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All TopicsForum: Radiation Therapy - Before, During and After → Topic: MARCH 2018 starting RADIATION

Topic: MARCH 2018 starting RADIATION

Forum: Radiation Therapy - Before, During and After — What to expect from treatment and ways to cope with side effects.

Posted on: Feb 26, 2018 06:59PM

Veeder14 wrote:

I hope it's not too early to start this. I'm back from my consult with the Radiation Oncologist today. I have the simulation this Thursday, and will be doing face down treatments. I'm glad about face down since it will take my heart and almost all of my lungs out of the beam. I do have major spine and neck problems of which laying prone is the absolutely worst position for me. The doctor agreed to give me Toradol injections so my back can hopefully make it through this. I think the simulation app't will the longest amount of time I'll be prone.

I'll be scheduled for 16 treatments and 5 boosts, starting either March 7th or 12th. The schedule will be finalized this Thursday. I tried to talk the doctor into doing the boosts during the last week of regular treatments, since I live about 2 hours away from the hospital, but he won't agree to that. I go to a major teaching university hospital since I don't believe our small town hospital is competent. So now I'm working on temporary housing for the 4 weeks and I day time probably at a local hotel. Not the best option but at least I'll be able to walk over to the cancer center. Wish I didn't have to do this at all, UGH.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 10, 2018 06:40AM FelineMum wrote:

Hi metoo2018,

I haven't started yet either. I'm scheduled for 25 treatments - could there be a middle ground for you and your RO between 33 and 20? I'm also Grade 3 with vascular involvement.

FWIW, my only thought is that even if you didn't have lymph nodes removed, rads does raise the risk of lymphedema. While I don't have lymphedema, my nurses say I need to get a sleeve just in case and that it's risky to fly without one on.

It sounds like you're thinking ahead and being realistic. I hope you and your husband have a wonderful, well-deserved vacation whenever it may be.

Dx 2/2017, IDC, Left, 6cm+, Stage IIIB, Grade 3, 1/3 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 3/3/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 7/27/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 8/27/2017 Xeloda (capecitabine)
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Mar 10, 2018 08:07AM DoubleBlooming wrote:

I started my treatment on Monday and only had four since I took Friday off to go visit my son at college. ( A heartwarming break!). So far I have slight redness on my skin and a feeling of fullness with a slight ache that comes and goes in the breast. That sensation is similar to breast discomfort right before starting a period. If anything I had stinging in the armpit area and I'm now sure to apply my calendula creme right over my Tom's deodorant there as well. I am no more fatigued than usual and have been trying to walk a mile or two every day to build energy and release some endorphins! I'm also following the doctor's orders to stay very hydrated and consume a lot of protein. I feel very fortunate as my hospital's Cancer center gave me a radiant wrap. They were either sewn or donated by a local group of women. They also regularly leave knitted caps on the tables in the waiting area for anyone to take.

My treatments are easy though there is a lot of breath holding. On the third day, the radiation machine broke halfway through my treatment. Despite rebooting and calling the company reps it could not be fixed until four hours later. Luckily I was able to go back and still had my treatment that day. That techs told me that the machine remembers where it stopped off so it could pick up again without giving me any undue exposure.

MeToo: My RO warned me of fatigue but says it's not as bad as the fatigue that comes with chemo. She said it would probably come toward the end of the week and make me want to take a nap in the afternoon. She said the fatigue could last up to two months after treatment ends. Your diagnosis and treatment aren't listed as public so I don't know if you had chemo side effects to compare this to. I'm sure it's a hard call on taking your trip. Is there anyway that Dr can expedite your plan so you can start treatment sooner? I have heard of that happening. Will your trip allow you to stop and take breaks or are you committed to a firm schedule?

Lelesmom: good luck as you start!

I am so grateful for each of you ladies and am thankful for the perspectives I gain from your posts.


Dx 5/11/2017, IDC, Left, 3cm, Stage IIIA, Grade 3, 0/7 nodes, ER-/PR-, HER2- Chemotherapy 6/2/2017 AC + T (Taxol) Surgery 11/28/2017 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/5/2017 Surgery 1/2/2018 Radiation Therapy 3/5/2018 Whole-breast: Breast, Lymph nodes
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Mar 10, 2018 09:49AM Princess0303 wrote:

I have decided to join the March Radiation Group for support and advice . I should be starting 5 weeks of radiation close to the end of March. My consultation is Tuesday of this week coming. Glad the process is finally getting started. Good luck on your treatments everyone!

