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All TopicsForum: Radiation Therapy - Before, During and After → Topic: April 2018- Starting Radiation

Topic: April 2018- Starting Radiation

Forum: Radiation Therapy - Before, During and After — What to expect from treatment and ways to cope with side effects.

Posted on: Mar 26, 2018 04:44AM

LiMa66 wrote:

So, who else is starting radiation in April? I met with my radiation oncologist last week and now I'm sceduled for my simulation on April 3rd. I'm glad to be doing it, or at least I'm telling myself that now. Chemo was not deemed necessary but I felt I should be doing something in addition to the Tamoxifen so it was almost a relief to hear the RO say he agreed, especially with the 2 positive nodes with extranodal extension. I've already picked up the Aquaphor, plan to add some aloe vera or calendula cream also. My RO suggested Miaderm and said he'd give me some samples, but it's a bit pricy so I'm hoping to avoid needing it.

Those of you also starting in April, jump in. Let's give each other some support and encouragement. Best wishes to you all.

I believe I can Dx 10/26/2017, ILC/IDC, Left, 2cm, Stage IIB, Grade 2, 2/6 nodes, ER+/PR+, HER2- (IHC) Surgery 1/31/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/8/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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May 15, 2018 04:01PM Okkate75 wrote:

I'm a few days out from my last treatment--hooray!--but my nipple is still pretty sore and raw. I'm working in my office today, topless, and I'm hoping that helps. L-O-L the indignities! Hang in there everybody!

Dx 11/17/2017, IDC, Left, <1cm, ER+/PR-, HER2- Surgery 12/7/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/5/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/15/2018 Hormonal Therapy
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May 16, 2018 02:43AM TabzIsMyAngel wrote:

Had #15 today - halfway thru! Met with RO today too. Skin is just starting to turn pink & nipple has been a bit itchy the past two evenings. I asked if I could just use OTC hydrocortisone or Benadryl cream (knowing that many here have had success with the hydrocortisone). He said that's fine, but considering that my prescription co-pays are only $1-$2 he said he could give me a prescription for Lidex cream which would not only cost me less, but the itch relief would last longer than an OTC. Energy level is still good, so hoping that continues. Met with my PCP yesterday & she said my echocardiogram results from a couple weeks ago look great. Starting to see the light at the end of the tunnel.

Dx 7/27/2017, DCIS/IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER-/PR-, HER2+ (IHC) Surgery 9/25/2017 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/26/2017 AC + T (Taxol) Targeted Therapy 1/26/2018 Herceptin (trastuzumab)
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May 16, 2018 09:11AM - edited May 16, 2018 04:45PM by Dodgerick

Biopsy in on our daughter, BENIGN! Yay!!!!

I just finished treatment #15 and my skin is pretty angry right now. It's difficult to get comfortable anymore. But as my friend said "this too shall pass". Loading up on the Aloe and moisturizcreams!

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May 16, 2018 03:01PM ctmbsikia wrote:

Yesterday was my last whole breast treatment!  5 to go and they are the boosts.  I read where these are a lower dose?

My employer has just been wonderful and very supportive.  They have not charged me with any time for all these appointments so I took a whole day off last week, taking tomorrow off, and my last 2 are early afternoon times so took 1/2 days for those.  This way if they won't charge me, I'll request off and HR will charge me.

I won't lie, my whole breast, under arm, and upper chest are pretty ugly right now, but I am so glad it is temporary and should start to recover soon.  Aquaphor is the worst, so darn greasy and gets on everything!    I will use in the evenings after I'm home, this morning though I couldn't do it so did Aloe and some cortisone.

Dodgerick, glad you got good news regarding your daughter!

Have a great day everyone!

Dx 12/14/2017, ILC/IDC, Left, 4cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole)
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May 16, 2018 04:54PM Dodgerick wrote:

Yay, ctmbsiki, youare almost finished! And it sounds like your employer has been wonderful, lucky you!

Thanks for thinking about my sweet daughter, you can’t imagine the relief! And as if that wasn’t bad enough....right after that, I had some weird spotting and had to go in for an endometrial biopsy. I was a nervous mess between waiting for my daughter’s biopsy results and a possible second cancer diagnosis for me ( i’m not even finished with the treatment for the first cancer! ). But my biopsy came back with good news too! Yay!

