Topic: Starting Radiation June 2021 Group

Forum: Radiation Therapy - Before, During, and After — What to expect from treatment and ways to cope with side effects.

Posted on: May 31, 2021 08:31PM - edited May 31, 2021 08:37PM by Kipepeo

Posted on: May 31, 2021 08:31PM - edited May 31, 2021 08:37PM by Kipepeo

Kipepeo wrote:

Hi all. Starting this thread for June 2021 radiation starts.

I have my mapping appt this Thursday, and then will probably start next week. I have 15-19 treatments. I told my RO I was concerned about lung and heart damage, so she said she would keep a wider margin..."because she knows what's important to me".

I had a left side 6 o'clock lumpectomy and 3 sentinel lymph nodes removed and a bilateral reduction. Finished 4 rounds of TC chemo. Looking forward to getting started so I can get finished.

Doctor recommendations-

skin care: Calendula Cream 3x/day, but not within 4 hours before a treatment.

Supplements: no vitamin C, E, A or fish oils, until 2 weeks after last treatment.

Kipepeo (Heidi) [oncotype score 29] Dx 10/30/2020, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2- Surgery 12/14/2020 Lumpectomy; Lymph node removal: Sentinel Chemotherapy 3/8/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/10/2021 Whole breast: Breast
Log in to post a reply

Page 10 of 10 (100 results)

Log in to post a reply

Aug 14, 2021 07:48AM juju-mar wrote:

Esther01,

I do find relief with that "pose". And when driving, I hang my right arm on the seat next to me. It is getting better daily. Just uncomfortable as it's healing. Best wishes to you. My advise is to drink extra fluids, moisturize that skin throughout the day. Aquaphor at night 😊

Julie

Dx 8/27/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/4 nodes, ER+/PR+, HER2- Chemotherapy 10/27/2020 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Radiation Therapy 6/14/2021 Whole breast: Breast, Lymph nodes
Log in to post a reply

Aug 14, 2021 01:37PM esther01 wrote:

Thanks Julie,

That's so helpful! We can forget how important water intake is.

blessings on your weekend

Esther

Grateful to Jesus for saving my soul and carrying me through every valley Dx 12/2020, IDC, Stage IIB, ER+/PR+, HER2- Hormonal Therapy 1/10/2021 Surgery 6/10/2021 Radiation Therapy Whole breast: Lymph nodes
Log in to post a reply

Aug 15, 2021 08:36PM ab45 wrote:

Esther

After each radiation, as I was dressing I applied the lotion. I read this somewhere and I think it helped with not getting red so quickly...I know right now 33 seems so far away but you will be at post radiation shortly...u got this!!!

All My Best

A

Log in to post a reply

Aug 15, 2021 09:22PM esther01 wrote:

I appreciate your encouragement. Thank you, A!

Grateful to Jesus for saving my soul and carrying me through every valley Dx 12/2020, IDC, Stage IIB, ER+/PR+, HER2- Hormonal Therapy 1/10/2021 Surgery 6/10/2021 Radiation Therapy Whole breast: Lymph nodes
Log in to post a reply

Aug 18, 2021 11:03AM juju-mar wrote:

I saw the RO for a quick follow up and she ordered Silver Sulfadiazine cream. My skin was still so Angry and RED. This cream has done wonders in just 48 hrs. Whew, relief from pain and healing has for sure come along. Hope everyone else is doing well.

Julie

Dx 8/27/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/4 nodes, ER+/PR+, HER2- Chemotherapy 10/27/2020 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Radiation Therapy 6/14/2021 Whole breast: Breast, Lymph nodes
Log in to post a reply

Aug 18, 2021 12:17PM star2017 wrote:

Yes, the silvadine is amazing!

CURRENT: Stage IV since 2020, bone mets to rt hip, sacrum, femur, all treated with radiation. Taking Lynparza daily. Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy; Mastectomy (Right); Reconstruction (Right): Tissue Expander Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Silicone implant Radiation Therapy 5/21/2018 Whole breast: Breast, Lymph nodes Surgery 10/24/2018 Reconstruction (Left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy Verzenio Radiation Therapy External Hormonal Therapy Faslodex (fulvestrant) Local Metastases Radiation therapy: Bone
Log in to post a reply

Aug 18, 2021 12:31PM esther01 wrote:

Julie, I'm glad to hear you are getting relief with the silver sulfadiazene cream. It's a comfort to know that there are more options in the RO's toolchest for when we need them.

You've been such an inspiration with your positive attitude and exercising throughout. I"m going to keep exercising to stave off radiation fatigue as long as I can.

Blessings,

Esther

Grateful to Jesus for saving my soul and carrying me through every valley Dx 12/2020, IDC, Stage IIB, ER+/PR+, HER2- Hormonal Therapy 1/10/2021 Surgery 6/10/2021 Radiation Therapy Whole breast: Lymph nodes
Log in to post a reply

Aug 20, 2021 04:58PM nyc250 wrote:

To AB45: I too have benign positional vertigo. About 2 weeks into my 6 weeks of radiation, due to the angle of my head, i got dizzy on the table and had to sit up and stop. Rad onc said it was not good to delay so I went back every day. Techs were great. They put a strap around me so that if I got dizzy and sat up, I wouldn't fall off the high table. Then, they helped me slowly lay down and allowed me to move my head a tiny bit until I found an okay position. Then, if dizziness started to come on during treatment, I would move my head a tiny bit until it stopped. I didn't have another major dizzy spell, thankfully. Radiation took between 20-30 minutes to get set up and do the treatment- so not long. You just have to figure out what works for you to get through it. You can do it. Best of luck to you.

Dx 11/21/2016, IDC, Left, Stage IIA, 1/3 nodes, ER+/PR-, HER2- Chemotherapy 11/30/2016 AC + T (Taxol) Surgery 5/31/2017 Lymph node removal: Sentinel Radiation Therapy 8/4/2017 Whole breast: Breast, Lymph nodes Hormonal Therapy 10/3/2017
Log in to post a reply

Aug 20, 2021 05:12PM nyc250 wrote:

Julie,

I have really, really light white skin and I had pretty intense radiation. As the rad onc predicted, all was fine until about a week after I finished, then my breast, chest and underarm area turn bright red and hurt like hell. Some areas would be red for about a week and get better, just as other sections would start to get red. Whole process was about 3 weeks. But, thank goodness for Mometasone! Took away the pain like nothing else. It was amazing. I'm glad you are all finished.

Susan

Dx 11/21/2016, IDC, Left, Stage IIA, 1/3 nodes, ER+/PR-, HER2- Chemotherapy 11/30/2016 AC + T (Taxol) Surgery 5/31/2017 Lymph node removal: Sentinel Radiation Therapy 8/4/2017 Whole breast: Breast, Lymph nodes Hormonal Therapy 10/3/2017
Log in to post a reply

Aug 20, 2021 08:14PM juju-mar wrote:

Susan,

I too am fair skinned and thought I was ready for what was to come after radiation finished, but wow. I had the exact same experience as you described. One area would start to feel better, then another felt painful. I finished radiation 3 weeks ago today and this week have some relief. Over the hump as they say. Onto better days ahead!

Julie

Dx 8/27/2020, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/4 nodes, ER+/PR+, HER2- Chemotherapy 10/27/2020 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Radiation Therapy 6/14/2021 Whole breast: Breast, Lymph nodes

Page 10 of 10 (100 results)

Scroll to top button