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Jul 9, 2007 04:28AM
Yikes! I wonder how big my tumor really is, then. Good grief. The surgeon is absolutely convinced from her clinical exam that it's much smaller than the MRI shows, that I should not have neoadjuvant chemo and that I can get away with a lumpectomy. She's a very well respected surgeon who heads up the breast program at the university hospital here, so she's had a lot of experience.
But from what I've read and from what you gals have shared, MRI's are better at picking up ILC compared to other methods. I do have a gut feeling that my tumor is a big beastie, given how lousy I've felt the last six months, but at the same time I'd hate to pass up a lumpectomy if I can get away with it.
I guess I'll just have to wait and see what happens. Maybe I can take bets on the size--sort of like a football pool or something.
Stage IV Pleomorphic ILC, initially diagnosed at age 38
6/7/2007, ILC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH)
7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel
12/27/2007 Whole-breast: Breast, Chest wall
3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/24/2015, ILC, Left, 1cm, Stage IV, metastasized to other, Grade 2, 0/10 nodes, ER+/PR+
5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap
2/1/2018, ILC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+
2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel)
6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+
7/1/2018 Ibrance (palbociclib)
7/17/2020, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 2, ER+/PR+, HER2- (FISH)
7/17/2020 Xeloda (capecitabine)
Faslodex (fulvestrant), Zoladex (goserelin)