Dec 6, 2008 01:29PM bibi wrote:
I live in South Africa and also had a typical sneaky ILC experience! Had normal(?) mammogram in December 2005, we were planning a holiday in Germany in December 2006 and as I didn't feel like going for a mammogram during the month we were leaving, I thus went for my annual mammogram 2 months before it was due ie after 10 months and with no breast related complaints at all. They performed the mammogram and followed it up with a sonar as usual. On the sonar and on the mammogram a 1cm perfectly formed soft encapsuled round fibro adenoma clearly showed, corresponding in only one way to the 7 positive signs for breast cancer. Against all odds the radiologist however decided to perform a biopsy on this lump but even as the needle passed through the tumour easily and smoothly he felt he had just confirmed the fibro adenoma diagnosis. He said that a breast cancer felt like an unripe pear during biopsy and not like butter! We were all stunned when the results came back which indicated Grade 1 IDC. A lumpectomy was scheduled for 3 days later and the frozen section in theatre confirmed IDC. When the whole tumour was analyzed it showed Grade2 ILC though! Suddenly the whole treatment plan changed as my surgeon who accidently is my employer as well! feels that the follow up on ILC in the other breast is hugely compromised by the fact that in 40% of mammograms a false negative is reported on ILC (as we had firsthandly experienced) and also that ILC tends to be multicentric and to recurr on the other side. Ten days after my lumpectomy a bilateral mastectomy was performed. My lymphnodes were clean and we immediately realised that the ILC had been missed 10 months earlier as a 1cm lump takes longer than 10 months to develop, with hindsight it was clearly visible on the previous tests, again disguised as a fibro adenoma. When the final results came I also had a LCIS in the other breast which didn't show up on any test. I didn't need chemo or radiation and I am on Arimidex now as the tumour was ER+, PR+ and HER neu-. This was really a narrow escape and after 2 years and 2 months of perfect health I am very grateful!