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Topic: Any other ILC's after taking Premarin?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Aug 25, 2008 10:58AM

4bethann wrote:

I read an interesting article linking ILC with long term Premarin use. I took Premarin for 15 years up until the night of my ILC biopsy results- my doc assured me over an dover the small dose I was on was safe. Just wondering if others here used Premarin and have ILC?

Thank you.

Dx 7/2/2008, ILC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Aug 25, 2008 02:36PM - edited Aug 25, 2008 02:36PM by celebrationtiger

There are articles showing 10 years on premarin raises your risk considerably.  It is the single biggest cause of post menopause lobular which is estrogen dependent.  That is why the aromatase inhibitors work so  well and chemo is of no benefit for lobular cancer.  You need a new Doc.  To be fair no one understood this 15 years ago.  Go research at pub med.

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Aug 25, 2008 04:16PM 4bethann wrote:

I actually did get a new doc just before diagnosis, as my old doc would not listen to my Premarin concerns. The new doc was ready to wean me off over the course of a few weeks, and three days later I was diagnosed with BC!

Dx 7/2/2008, ILC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Aug 25, 2008 07:55PM nash wrote:

Some ILC does benefit from chemo, actually. We've got neoadjuvant ILC chemo girls on this board who are living proof of that. Just b/c the tumor is hormone positive doesn't mean that chemo isn't warranted.

Stage IV Pleomorphic ILC, initially diagnosed at age 38 Dx 6/7/2007, ILC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH) Surgery 7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/1/2007 CAF Radiation Therapy 12/27/2007 Whole-breast: Breast, Chest wall Hormonal Therapy 3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/24/2015, ILC, Left, 1cm, Stage IV, metastasized to other, Grade 2, 0/10 nodes, ER+/PR+ Surgery 5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap Dx 2/1/2018, ILC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+ Chemotherapy 2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Dx 6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+ Targeted Therapy 7/1/2018 Ibrance (palbociclib) Dx 7/17/2020, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 2, ER+/PR+, HER2- (FISH) Chemotherapy 7/17/2020 Xeloda (capecitabine) Radiation Therapy 7/23/2020 Hormonal Therapy Faslodex (fulvestrant), Zoladex (goserelin) Radiation Therapy External: Brain
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Aug 29, 2008 04:56PM spar2 wrote:

I took premarin for 20 years and stopped when diagnosed.  I did do chemo, the red devil and cytoxin.  My onc says it does fight lobular.

www.spar2.multiply.com Lets help make each other's life better
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Aug 29, 2008 05:05PM wallycat wrote:

cancer is a crapshoot.

NO HRT as I was 49 (1 month shy of 50) when dx and still getting regular periods.

I've wondered if birth control pills contributed to this......who knows.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Aug 29, 2008 06:08PM collector wrote:

I had been taking Fenhrt for at least 8 years prior to my diagnosis.  I have always been very careful to get my annual pap smear and mammo.  My gyn thought I was very low risk for cancer since no family history for breast cancer.  He is also one to consider quality of life issues which are important to me as well.  I quit the HRT pretty much right after my confirming ultrasound.  Although I've heard all the stats, I think in my heart of hearts that it is a crapshoot. 

Dx 4/10/2008, ILC, 2cm, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Sep 1, 2008 12:37PM awb wrote:

My mom was on premarin for several years before her diagnosis of bc and colon ca.   She had to go off it immediately.  Fortunately, she is a survivor of over 21 years of ILC with no recurrence and is still doing well at age 79.

"I don't know what the future holds, but I know who holds the future" Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes Surgery 9/16/2003 Lumpectomy: Right Hormonal Therapy 10/30/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/5/2005 Prophylactic ovary removal Hormonal Therapy 2/28/2009 Evista (raloxifene)

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