We are 224,930 members in 82 forums discussing 158,020 topics.

Help with Abbreviations

Topic: Radiation Yes or No

Forum: Radiation Therapy - Before, During, and After —

What to expect from treatment and ways to cope with side effects.

Posted on: Sep 28, 2019 01:11PM - edited Sep 28, 2019 01:21PM by AnnC2019

AnnC2019 wrote:

Hi,

Struggling to make a decision to have radiation or not. Radiation Oncologist said I should have it.

I have multi-centric lobular with 1 out of 2 nodes positive for macromestases size 4mm. largest breast tumor was 3.8cm. I have LVI but the cancer cells didn't penetrate the wall of the node. I also just had melanoma removed from my leg. It seems I am in a bit of a gray zone with one positive node but LVI is tipping thebalance.

I start Zometa infusions once a month in October and I am taking anastrozole. No chemo due to low ONCODX score.

Everything I am reading suggests LVI is a bad prognostic indicator and increases likelihood of metastatic BC.

I am studying Jane Mclelland's book How To Starve Cancer and I am intrigued by the idea of blocking signaling pathways etc.and might start with the basics such as aspirin, berberine and Tagamet. My only problem is I have a rare metabolic disease and shouldn't fast because my body needs glucose for energy so no idea how this would impact me.Such a conundrum....

I would greatly appreciate any suggestions/options regarding radiation. I am leading toward getting radiation but afraid of side-effects. I plan on having DIEP.

Also do you suggest a 2nd opinion for pathology reports? There is probably some margin of possible errors. My initial biopsy was reviewed by two pathologists but my breast tumor and node report only lists one doctor


Thanks.

Dx 6/19/2019, ILC, Right, 3cm, Stage IIB, Grade 2, 1/1 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 8/14/2019 Arimidex (anastrozole) Surgery 8/27/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 11/4/2019 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Page 1 of 1 (5 results)

Posts 1 - 5 (5 total)

Log in to post a reply

Sep 28, 2019 01:45PM Ingerp wrote:

What is the reduction in probability of recurrence for you with rads? I only had to hear 50% to make it an easy decision.

I’m very comfortable with my medical team and have never considered a second opinion.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Chemotherapy 5/18/2018 Taxol (paclitaxel) Radiation Therapy 8/20/2018 Whole-breast: Breast
Log in to post a reply

Sep 28, 2019 03:57PM gb2115 wrote:

I had a smaller tumor and only one positive node and chose radiation. The radiated the nodes. I only hope it was enough and definitely fear metastatic recurrence. I also had side effects from the radiation, but if I could go back in time I would choose it again. I really would, I would put myself through it again. Statistically too risky to skip it.


Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
Log in to post a reply

Sep 29, 2019 06:15PM AnnC2019 wrote:

Thanks Ingerp and gb2115. I am most likely going to follow the doctor’s recommendation because of the LVI and macrometastasis.

Dx 6/19/2019, ILC, Right, 3cm, Stage IIB, Grade 2, 1/1 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 8/14/2019 Arimidex (anastrozole) Surgery 8/27/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 11/4/2019 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Oct 12, 2019 06:16AM Howdidthishappen wrote:

I have recently had a lumpectomy and lymph nodes removed. I have Mucinous Carcinoma.
margins were clear and nodes were negative for cancer spread. I am considering not having radiation. Has anyone else gone this route.

Log in to post a reply

Oct 12, 2019 10:00PM Moderators wrote:

Hi Howdidthishappen, and welcome to our community.

Treatment decisions are very personal. However here are two articles that may help provide some information about radiation.

Lumpectomy plus radiation and Is Lumpectomy plus radiation right for you?

What does your treatment team recommend? Perhaps getting a second opinion could be helpful as well.

We're here for you!

To send a Private Message to the Mods: community.breastcancer.org/mem...

Page 1 of 1 (5 results)