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Mar 10, 2018 12:42PM Veeder14 wrote:

Hi Princess0303,

Welcome to the March group. Let us know how your consult goes on Tuesday.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 10, 2018 08:44PM Tkane10 wrote:

I just had 12/33 Friday. I am so hot, like really hot. My heat is on 60 and I still feel it’s to hot in my house. I don’t have a fever, it started pretty early on with radiation And just continues to get worse. Has anyone else experienced this

Dx 12/26/2017, ILC, Left, 2cm, Stage IIA, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Surgery 1/8/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 1/22/2018 Radiation Therapy 2/21/2018
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Mar 10, 2018 09:58PM Veeder14 wrote:

Tkane10,

Do you mean just your breast is hot or you feel like you have a fever and don't?

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 11, 2018 09:12AM Tkane10 wrote:

Veeder14, I feel hot not just my breast. It’s 30 degrees out and my heat is on 60 and that is more than enough. At times even that is uncomfortable for me.

Dx 12/26/2017, ILC, Left, 2cm, Stage IIA, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Surgery 1/8/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 1/22/2018 Radiation Therapy 2/21/2018
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Mar 11, 2018 11:13AM metoo2018 wrote:

Thanks FelineMum - I was thinking about the sleeve as a precaution flying. I've read on some of the other forums that people didn't have an issue with lymphodema until flying. I certainly wouldn't want to find out once I get there that I have a problem.

You have already been through so much more than I will so I hope your treatments go smoothly. Seems like we may be on a similar schedule for those. I do hope there is some middle ground - seems like it is a standard dose regardless of how many treatments from what I read - seems like you could just divide by any number between 20 and 35 and come up with a plan. I know that is over simplifying it. And of course, whatever I need to do I will do.


DoubleBloom- hope you have a great weekend with your son and another good week of treatment next week. You are slightly ahead of me so I'll be interested in hearing if and when the fatigue shows up. I have no doubt that if we are able to travel we will likely need to take it a little slower than we may have thought.....

Good luck to everyone as their treatment progresses!

Dx 11/13/2017, IDC, Right, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- (FISH) Surgery 2/7/2018 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 3/16/2018 Femara (letrozole) Radiation Therapy 3/27/2018
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Mar 11, 2018 01:21PM Paco wrote:

metoo2018

I feel the same as you. I had DCIS grade 2 and am facing 20 radiation treatments, 15 whole breast plus 5 boosts. It does seem very standard and I wonder how they "personalize" it to my specific diagnosis. Maybe the actual dose?

I have a trip planned in late June to Italy but I wasn't even considering lymphedema. Maybe it's time to consider getting a sleeve?

Dx @ 48 Dx 12/28/2017, DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 2/13/2018 Lumpectomy: Right Radiation Therapy 3/27/2018 Whole-breast: Breast Hormonal Therapy 4/25/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 11, 2018 01:26PM Veeder14 wrote:

Hi Tkane10,

Have you reported this to your doctor yet? I hope you don't have the flu. I felt hot when I left my app'ts (only 2 so far) but figured it was because I was wearing sweat pants and insulated socks (the treatment area is freezing) and it was sunny and in the 60's. I always wear shorts all winter long so changed into shorts and my temperature got back to normal. Let us know what your doctor says.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 11, 2018 01:42PM Veeder14 wrote:

I spoke with the Radiation Oncologist and he will be referring me to whatever dept. to get measured for a sleeve, after all the treatments are finished. I have a trip planned in June and I'd sure rather wear a sleeve than have lymphadema. I'm going to ask if I can get the referral soon because my arm is already a little puffy. I've been going to OT and she has techniques that get rid of the fluid.

