Log in to post a reply
Dec 5, 2018 12:41PM
Dec 5, 2018 01:05PM
Been meaning to pass these on, as I posted them in my Oct thread and in the Nov group too. These are the PT stretches I was given in the beginning of RADs to help prevent SEs like Lymphedema and shortening of range of motion. (Note - I didn't have drains, but these applied to me in any case) Also, stretches I was given later, when I began Cancer Rehab.
Even though I still ended up with Breast Lymphadema and Fibrosis, I know that without these I would be in a much tougher place.
I wish every center would do this proactively for us, but I know many don't.
Hopefully these will help you all on your own journey. Hugs and healing my friends.
PS --> (ETA) Below are also my discharge instructions from my post in Oct Rads Thread, which it seems not everyone the same ones but they seem helpful. Main take away....moisturize, moisturize, moisturize for 6 more months.
"Did ya'll know that it can take up to 6 months for the effects of RADs to fully develop or clear even?
That, I did not know.
So my rehab doc explained a few things to be on the look out for -- like extreme tightening in the rib area, which can onset as much as 6 months down the road. Also to be on the look out for shortness of breath, chest pain when breathing, or dry cough -- all of which can be signs of Post RADs Pneumonitis.
On Wed, I was discharged from Radiation with the following directions --->
- to continue to hold off on my antioxidant related supplements for another 2 weeks
- finish the antibiotics I was put on to minimize risk of infection due to SEs
- to see RO in 6 weeks or sooner, if SEs are not healing
- to REST when needed and to not push myself to much, that can and will slow healing if I do
- to continue to apply the Calendula/Aloe Vesta/Miaderm 3 x daily until the redness/inflammation I've experienced is gone
- once redness/open skin areas have healed, use (Lubriderm, Eucerin, Cocoa Butter, etc) for AT LEAST 6 months after treatment
- if there is any sun exposure be sure to use SPF 30 or higher"
"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left, Diet & Exercise. PS: Not a dr, just a Googler.
7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH)
8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2
8/30/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel
10/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall
3/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
7/2/2019 Zoladex (goserelin)