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Topic: upset...small, moveable lump under scar.

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Mar 16, 2008 06:13PM

wallycat wrote:

I am almost 1 year out....and I have my onco visit this friday, so I know I have to sit and wait, but I just noticed a small, moveable lump about an inch below my incision on the cancer side.

I had bilateral, no recon.

I'm wondering if anyone found a lump 1 year out and it turned out to be nothing....

I sooooooooo don't want to go through anything more....

wish me luck.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 16, 2008 07:35PM matic22 wrote:

Dear wallycat!

I hope you do not mind asking you if you had radiation to mastectomy side?

It can be nothing absolutely,. but you need to ask your oncologist as well.I am quite sure you are going to be ok.

regards;)MATIC

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Mar 16, 2008 07:58PM wallycat wrote:

Thank you for your words of comfort.

No rads.

Just bilateral mastectomy.  I was told lumpectomy/rads or mastectomy, so I opted for bilaterals....

I hate this worry and feeling helpless...

thank you again.

I will post when I know more... 

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 18, 2008 03:49PM LindaLou53 wrote:

Wallycat,

I had bilateral masts with no reconstruction in Dec 2005. Last summer 2007 I found a small lump the size of pea just above my right incision line (right side was ductal bc in 2000, left side was the most recent advanced Lobular bc dx)

I was worried about it too, showed it to my surgeon and she ordered an ultrasound which stated they thought it might be an enlarged lymph node :( I went in for outpt surgery to have it removed. Turned out it was a remnant of an old suture plus a big inflammatory response my body put out around it! Was very glad it turned out to be no big deal.

Praying the same for you!

Life is not measured by how many breaths we take...but by the moments that take our breath away! ...I am a 14/9 yr survivor of 2 Primary BCs, 23/23 Positive Nodes (Zometa x 5 years) Started Paloma-3 Clinical Trial 4-14-14 Dx 7/14/2000, IDC, 1cm, Stage IIA, Grade 1, 2/7 nodes, ER+/PR+, HER2- Surgery 8/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/30/2000 AC + T (Taxol) Radiation Therapy 2/26/2001 Breast, Lymph nodes Hormonal Therapy 5/10/2001 Dx 11/21/2005, ILC, 5cm, Stage IIIC, Grade 1, 23/23 nodes, ER+/PR-, HER2- Surgery 12/5/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 12/23/2005 Taxotere (docetaxel), Xeloda (capecitabine) Hormonal Therapy 4/7/2006 Aromasin (exemestane) Radiation Therapy 4/7/2006 Breast, Lymph nodes Dx 3/21/2014, ILC, Stage IV, mets, ER+/PR-, HER2- Hormonal Therapy 4/14/2014 Faslodex (fulvestrant)
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Mar 18, 2008 10:08PM nash wrote:

Just wanted to offer moral support, wallycat. Keep us posted.

Stage IV Pleomorphic ILC, initially diagnosed at age 38 Dx 6/7/2007, ILC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH) Surgery 7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/1/2007 CAF Radiation Therapy 12/27/2007 Whole-breast: Breast, Chest wall Hormonal Therapy 3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/24/2015, ILC, Left, 1cm, Stage IV, metastasized to other, Grade 2, 0/10 nodes, ER+/PR+ Surgery 5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap Dx 2/1/2018, ILC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+ Chemotherapy 2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Dx 6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+ Targeted Therapy 7/1/2018 Ibrance (palbociclib) Dx 7/17/2020, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 2, ER+/PR+, HER2- (FISH) Chemotherapy 7/17/2020 Xeloda (capecitabine) Radiation Therapy 7/23/2020 Hormonal Therapy Faslodex (fulvestrant), Zoladex (goserelin) Radiation Therapy External: Brain
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Mar 19, 2008 11:46AM LUVmy2girlZ wrote:

Like Sherri said,  movable is good !  Keeping our fingers and toes crossed !

BRCA 1 & 2 neg. mx- 7 wks rads (35 rounds) LIVE LAUGH LUV... Dx 11/19/2007, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-
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Mar 19, 2008 07:58PM wallycat wrote:

Update...

Did I mention how I adore my surgeon?? He was on vacation this week and I was scheduled with his "cover' guy. I walk in and he spotted me ...what he was doing at work on his week off....paperwork catch-up, he said. He recognized me right away and said he'd look at me.

He used the ultrasound and can't find anything.

He agrees there is something there and can be removed locally and he is almost afraid to say he thinks it is nothing (each time a doc told me it was nothing, things got worse...no cancer became cancer, .8cm became 1.8cm.....blah, blah...), but he moved it around and feels fairly confident it is nothing. CROSS FINGERS!! He said most gals would never find anything this small and close to a rib...I have sensitive fingers and good intuition Laughing .

I'm having it removed with local anesthetic on Wed. and will post back as soon as I know anything. God, I hope this is not a recurrence!!!

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 19, 2008 08:05PM wishiwere wrote:

Good luck, will keep you in good thoughts and prayers that it's nothing more than a stitch or 'chicken fat' as someone was cut out of dh's breast! 

Short story....Old doc.... numbed it, cut it out and threw it in the trash!  Was 20 years ago, but dang, he was something else! 

wishiwere~ Path read stage 1C- 1st Primary was IDC w/DCIS 1.4 cm, ER/PR+ & HER2- Dx 9/21/2007, ILC, 1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Mar 26, 2008 01:29PM wallycat wrote:

Hi gang,

I had the lump removed today. Outpatient Smile. Love my surgeon...he let me watch!!

He said it looks like chicken fat. He thinks it's either a lipoma or a fat necrosis, but they are sending it to the lab to make sure and should know by Friday.

If he has seen enough of these and there are no surprises, this is a non-event..YIPPPIE!

Cross fingers.

(I'll cross post this on hormone section)

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 26, 2008 01:34PM flyrzfan wrote:

Good for you wallycat!! What a Happy Day!

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Mar 27, 2008 07:18PM wallycat wrote:

Update...dream surgeon just called....

all clear.

He did say there were some "big cell changes" which are typical for healing. OYE how I hate the word "cell changes" but I triple asked him..."should I worry?" (he knows I'm a worrier and over thinker) and said NO!

SO YAY!!!!!!!!!!!!!!!!!

April 4th will be 1 year NED if I don't worry myself to death Surprised

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 27, 2008 11:07PM LUVmy2girlZ wrote:

Awesom Cat!  Good news is ALWAYS good to hear! 

BRCA 1 & 2 neg. mx- 7 wks rads (35 rounds) LIVE LAUGH LUV... Dx 11/19/2007, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-
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Mar 28, 2008 05:57PM LauraGTO wrote:

Wallycat - Great news! Woo-hoo! I'm so happy for you.

With hope there are possibilities. Dx 7/2005, ILC, 4cm, Stage IIB, Grade 2, 1/11 nodes, ER+/PR+, HER2-

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