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May 16, 2018 06:40PM rgoossen wrote:

Hip Hip Horray, had my last radiation treatment this morning. Made vacation plans for a week in a cabin in the woods watching nature and celebrating life. Praying for those who are involved in active treatment, may you all be comforted in your time of need.

Dx 12/19/2017, DCIS/IDC, Right, 1cm, Stage IIIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- (IHC) Surgery 1/25/2018 Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary Radiation Therapy 4/2/2018 Whole-breast: Breast, Lymph nodes
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May 17, 2018 12:36AM HopefulAC wrote:

ctmbsikia - you’re almost done how exciting! Im just a little behind you and can’t wait!

Rgoosen- congratulations on finishing. Your vacation sounds so great. After I’m done with mine I’m going to go Yellowstone and Glacier National Park and so excited:)

Dodgerick— so so happy to hear about daughter and good news on your biopsy too! Must be such a relief for you.

Today I’m officially on single digits and only have 9 more to go:))) cannot wait

Dx 8/30/2017, IDC, Left, Stage IB, ER-/PR-, HER2+ Targeted Therapy 9/27/2017 Herceptin (trastuzumab) Targeted Therapy 9/27/2017 Perjeta (pertuzumab) Chemotherapy 9/27/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 2/8/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right
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May 17, 2018 01:18AM mmb7 wrote:

Okkate,,, I am also CHEK2 positive but the geneticist played it down. She said that at this time in science it is just a gray area meaning it is nothing alarming. What were you told?

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May 17, 2018 03:37AM Okkate75 wrote:

@mmb7 Same thing. They just don't know much. My sister's doc played it up, dazzled by the twin thing, I think.

I'm a week out tomorrow and doing well, btw! Still some poison in my nipple, but overall good. I'm off to Maine for my cancer vacation tomorrow! Woot! Hang in there, everyone!

Dx 11/17/2017, IDC, Left, <1cm, ER+/PR-, HER2- Surgery 12/7/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/5/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/15/2018 Hormonal Therapy
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May 17, 2018 03:40AM AgathaNYC wrote:

Hello, April Rads Ladies! I've been taking some time off the boards, but wanted to check in now that I'm done with rads. YAY!!! Congrats to everyone who is done, too. And of course good luck for everyone still putting in the time.

Okkate75 - I'm sorry to hear about your twin's diagnosis. I'm sure she'll be grateful she has a sister who has walked this path before her. Best of luck for her treatment.

Dodgerick - I'm so glad to hear your daughter is OK. We also had a scare in my family with my 30 year old, newlywed niece. Luckily the masses were benign but they want to remove them anyway since they were so irregular.

Yesterday I finished my last treatment. I didn't ring the bell in the waiting room, but I did put a cute "Minion" sticker on the machine I spent most of my time on. I think I mentioned that it is the one often used by the pediatric oncology dept so the part of it that is close to your face is covered in fun stickers. It made it less scary for me; I hope it does for the kids as well! (When my hair first started sprouting I would kid with the radiation techs that I looked like a Minion with my glasses and 14 proud hairs.)

Whenever I saw little kids in the waiting area of the radiation dept. it really gave me a reality check. Last night as I was leaving I met the most beautiful 101 year old woman just going for her treatment. Both ends of the spectrum got me emotional thinking about the challenges treatment throws at the very young and very old. Wow, this disease really doesn't discriminate, does it.

My skin has held up pretty well, although I was warned it could continue to be increasingly effected for a few more weeks. Right now I just have a little patch in my breast crease that is pretty angry, and my nipple was visual changes but isn't painful. I have an Rx steroid cream that I added to my moisturizing rotation; I'm hoping that keeps everything under control.

I occasionally get these twinges of pain inside my breast. They only last a second or two. My RO said they are probably physical reactions of surgical site to the swelling that's happening due to rads. Anyone else get those?

I'm starting physical therapy next week for the Mondor's Cords that developed under my lumpectomies breast. They are no where near as painful as they had been and so much better now that I'm not crushing them on that darn prone-treatment table every day.

Have to say that I had a pretty tough weekend before these last two rads. Had a very emotional reaction to finishing up treatment. All my logic told me I should be elated, that I got the best result I could have hoped for, etc., but instead I felt like I was in free fall. I'm going to look into the resources that the hospital has for survivors going through similar emotions. This anxiety has really taken me by surprise.

I hope everyone one continues to heal and that soon no one in the April group will have any swollen breasts, discolored nipples, crazy-making itching, super-twinges, or red, angry skin.

