Log in to post a reply
Apr 22, 2017 12:14AM
Apr 22, 2017 01:18PM
I know I started this topic, then fell off the planet. Thanks again for checking on me, Bravepoint.
My mapping session was a total disaster. First, they were running an hour late. I'd been very reluctant to do a 2:30 p.m. appointment on the Friday before leaving for vacation the next morning, but the nurse wanted to be able to get the processing started while I was gone. Next, the radiation oncologist was called to another facility for an emergency. She knew I would have problems and had planned to be there. I want prone position to protect my heart and lungs (left-sided tumor). Unfortunately, my encapsulated shoulder has different ideas with my limited range of motion further decreased by lymphedema. The tech spent 10-15 minutes reaching the doctor for input on positioning. When the prone thing wasn't working, a second tech was brought in. She tried to set me up on my side with my legs going right, upper torso pointing left with bad arm up as high as possible & head to the right... something about an oblique angle being more protective. I'd been on the table for 45 minutes when they finally moved me into the CT machine. I'd had scans on my back in September & November without sedation so thought I'd be alright, but the edge of the machine being right in my face gave me a major panic attack. I told them, "Get me out NOW!" and started ripping markers & wires off barely waiting for the table to be lowered before I jumped off. I practically ran out of the building at 4:40 p.m.
My fears about the late appointment and traffic were well justified as it took an hour and 40 minutes to get home. All the twisting flared my herniated disc up big time making packing tons of fun. Still, it was great to see my family for the first time in over 3 years!
I am reluctantly going to try again this coming week, but had to arrange a ride so I can be sedated. How long did you have to actually be in the machine for the mapping?
Yesterday marked 11 months since my diagnosis and I have had one delay and complication after another. Wasn't radiation supposed to be the easy part compared to chemo?
Lyn, With Apologies for the L-O-N-G Post
5/20/2016, IDC, Left, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH)
7/14/2016 Lumpectomy: Left
7/18/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes
7/25/2016 Lumpectomy: Left
10/9/2016 AC + T (Taxol)
9/4/2017 Whole-breast: Breast