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Topic: First RO appointment... yikes.

Forum: Radiation Therapy - Before, During, and After —

What to expect from treatment and ways to cope with side effects.

Posted on: Oct 14, 2019 09:59AM

berries wrote:

I am almost 4 weeks post mastectomy, starting chemo on 10/24 and will be doing radiation following. I have my first appointment with my radiation oncologist today where he and my BS will determine if I will need a ALND or I can get by with radiation after chemo. My BS seems to think that I could do without the surgery given 4/4 nodes, but he said it was important to speak to my RO.

I am meeting with him today, what can expect in the first meeting? I'm pretty nervous...

Dx 8/6/2019, DCIS/IDC, Left, 5cm, Stage IB, Grade 1, 4/4 nodes, ER+/PR+, HER2- Surgery 9/18/2019 Mastectomy: Left; Reconstruction (right) Chemotherapy 10/24/2019 AC + T (Taxol) Surgery 2/17/2020 Reconstruction (left): Silicone implant Radiation Therapy 3/30/2020 Whole-breast: Breast, Lymph nodes Chemotherapy 4/29/2020 Xeloda (capecitabine) Hormonal Therapy 5/7/2020 Arimidex (anastrozole)
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Oct 14, 2019 10:03AM Moderators wrote:

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Oct 14, 2019 10:18AM - edited Oct 14, 2019 10:18AM by edj3

At my first meeting with my RO, she discussed the plan and what to expect. At the second meeting, she did the mapping (which is a lot of scanning) and I also got three of the four micro-dot tattoos needed to ensure the radiation hit exactly what it should, no more no less.

On me, those micro-dot tattoos look like one of the many tiny, tiny moles I already had. She also had me do the deep inspiration breathing to move my ribs up and my heart and lungs down (my cancer is on the left side). You do that to keep any residual radiation scatter away from your heart and lungs.

At the very first radiation appointment when I was actually radiated, I got the fourth and final tattoo. The session itself lasted about 10 minutes, and that's including getting changed, telling them my name and birthday, and getting on the table and then zapped.

The normal radiation treatment included two zaps (this was whole breast)--I had 15 of those, one a day every work day. Then the last five were boosts, far more targeted to where the tumor had been--those were one zap each and pretty short.

Hope that helps!

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 14, 2019 12:44PM moth wrote:

My first appointment with the RO was a consultation, confirming my history & diagnosis, doing a quick physical exam, and then giving me their recommendations. It was about a 45 appointment where we talked about risks/benefits & then they gave me a printout of their recommendation. There were some options regarding the type of radiation treatment, how many doses and the timing so we did discuss several possibilities. There was lots of time to ask questions and I was also able to call back later with an additional question.

Feb 2020 - Stage IV, mets to lung, liver, mediastinal lymph. Dx at 50 in Dec 2017; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab)

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