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Dec 9, 2018 06:42PM
Wised -- Good luck on your last two treatments! Hang in there. Sending encouragement and gentle hugs!
Dani - I hear ya on wanting to find the "old" us. Le Sigh. I agree with Wised, that with time, we'll get to a place where not everything seems so emotional or unstable or worrisome....it's hard in the moment, but eventually we will get there again, with a new perspective on the things that perhaps matter more now, given what we've been through. At least that's how it's been for me on my Spoonie life. There's a grieving process, denial, and all that "fun" stuff, but eventually we find our "spot" again. Sending support. The emotional rollercoaster is a hard part of this for sure.
Salamandra -- Hope you were able to recharge a bit over the weekend. The fatigue sure does sneak up on us! I became a regular napper in the afternoons during RADs. Took about 2 weeks after txts ended until my energy started returning to pre-RADs levels. I'm impressed that you are biking! That's awesome. But don't feel too bad or be hard on yourself if you need to rest or nap. Your body is talking to you. Listen when you can.
Purplecat -- Awesome on getting the big chugs of hydration down! IMO it's not how often there's water, just that it's going in at quantities that are needed. :) That's one thing I've never been good at, though I tried very hard to drink at least a gallon during RADs. Keep up the good work!
AliceBastable -- Good thing your dr is on top of the hydration issue. Did they order blood work weekly from the beginning or was it ordered as a one time thing? I wonder, does anyone else have labs done during RADs? Mine never did. Hmmm. Another difference in centers or maybe like you mentioned, due to your kidney cancer Alice? Thanks for sharing and I sure hope your labs are good this week!
Egregious -- Hang in there! Wishing you luck on your last 9. Fingers crossed your skin continues to hold up! :)
Thanks for the hugs everyone. They're appreciated.
To answer your question Dani, I'm supposed to wear the compression "noodles" as often as I can to break up the Fibrosis and tissue adhesions, plus to move the Lymph around as well to manage swelling. My goal is about 6 hours a day this week. It's painful but needs to be done. At least the "noodle" foam is less aggressive than the Swell Spot was so it's doable. Next week I'll try for 8 hours a day.
So thankful to have this place to come as it seems so many in my circle just don't seem to care or are too busy to check in or listen to my struggles anymore. Sad but true. Anyone else experiencing this?
Also, found out this weekend that my cousin, on my dads side, who had a BMX 14 years ago at Stage I, got the bad news call....a recurrence, stage III. Not sure what her treatment plan is but kinda feel punched in the gut. A reminder that even if we do everything just right and follow everything that's asked of us, it's no guarantee. :(
Hang in there ladies. We'll get through this together. Sending hugs and healing....
"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left, Diet & Exercise. PS: Not a dr, just a Googler.
7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH)
8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2
8/30/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel
10/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall
3/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
7/2/2019 Zoladex (goserelin)