About the dose, I think my doctor mentioned that the shorter treatment (16 days, plus 5 boosts) means a higher dose each treatment, but is still lower than the 33 treatments regimen. It seems like the doctors choose between several standard doses/treatment schedules. I have no idea why I have 16 instead of 15 but I'll ask this week. But I do know that the doctor mentioned starting treatments M-Th was ok, but not on a Friday because he wanted to get at least 2 treatments in before the weekend. I guess it has to do with the amount of radiation building up in your system.

Tomorrow starts my third treatment and the day we check into the hotel, the commuting last week was too exhausting. Living in a hotel for a month, ugh but home on the weekends. From the hotel it's a 5 minute walk to the cancer center. I hope everyone has a successful week.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 12, 2018 09:36AM Paco wrote:

Morning, ladies,

I had my simulation this morning, CT scan and tattoos done. The process was pretty easy. I have good mobility in my shoulders which is good because if not, it would have been somewhat uncomfortable. The techs were very warm and friendly. All in all, pretty smooth.

I am scheduled for a dry run on March 27 and will begin treatment on March 28. It will be a full 6 weeks post lumpectomy but the oncologist seemed perfectly okay with that, so I'm happy. I have the first appointment in the morning at 8 am. Looking forward to getting in, out and done.


Dx @ 48 Dx 12/28/2017, DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 2/13/2018 Lumpectomy: Right Radiation Therapy 3/27/2018 Whole-breast: Breast Hormonal Therapy 4/25/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 12, 2018 11:38AM KathyM7 wrote:

Hi all

I had my first treatment this morning. I'm on a 16 and 4 plan. I was a little nervous but all went well. Worst part was getting my injured shoulder (rotator cuff) into position, but they let me take my time and ease it back. Great people. Does anyone have any mental images they use while on the table or any mental pep-talks/mantras?


Kathy

Dx 11/2017, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Lumpectomy: Left Hormonal Therapy 1/30/2018 Femara (letrozole) Radiation Therapy 3/12/2018 Breast
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Mar 12, 2018 03:25PM kaywrite wrote:

FINALLY - SOME CLARITY. Genetics testing was negative for BRCA 2 and 8 other potential mutations. The path is clear(er) now: radiation therapy it is. I have my simulation on Friday morning. There is no part of this I am looking forward to, but I am relieved to know what the next step is.

Paco - good for you! I should be right behind you. Are you going to work while undergoing radiation? (assuming you work)


Dx 12/20/2017, DCIS, Left, <1cm, Stage 0, Grade 1, ER+/PR+ Dx 1/22/2018, DCIS, Left, 1cm, Stage 0, Grade 1, ER+/PR+ Surgery 1/22/2018 Lumpectomy: Left Surgery 2/4/2018 Lumpectomy Radiation Therapy 3/21/2018 Whole-breast: Breast Hormonal Therapy 4/21/2018 Arimidex (anastrozole)
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Mar 12, 2018 04:20PM Veeder14 wrote:

Hi KathyM7,

Glad your first day went well and the staff gave you time to adjust your shoulder. I just picture my favorite beach and pretend I'm there. Just trying to ignore the pain it's causing my back/neck.


Hi Paco,

Glad your simulation went well. You might want to ask the doctor to show you the CT scans. I was shown mine this morning both for the regular treatment and the boosts~front view and side view. It shows the breast with different colored lines indicating the treatment areas. My doctor even printed copies for me.


Hi kaywrite,

Glad to hear your BRAC2 negative and also negative for other mutations. I'm positive and it's quite a pain and makes me high risk for both breast cancer and melanoma~both of which I have/had. Good luck with your simulation on Friday.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 13, 2018 07:07AM Paco wrote:

Veeder., I will ask for the scans. I didn't think they had any relevance but you're right, why not ask? If I paid for them, even indirectly through my insurance company, I should request a copy.

Kay: I agree: I'm not okay with any of this either. I flat out told my RO and the radiation PA that I was a less than willing volunteer in this treatment and the PA said, no worries, you can opt out at any time. Tear up the contract. And that somehow made me feel more in control.