Here's to us all!


... grateful for my pCR Dx 9/11/2017, ILC/IDC, Right, 6cm+, Stage IIIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 10/6/2017 AC + T (Taxol) Surgery 3/5/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 4/18/2018 Whole-breast: Breast
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May 17, 2018 03:47AM LiMa66 wrote:

Congrats to those who recently finished and hang in there to those almost done.

I've got 2 more boosts and then I'm done. My skin continues to be a hot mess but thankfully I work from home. I've been running around here topless for a week now. Fatigue is real. I do ok until about 9:00 and then I'm done. What a party animal.

All in all, this whole radiation adventure has been pretty much what I expected. Glad I did it and ready to ring that bell and then settle in to a new normal.


I believe I can Dx 10/26/2017, ILC/IDC, Left, 2cm, Stage IIB, Grade 2, 2/6 nodes, ER+/PR+, HER2- (IHC) Surgery 1/31/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/8/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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May 17, 2018 05:30PM Dodgerick wrote:

Rgoosen, ctmbsikia, and AgathaNYC....yay! All done, good for you! Healing time now! Happy for you all that radiation is over!

Okkate, hope all goes well with you and your sister!

Hopeful and AgathNYC, thank you for your kind words, they touched my heart. Seems like I just get really emotional about everything right now...is high emotion part of radiation?

LiMa66, just one more boost after today! Yay, you're almost there!

Thank you everyone here online for a place to connect with others that know what we are all going through and being able to share.

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May 21, 2018 03:15PM ctmbsikia wrote:

Morning everyone!  I have my last 2 boosts today and tomorrow then I'm done.  It was good that I started mid week, over the weekend I could see my skin doing better as my last whole breast treatment was last Tuesday.  It has gone fast.

For me, the Aquaphor worked best although it's a real mess.  Good info here just buying the cotton cami's or tees as they will be going in the trash soon!!

I'm back to the surgeon for 3 month follow up next week already, MO is late June for the hormone therapy.  I just reached out to a friend who is a trainer to help me with some bone strengthening exercises that I will incorporate into my  life.  Will see how it goes, I feel very grateful to have made it thru this chaotic schedule of treatment.  Yea!!!

Dx 12/14/2017, ILC/IDC, Left, 4cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole)
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20 hours ago ctmbsikia wrote:

Apr-11 seems like so long ago, yet it has gone fast.  Today @ 12:45 I'm done.  I'm very excited to get the heck out of there.  I think my husband will be attending today.  We're from mushroom county so he's to bring some fresh mushrooms and I have a card to thank these wonderful people for taking care of me!  It was a hellish start but it will be done and I'm so glad  to put it behind.

Wishing everyone a good day!!

Dx 12/14/2017, ILC/IDC, Left, 4cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole)
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12 hours ago Okkate75 wrote:

Oh, @ctmbsikia, I'm so excited for you! You did it!

Dx 11/17/2017, IDC, Left, <1cm, ER+/PR-, HER2- Surgery 12/7/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/5/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/15/2018 Hormonal Therapy
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12 hours ago AgathaNYC wrote:

ctmbsikis - CONGRATULATIONS on being finished with rads! I remember what a crazy time you had the the center's scheduling team when you were starting out. Mushrooms are the coolest idea. I know they must love all the donuts and cookies they get but they'll never forget mushrooms.

I finished up a week ago today. I had very minor skin effects during treatment but they've picked up over the last week, especially around my 2 scars (sentinel node removal on top and lump removal on bottom.) I think the breast is also more swollen, too. It almost feels like a bruise under my arm. If it gets a lot worse I'll call my MO, but she did warn me that the effects would continue.

To those of you that are done, did you feel more effects after treatment?

Hope everyone is having a good week.

... grateful for my pCR Dx 9/11/2017, ILC/IDC, Right, 6cm+, Stage IIIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 10/6/2017 AC + T (Taxol) Surgery 3/5/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 4/18/2018 Whole-breast: Breast
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10 hours ago Bauer4 wrote:

Today was my last whole breast treatment. I am very thankful, as the itching started last night and hasn't let up. Not sure I could take many more. I have 4 boost treatments left and then DONE!!!!

Congrats to all that have finished and know there is an end in sight for those still on this journey.

Dx 3/6/2018, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 3/29/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/30/2018 Whole-breast: Breast

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