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Dec 19, 2018 08:28PM
Dec 19, 2018 08:31PM
How is everyone doing today? Anyone finish up this afternoon? Who finishes this week?
CONGRATS GHOSTIE!!!!! Whooooohoooo so happy for you! Bet you are excited to not have to in tomorrow! :) (and by the way, yes 5 cats = a herd! So made me laugh!)
Good luck tomorrow on your last treatment Egregious! You're almost there! :)
Sorry if I'm missing a post or three, trying to sneak in here and type fast (thanks to a job long ago I type about 100 words/min!) Been a crazy day and am exhausted.
Dani - Glad I could pass along a laugh. :) Here's where the "boob lasagna" comes from. I was able to check that off of my Bucket List, cuz we all know, it's high up there on everyones! <rolls eyes> https://community.breastcancer.org/forum/70/topics... (Oct 22 post) And yeah, I had tightness starting from the first week, despite having seen Cancer Rehab PRIOR to starting and them giving me stretches and such to do prior and during RADs. I can't imagine how bad things would have been if I hadn't have had that already going. Glad your itching has subsided a bit, or at least down to a low roar, as my dad would say.
Just an FYI to everyone - met with my PT again today. She said now that I'm at the 6-8 week mark out from RADs, this is when "most" people start to begin feeling a tightening of their pecs and affected muscle groups. I'm just a zebra so I started on the trail early. LOL. But she did point out that even if a person had little to NO SE's during their RADs that they still could have tightness and cording show up out of nowhere. Soooo moral of the story is, if around that time, you start feeling tightening/cording contact your RO asap so you can get to PT, if you're not already in PT to begin with. If anyone is interested, let me know, and I will repost stretches that PT gave me that helped.
Oh, and if ya'll can skip out on the RADs Fibrosis you'll thank me! It SUCKS! When I was at PT today, she said "hey, the "spaghetti" noodle have really done a great job of reducing your breast lymphedema, so now we can really start working on your adhesions, cording, and RADs fibrosis.". (by the way what is with all of my things referencing pasta????!! ) Word to the wise.....IT FREAKIN HURTS to work on that stuff. OMG. I was sore before from the minimal work we were able to do prior to this visit, but YIKES, it brought some tears to my eyes today. But no pain, no gain, unfortunately when it comes to fibrosis.
CherryI3 - Ari is a Maine Coon. Close to a Ragdoll. :) She's super smart and because having been disable for a few years I've had time on my hands, I used clicker-training on her. Same you'd use on a dog. She (my cat, people, my cat!!!) can now give me high-fives, gives kisses, sits up and begs, and in general sits and comes when called. People are amazed and call me the "cat whisperer". She's my baby and I spoil her wayyyyy too much.
HDMom - Oliver looks so precious! Big smile.
Pebbles - Thanks for being my cheering section! Regarding next step. I'm being referred to Rheum to figure out why I have fractured rib in the first place. They think it may be related to the rest of my chronic health issues & bone density. Also, I see Neurology in 3 weeks to figure out what is causing some of my neuropathy that isn't neuropathy, at least according to my latest EMG. Le Sigh. So many doctors..... Have you heard back from yours about your liver testing? Fingers crossed that you have. If not, perhaps he is doing research and it may be a good sign?
Wised - Nope, no parties unfortunately, just a random fractured rib from who knows what. If I'm gonna party, I'll be sure to send out invites to everyone, no worries! In regards to your question about an AI or an alternative to Tamoxifen for me from my MO. The only thing she said would be appropriate for me, given my age and being pre-meno, if didn't choose Tamox, was to medically suppress and/or remove them via surgery. Maybe she mentioned an AI at some point but I honestly can't remember. My naturopath and Infectious Disease docs do not want me to do either of those things given my labs and bacterial load (Lyme, Babesia, Erlichiosis, and EBV). Maybe a few months down the road that may change. IDK. I'm in the process of seeking out a second opinion MO since I'm not too keen on the way she handled things when I saw her last. Was quite upsetting. Will see what the new MO has to say and go from there.
Hugs and healing and waves to all!
"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left, Diet & Exercise. PS: Not a dr, just a Googler.
7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH)
8/29/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel
8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2
9/30/2018 Whole-breast: Breast, Lymph nodes, Chest wall
3/29/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
7/1/2019 Zoladex (goserelin)