Dx @ 48 Dx 12/28/2017, DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 2/13/2018 Lumpectomy: Right Radiation Therapy 3/27/2018 Whole-breast: Breast Hormonal Therapy 4/25/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 13, 2018 09:42AM kaywrite wrote:

Veeder - re positive gene mutation: are you going to watch and wait? I have a first cousin who tested positive late last year and has since had a bi-lateral mastectomy and her ovaries removed. Neither of us had brothers or sisters, or surviving parents or aunts to talk to about family histories or genetic mutations, so it made sense to get tested. I admit I am relieved to be negative, although I don't think I will ever be sure which is best in my situation: mastectomy vs radiation/hormone therapy. I knew it increased the risk of prostate cancer for men, but did not know about the increased melanoma risk.

Paco - I reviewed my Consent for Radiotherapy this morning and noticed for the first time that I could opt out at any time - which I agree is comforting - and that I'd be getting a CT scan ( I wondered why you and Veeder were talking about scans...). Reading through the list of potential side effects is chilling. Still, I know so many people who have gone through this without ill effects. Maternal and paternal aunts have had DCIS - radiation was not kind to one of them, but it was a 20 years or more ago, and the RO assures me things have changed. :)

Honestly, until I was diagnosed I never knew DCIS existed, or that there were so many variations of breast cancer. How quickly we become schooled. Since my diagnosis I have two friends in Atlanta who have been diagnosed with DCIS, and know three more who have had it - some foregoing radiation, some nixing hormone therapy, some doing exactly was the doctors ordered. It's crazy, how prevalent this disease is. I suppose until you have it, or have gone through it with someone, you just have no idea how many decisions have to be made, how impossible it seems to make the right one, or how grateful you can feel that things are not worse. I was trying to come up with the right analogy for how I felt yesterday when the geneticist called with my results. It was something like exchanging a pogo stick for a unicycle - i.e. a little easier.


Dx 12/20/2017, DCIS, Left, <1cm, Stage 0, Grade 1, ER+/PR+ Dx 1/22/2018, DCIS, Left, 1cm, Stage 0, Grade 1, ER+/PR+ Surgery 1/22/2018 Lumpectomy: Left Surgery 2/4/2018 Lumpectomy Radiation Therapy 3/21/2018 Whole-breast: Breast Hormonal Therapy 4/21/2018 Arimidex (anastrozole)
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Mar 13, 2018 11:36AM Veeder14 wrote:

kaywrite,

I decided to do enhanced monitoring~Breast MRI's 2x/year, and I'm being tested for cancer marker for ovarian cancer and having transvag ultrasounds 2x/year, and skin checks for melanoma several times a year plus now I know if I get something like I had on my skin to go in immediately an be seen. By the time I got the BRAC2 test back and it was positive, I already had both cancers. So even if I had opted for a mastectomy the cancer would have been found prior to surgery. So I'm not just waiting around but in a sense, yes, I don't want to have preventative surgery if I can get away with out it. Luckily, I have my mom and my aunt to talk with about their experience.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 13, 2018 11:45AM Veeder14 wrote:

Hi Paco,

I feel the same way, less than a willing volunteer in this and have received some reassurance from the Radiation Oncologist that my heart/lungs aren't getting a direct hit. But found out yesterday my collar bone/first 4 ribs are. I've got osteoporosis so that worries me a lot. Yes, a copy of the scans is a picture of the treatment which identifies the areas being treated and the scatter radiation risk.

I must admit having to stay out of town for a month's worth of treatment is a huge inconvenience due to my back/neck problems and my OT and PT being back home. As well as having to stay in a hotel which is not that comfortable. Last week commuted daily but that was exhausting. Last night was the first night in the hotel and as soon as it was night these huge blowers or AC/heat or something in the hallway and on the roof (on a top floor room) started up and ran all night. It was like trying to sleep on a helicopter runway the noise was horrible and the walls vibrated. UGH. Trying to get a different room at least for the next 3 weeks if not for the rest of this week.

Patients can always decline treatment or opt out once started unless there's a court order preventing it. I feel like the doctors were intimidating in a polite way but they obviously haven't gone through the surgeries and treatments. (All male providers, yuck). Nobody wants to sign up for permanent side effects that might present itself.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 13, 2018 01:20PM Marigold8 wrote:

Hello, everyone,

I had my first RO appointment on March 1, CT scan on the 6th, "dry-run" with tattoos on the 8th, and will begin my sessions tomorrow. I'll have a shorter course, 20 sessions, due to a small tumor with negative nodes.

