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Topic: diagnosis date

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Sep 6, 2008 05:29PM

neeliecar wrote:

Now that I am about one year out from my diagnosis.  Is the survival date based on day of diagnosis or day of surgery to remove cancer?  I don't know how long I am considered a survivor and that is very important to me.  Thanks to anyone who can help me with this.  eileen

Eileen (neeliecar) - Don't plan for tomorrow, live for today! Dx 7/20/2007, ILC, 1cm, Stage IIA, Grade 2, 0/12 nodes, ER+/PR+, HER2-
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Sep 6, 2008 05:47PM - edited Sep 7, 2008 02:44PM by dalycity

I seem to remember that we count from the date of our DIAGNOSIS, not surgery date.

Best wishes to you, Eileen. 

dalycity Dx 11/30/2006, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Sep 6, 2008 11:49PM Lynn12 wrote:

I think American Cancer Society suggests date of diagnosis.

Lynn Dx 11/7/2006, ILC, 6cm+, Stage IIB, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Sep 7, 2008 04:00PM nash wrote:

Funny, I've heard a lot of women say that it's surgery date. Hmm. I always thought diagnosis date made more sense, though.

Stage IV Pleomorphic ILC, initially diagnosed at age 38 Dx 6/7/2007, ILC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH) Surgery 7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/1/2007 CAF Radiation Therapy 12/27/2007 Whole-breast: Breast, Chest wall Hormonal Therapy 3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/24/2015, ILC, Left, 1cm, Stage IV, metastasized to other, Grade 2, 0/10 nodes, ER+/PR+ Surgery 5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap Dx 2/1/2018, ILC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+ Chemotherapy 2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Dx 6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+ Targeted Therapy 7/1/2018 Ibrance (palbociclib) Dx 7/17/2020, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 2, ER+/PR+, HER2- (FISH) Chemotherapy 7/17/2020 Xeloda (capecitabine) Radiation Therapy 7/23/2020 Hormonal Therapy Faslodex (fulvestrant), Zoladex (goserelin) Radiation Therapy External: Brain
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Sep 7, 2008 11:54PM Rovergirl wrote:

I'm going w/ diagnosis date as I will have been in treatment 7 months before my actual surgery date.

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Sep 8, 2008 11:37AM Kleenex wrote:

From what I read about cancer - and I've become a voracious reader of cancer books over the last couple of months! - it seems there is a tendency to use the word "survivor" to describe "someone with cancer." It's like this pink fluffy coating on it to encourage positivity. We don't "suffer from" cancer, we're not "victims" of a cancer attack on our bodies - we are empowered survivors, seemingly from the moment we find out it's in our bodies. So perhaps we are termed survivors from diagnosis.

Intuitively, for me, I will hopefully feel more "survivor-like" once I have completed local treatment to eradicate known physical cancer in my body. I will do things after that to prevent recurrence or a new cancer, but to the extent that we can ever really know for certain, the "original" cancer will be "gone" and I will be a survivor. I don't feel very survivor-like just yet, having had a lumpectomy with snb but not radiation yet (or chemo, if I will be "offered" that option).

Still, it seems to me that a good date might be the date when you start doing something about it when you know you have it - whether that's surgery, neoadjuvant chemo, or palliative chemo... Survivorship is dealing with it, living with it...

Dx 6/19/2008, ILC, 2cm, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Sep 8, 2008 12:38PM jpann39 wrote:

Ive always counted from the day the cancer was removed via surgery.....if the cancer were still in me I couldnt feel like a survivor because the meaning of the word to me is that you have made it through a bad experience......and what a BAD experience breast cancer is!!!!!!!!!!

'Gain strength by the positive and don't be sapped by the negative" Dx 11/4/2006, IDC, 2cm, Stage II, Grade 1, 0/9 nodes, ER+/PR+, HER2-

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