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Aug 13, 2007 05:14PM
I just responded to you again over on the Not Diagnosed board, but I'll continue over here.
Taking the uninsured part into account, it's going to be harder to switch surgeons, as I advised in my last post over on the other thread. But unfortunately this guy is not giving your issue sufficient attention. You need an MRI, and then if there's a suspicious area on that, you need a core biopsy. It probably wouldn't hurt to biopsy the lump and thickening even if nothing shows on MRI just to be sure.
I had both a lump and a thickening, and pain. Your's is hopefully nothing, but from what you're describing you absolutely have to get yourself checked out thoroughly. It drives me crazy when treatment decisions are driven by economics. I wish I had some advice on how to get around the insurance issue. Maybe if you post a separate thread on how to get good care w/o insurance, some ladies who are in that boat will have some good advice.
Stage IV Pleomorphic ILC, initially diagnosed at age 38
6/7/2007, ILC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH)
7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel
12/27/2007 Whole-breast: Breast, Chest wall
3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/24/2015, ILC, Left, 1cm, Stage IV, metastasized to other, Grade 2, 0/10 nodes, ER+/PR+
5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap
2/1/2018, ILC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+
2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel)
6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+
7/1/2018 Ibrance (palbociclib)
7/17/2020, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 2, ER+/PR+, HER2- (FISH)
7/17/2020 Xeloda (capecitabine)
Faslodex (fulvestrant), Zoladex (goserelin)