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Nov 8, 2018 07:23PM
Hi Lucyred, MLghtn and others who have had some side effects already - have you tried Miaderm? I'm starting to use Miaderm from a 'preventative' standpoint. I researched reviews on Amazon and attached some of them that were super helpful (see pic below). Hopefully it can help you out! At least you live 5 minutes away from radiation, I'm 40 min to an hour depending on traffic!
CarolAnnie - Thank you SO much for sharing about your Grandmother! It's exactly the kind of needed inspiration to help us get through this with a feeling that we can be OK too. I've had the random stabbing pains since surgery... an oncology masseuse told me it was nerves firing because they got 'messed with' during surgery and radiation so they are protesting. Same for me, it's occasional and fleeting.
AppyFan - You're welcome on the tips, and thank YOU for starting this thread! So far, on the aloe vera gels, I found an organic one called NaturSense that is NOT STICKY. I attached a pic of it below too. I also have the Fruit of the Earth one, which is fine, but very sticky. So I kind of prefer the organic NaturSense (which is only $13 on Amazon).
urdrago71 - re: other recommendations, I read somewhere to stay hydrated. So I've been drinking water on my way to and just before radiation. I've also been doing a workout some mornings (not all, just some!) to try and avoid fatigue. I'll be done with my second week tomorrow and so far so good.
DWiseley, Julesm59, kdrake1007, britspeech and all the ladies who haven't started yet and are worried about radiation - FYI I'm into week 2 and I'm FINE. No redness, no fatigue, no itching yet... and I noticed a lady on another board had posted that she had no side effects with radiation, so it's possible. I did ask the doctors and nurses there when I was in treatment how often they see side effects and they said it's not too common until about halfway through. My other friend was fine through most of her 25 sessions but then did have some burning in the last week, but nothing unmanageable. Based on the reviews I found, I'm starting to use Miaderm to try and prevent any side effects, we'll see how it goes. Anyways, just wanted you to feel re-assured that this treatment is not so bad, it can even be kind of relaxing to lay still for a few minutes and relax.
The only thing I'm noticing in my second week, which I did not notice in my first, is that I can SEE the blue veins in my right breast. Is that normal? Is that because of radiation? Or am I just noticing them now and overthinking it? Anyways it was when I started to see the veins that I decided to start using Miaderm even though I'm not feeling any differences in my skin yet. Have others noticed this?
Anyways, see attached pics on the Amazon reviews of Miaderm relevant to bc, and the non-sticky organic aloe vera gel I found! Hope this helps and wishing everyone a smooth ride on this unexpected path we're all on.
9/7/2018, IDC, Right, 1cm, Stage IIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- (FISH)
9/19/2018 Lumpectomy: Right; Lymph node removal: Sentinel
10/29/2018 Whole-breast: Breast, Lymph nodes
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)