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Topic: Do you count rads beeps (buzzes)? Did the count ever change?

Forum: Radiation Therapy - Before, During, and After —

What to expect from treatment and ways to cope with side effects.

Posted on: Apr 8, 2021 01:54PM - edited Apr 8, 2021 05:14PM by MochiPie

MochiPie wrote:

Today I had #14 of 15 whole breast treatments. I realized by treatment #2 or #3 that I the machine beeps (or buzzes) four times for varying lengths of time, then the gantry rotates and it does the same thing four more times. I began to mark the time by counting the two sets of four beeps. Today, however, my second half of treatment involved five, not four beeps.

When the team came in to tell me I could get up from the table, I mentioned that the second half was five and not four, and that every other treatment was two sets of four beeps. I feel like the team was curt and almost defensive with me. Th e woman in charge said, "I don't even know what you mean by beeps. What beeps?" and "You got the same amount of radiation today that you always get." I felt like they were trying to get me to STFU and leave.

Before I create some drama and raise this with my RO, has this ever happened to any of you? Can I request that my RO review treatment #14 to confirm that nothing odd happened? I'm assuming there are backup records of every treatment received; is that correct? This is a teaching hospital and there are often students in the room who might adjust my position prior to a technologist verifying the position. I have never felt like a student was in charge of any treatment aspects, however, I don't know what happens when they leave the room and go to the control room.

Thank you in advance.


Dx 11/3/2020, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2+ (IHC) Surgery 11/11/2020 Lumpectomy: Right Targeted Therapy 12/8/2020 Herceptin (trastuzumab) Chemotherapy 12/8/2020 Taxol (paclitaxel) Radiation Therapy 3/22/2021 Whole-breast: Breast
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Apr 8, 2021 01:58PM AliceBastable wrote:

I don't remember hearing any beeps.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Apr 8, 2021 02:11PM - edited Apr 8, 2021 02:11PM by moth

I tried to count my rads beeps but lost count every time. I have a feeling that the number of greys dispensed are not related to the pinging and beeping and buzzing we hear though. I think it's just the machine making its own noises.

You can always follow up with your RO or go early today & ask one of the technologists to speak to you about it. I've always had people who were willing to explain extra things to me so I hope you find the same.

(just a btw, always call them technologists and not technicians. Technicians fix the machines. Technologists operate them. It's a whole thing lol)

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Apr 8, 2021 02:35PM MochiPie wrote:

Moth, you are a fount. Thank you for the tip. I was kind of hoping you'd chime in.

Dx 11/3/2020, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2+ (IHC) Surgery 11/11/2020 Lumpectomy: Right Targeted Therapy 12/8/2020 Herceptin (trastuzumab) Chemotherapy 12/8/2020 Taxol (paclitaxel) Radiation Therapy 3/22/2021 Whole-breast: Breast
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Apr 8, 2021 02:59PM - edited Apr 8, 2021 03:00PM by Spookiesmom

I'm another who would loose count. Decided I'd say DIE CANCER DIE each time it made a noise.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Apr 8, 2021 03:55PM edj3 wrote:

I counted seconds because I was curious how long I held my breath; the last five treatments were boosts and were shorter and I almost felt disappointed because to Spookiesmom's point, DIE CANCER DIE!!

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 8, 2021 05:08PM Poppy_90 wrote:

Mochi—just to let you know, I also counted all of the beeps and noises and knew the exact order that they came in. I guess it was my way of focusing. I just wanted to let you know that you’re not the only one—I would’ve also definitely noticed the change. Ask your RO—if only for your own peace of mind. Hope you’re close to being done!

Dx 5/1/2020, IDC, Right, 2cm, ER-/PR-, HER2- Chemotherapy 5/29/2020 AC + T (Taxol) Surgery 10/4/2020 Lumpectomy: Right Radiation Therapy 11/5/2020 Breast
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Apr 9, 2021 10:49AM panout wrote:

I am a counter too.......It's not like there's anything else to while you are laying there!!

Dx 1/5/2021, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 2/23/2021 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/5/2021 Whole-breast: Breast
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Apr 9, 2021 11:47AM SparkleTBD wrote:

it’s my opinion that you are paying for the service - so if you have questions, concerns etc it is your right to ask. If anyone starts getting huffy with me I’m going to try and talk it out with them and if that doesn’t work I’m leaving.

Too much is at stake to trust everyone and not ask question if I am concerned.

Dx 2/3/2021, LCIS/DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+
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Apr 9, 2021 01:08PM - edited Apr 9, 2021 01:09PM by MochiPie

Update - I called my RO's nurse this morning and she spoke with yesterday's team prior to today's treatment. The lead technologist (thanks, Moth!) escorted me to the changing area and apologized profusely for her less than compassionate bedside manner. One of the higher-ups reviewed yesterday's treatment and it was all according to plan. My nurse met with me afterwards and said that the technologist in question has a bit of an attitude with patients sometimes and they've spoken about it with her before. Evidently she had no idea I felt so slighted, and she was sincerely remorseful, and I get it - her style is not one of nurturing and patience, and that's not my style either, but I don't work in a caring profession for that reason. Yikes.

All's well that ends well. I have four boosts next week and rads are done. To date, every step of this process has had exactly one incident where I was treated poorly or incorrectly, so I hope that is it for this phase.

Dx 11/3/2020, IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2+ (IHC) Surgery 11/11/2020 Lumpectomy: Right Targeted Therapy 12/8/2020 Herceptin (trastuzumab) Chemotherapy 12/8/2020 Taxol (paclitaxel) Radiation Therapy 3/22/2021 Whole-breast: Breast
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Apr 9, 2021 01:10PM ctmbsikia wrote:

I count or made note of the MRI machine noises. Three different swipes/noise, then contrast goes in, same three noises and done.

I had a weird radiation experience. I was mortified/terrified and still have some ptsd. My first simulation failed so I had to get re mapped and I was treated in the prone position. The table goes up high and the machine zaps you from underneath and I believe one side. I was so glad to get out of there.

Afterwards, I had a strange rash on my upper left arm. The BS saw it and said, "What'd they do, miss?" I tried to take that as a joke, cause I really don't want to know if that is possible. But, yes, wholeheartedly agree if you have questions, ask! Good luck and glad you're almost done!

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)

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