I met with my RO about a month ago, mid-Aug, before I even met with my BCS. My BCS's team wanted me to pick my "team" prior to my surgery so that everyone would be lined up and in the know as they presented my case to the tumor review board, and then at hand-off after surgery for the next step.
When I met with the RO we spoke in very general terms and I asked some basic questions about the different types of radiation. I asked about partial breast radiation, and she said I "might" be a candidate for that. I asked about Brachytherapy and she explained that to me, and told me I would be a candidate (based on the info she had at that time) for hypo fractionated - 4 weeks/5-days a week and a "boost" week. I don't think I inquired about Intraoperative therapy, but I did ask about Proton therapy and she downplayed that and told me they were mainly using it for brain cancer and prostate cancer, which I now know is not the case. Obviously where I am going doesn't have it.
I had my surgery Tues (lumpectomy) and they path report was good - Stage 1a, no lymph node involvement, 3mm tumor, margins clear. So I would presume from what the MO told me when I did my consult, there will be no chemo and the next step will be radiation therapy.
She told me that the next appt. would be a "planning" appt, which they would map out the radiation sites with me lying on a table, etc. Is this the time that the RO also goes over the path report and what the options are - partial breast radiation vs full, etc. or do I need another appt. for that?
I am still have proton radiation in the back of my mind, as I want to do as little harm to my body as possible, especially considering that my cancer was small and non-aggressive and no lymph node involvement. The last thing I want is to get another cancer from the radiation or life-long heart/lung issues, and I have read that proton radiation is less damaging. The issues is that I do no live near a proton center, and would have to travel back home to Boston and stay with relatives for 6 weeks, and travel the hour each way daily for proton treatment. I'm not keen on traveling anywhere right now due to COVID, as even though my husband and I area vaccinated we are both at high risk for complications should we get it. I don't know either if my insurance would pay for proton radiation therapy and don't know how to find that out, as when I called to inquire, they said I would need the exact CPT codes that it would be billed under, and I don't have that, and probably wouldn't get that without a consult in Boston, which means another trip. Ugh...
Feeling lost here as to how to proceed with the next step.
Also, will the RO give me recurrence stats depending on the different types of radiation - i.e., if they do partial breast or full breast?
7/29/2021, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC)
9/14/2021 Lumpectomy: Right; Lymph node removal: Sentinel
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