Spokenellie -- I am really an April/May rad girl but check in here to see how you are all doing !!!

When the nurse said about the emu oil -- ask about putting it from the nipple down -- my biggest reaction is just under my breast -- I put my cream all over my breast and underarm but didn't think of at the crease of my breast and body.  I do have some skin breakdown there.  I thought I was being careful.

Joanne - Onco DX score 12 Dx 12/8/2011, IDC, 3cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 1/11/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy 4/9/2012 Radiation Therapy 4/10/2012
Log in to post a reply

May 17, 2012 10:01AM - edited May 17, 2012 10:02AM by mckenna

i am not getting up at night to pee :)  i am 38. 

my ro said the biggest place for break down was under the arm and under the breast, so i make sure i apply a lot of corn startch there and at night put my two creams on but pay special attention to those two places. 

i asked about tatos today so hopefully they can do them tomorrow.

welcom schatz

one more day then a 2 day break :)

Dx 3/23/2012, DCIS, 1cm, Stage 0, Grade 1, ER+/PR+
Log in to post a reply

May 17, 2012 10:51AM Mopsy wrote:

Well I don't want to be a crybaby about this, but I am dismayed that it hurt from the get-go.  I don't think it is psychosomatic because I really believed it would take 3 weeks to start hurting.  I can actually feel burning on 3 of the 4 sites that are radiated, as it is happening!  I go out to the car curved over to the right side.  I had an animal-like urge to get off the table on only the third day.  How in the world will I stay on the table by day 15? (right side mastectomy 2 1/2 months ago)  It is mind over matter, I know.  I am beginning to feel like crying on the table too.  Luckily the technicians are very nice, and I have no issues with the facility.

And I will never ever get a real tattoo.  The radiation tattoos (3) are so very small, smaller than a freckle.  But the one on the breastbone, where there is no flesh, made me jump about 2 feet.  I can't imagine getting a real tattoo and experiencing that hundreds of times, unless they use novacaine.  Forget that idea!

Regarding creams from the pharmacy: anyone getting lidocaine mixed into the cream?  My grandmother (age 96) uses lidocaine patches for her hip pain.  Seems like it would help.

Any suggestions for a deodorant?  Luckily only one arm. Cornstarch doesn't seem to do all that much.  I found good bras, smaller versions of jog bras, but I still would rather wear a bra only on one side, if there is such a thing.  I may try cutting all of the fabric off the cup on one side and see if the band around is sufficient.

Barely There Women's Customflex Fit Bandini

Oncotype Dx 11; no chemo; no reconstruction; multi-focal; post-menopausal Dx 12/21/2011, ILC, 3cm, Stage IIB, Grade 1, 4/19 nodes, ER+/PR+, HER2- Surgery 2/28/2012 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/14/2012 Breast, Lymph nodes Hormonal Therapy 7/12/2012

Page 18 of 147 (1,463 results)

Scroll to top button