I decided to have radiation because my RO noted my arthritis history. I have spinal stenosis + degenerative disc disease in my lumbar spine, and one of my hips is bone-on-bone. [I would have been having a hip replacement but was diagnosed with BC around the same time that the orthopedic surgeon recommended the replacement. So cancer treatment comes first.] The RO said that, with my history, I may be unable to tolerate anastrozole side effects; I'm noticing greater joint pain after only two weeks. So radiation may prevent BC recurrence if I cannot take aromatase inhibitors.

But I'm very nervous about radiation. I'm a natural redhead and my skin is extremely sensitive. The RO nurse and co. recommended Miaderm creme for skin, sold only in the clinic's pharmacy. And my plan is for whole breast radiation, on the left side, but they say I should have few lung or heart impacts.

Hoping to learn from everyone's experiences here about managing side effects from the radiation.

Dx 12/27/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR+, HER2- (FISH) Surgery 2/8/2018 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 3/1/2018 Arimidex (anastrozole) Radiation Therapy 3/14/2018 Whole-breast: Breast
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Mar 13, 2018 03:09PM Veeder14 wrote:

Hi Marigold8,

Glad you got all your set up app'ts done. Will you be in the prone position for treatments? Today was day 4 for me so and I don't have side effects to my skin yet but I'm using coconut oil for moisturizing although I am considering trying miaderm when I've had more treatments. My doctor said to apply 4x/day from day 1 on. I've got degenerative disc lower back and neck with some arthritis, and a spinal fracture so being face down is causing lots of pain.

Good luck tomorrow and let us know how it goes.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 13, 2018 07:36PM FelineMum wrote:

Marigold8: You can buy Miaderm on Amazon, both regular and with lidocaine versions. There's also a soap.

https://www.amazon.com/Miaderm-Radiation-Relief-4-...=sr_1_2_a_it?ie=UTF8&qid=1520987640&sr=8-2&keywords=miaderm+radiation+relief+cream&dpID=51VdVIAn-oL&preST=_SX300_QL70_&dpSrc=srch


Dx 2/2017, IDC, Left, 6cm+, Stage IIIB, Grade 3, 1/3 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 3/3/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 7/27/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 8/27/2017 Xeloda (capecitabine)
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Mar 13, 2018 07:40PM - edited Mar 13, 2018 07:40PM by pinkninja9560

hello ladies. I want to make sure I'm in the the right place. I just found out I have 4 lesions on my brain and am starting radiation soon. I meet with the ro tomorrow. I looked all over the stage iv pages but couldn't find anything

Be joyful in hope, patient in affliction and faithful to prayer. Romans 12:12 Dx 7/2/2014, IDC, Right, 4cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 7/15/2014 Perjeta (pertuzumab) Chemotherapy 7/15/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/15/2014 Herceptin (trastuzumab) Surgery 12/7/2014 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 5/19/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 8/28/2015 Reconstruction (left): Fat grafting, Silicone implant Surgery 12/17/2015 Reconstruction (left): Fat grafting Surgery 5/6/2016 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Dx 2/11/2017, IDC, Stage IV, metastasized to bone/liver/lungs, ER-/PR-, HER2+ Chemotherapy 2/13/2017 Taxol (paclitaxel) Targeted Therapy 2/14/2017 Herceptin (trastuzumab) Targeted Therapy 2/14/2017 Perjeta (pertuzumab) Dx 3/12/2018, IDC, Stage IV, metastasized to brain, 0/3 nodes, ER-/PR-, HER2+ (FISH)
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Mar 13, 2018 08:08PM Veeder14 wrote:

Hi Pinkninja9560,

Yes, this is the chat for those of us starting or ending Radiation during the month of March. I think mostly everyone posting so far is having breast radiation though however you are of course welcome. Good luck with your RO meeting tomorrow. Let us know how it goes.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 14, 2018 08:00PM Veeder14 wrote:

Hi,

Has anyone been using Miaderm for moisturizing? Just wondering if you thought it worked well.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018
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Mar 15, 2018 09:09AM petey111 wrote:

Hi everyone! Heading in for my set up appointment in a bit, so I might be back later with questions. I was wondering, for those using pure aloe, what brand/form do you use? Gel or liquid, etc.? Thanks!

~Sara~ "Wonders never cease if we never cease to wonder." -Ziggy Dx 8/25/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- Surgery 9/26/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 10/29/2017 AC + T (Taxol) Hormonal Therapy Radiation Therapy
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Mar 15, 2018 09:14AM FelineMum wrote:

Hi Petey111,

I'm going to be using Fruit of the Earth brand gel. It's 98.something% pure. Mine is in a pump bottle which seems convenient. My nurse educator recommended keeping it in the fridge so that it feels cooling. She also recommended that brand. Hope that helps!

Dx 2/2017, IDC, Left, 6cm+, Stage IIIB, Grade 3, 1/3 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 3/3/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 7/27/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 8/27/2017 Xeloda (capecitabine)
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Mar 15, 2018 09:33AM DoubleBlooming wrote:

Veeder, I haven't used Miaderm. I use the Calendula creme and so far so good. I've only had 7/28 treatments. Sorry to hear about all the pain you're having. Is anything helping to alleviate it?

PinkNinja, I just hate to hear about your lesions and impending rads. Wishing you great success with treatment. What are you being told about rads to the brain and its side effects?

Paco. Since you still have a couple of weeks before starting, you may want to apply moisturizer to your breasts to keep the skin healthy and as supple as possible. This was recommended to me by my friend who is a RO. I used Palmers Cocoa Butter oil while my skin was moist right after showering. I believe it helped.

I've had 7/28 treatments and so far so good. My skin is just a tad pink and I can't say I'm fatigued yet. I'm getting boluses every other day. This is just a wet towel placed on my skin. Apparently it drives the radiation closer to the skin. I have the breath holding throughout my treatments and the longest hold is about 30 seconds. Overall my rads routine has been easy and I get excited about the idea of destroying any stray cancer cells!

Dx 5/11/2017, IDC, Left, 3cm, Stage IIIA, Grade 3, 0/7 nodes, ER-/PR-, HER2- Chemotherapy 6/2/2017 AC + T (Taxol) Surgery 11/28/2017 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/5/2017 Surgery 1/2/2018 Radiation Therapy 3/5/2018 Whole-breast: Breast, Lymph nodes
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Mar 15, 2018 11:42AM metoo2018 wrote:

I had my CT scan, ultrasound, and planning session yesterday. About an hour total. Very easy and now we are talking about 20 treatments instead of 33 so I am very pleased about that. I also really liked the technician that will be doing my treatments- my RO is ok, probably very smart but not much on the bedside manner and no sense of humor which is hard for me. But my guess is I will see the tech more anyway.

I have all kinds of markings and plastic stickers for now. The simulation will be March 26th and treatments beginning the 27th .I think on the 26th they will do the final ink/tattoo and then we will be on our way! The skin cream they have in the dressing room is Thera - and it seems nice. The nurse told me to just bring a container and fill it up while I am there as needed so I will definitely be doing that.

Finally a plan and a schedule. I hope things are going well for those of you already in process and I appreciate hearing how everyone is doing and what works and doesn't work to help manage the reactions.

Dx 11/13/2017, IDC, Right, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- (FISH) Surgery 2/7/2018 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 3/16/2018 Femara (letrozole) Radiation Therapy 3/27/2018
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Mar 15, 2018 01:20PM - edited Mar 16, 2018 07:44AM by Paco

metoo2018, you and I are on similar tracks. I have my "dress rehearsal" on March 27 and sessions start on March 28. I will also have 20 sessions. I got my tattoos and markings on Monday but the ink keeps washing off after a day so I try to keep the lines drawn with a Sharpie.

I hear you about the RO. He's a real peach SickTired but the PA is kind of a weird guy too. The techs seem really nice so for scheduling my sessions, I chose the same time as my CT appointment so hopefully i will get those two ladies again.

Dx @ 48 Dx 12/28/2017, DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 2/13/2018 Lumpectomy: Right Radiation Therapy 3/27/2018 Whole-breast: Breast Hormonal Therapy 4/25/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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