Jan 28, 2010 05:38PM momand2kids wrote:
I had a lumpectomy- and the margins were clear.... the thing I remember most was that the surgeon told me that mastectomy was not warranted unless I wanted to do it.... the lump was very discrete, very contained and there was no node involvement. I had so much regard for her as a surgeon that I decided to go that route--- but I also had chemo and radiation and am now on femara. I also had the oncotype test and my risk of recurrence was calculated at below 9%---so all of that data helped me decide on the treatment---
For me it was all about sleeping at night. I have never questioned the lumpectomy- my breasts are D cup so there was very little to worry about cosmetically. I did wonder a bit about ILC and recurrence, but those rates are not outrageously high. I think in the end, the decision is about what you can live with. I am almost 18 months away from diagnosis and I seem to be still fine with those decisions. I just wish we could all know how we would feel in advance!
One thing my surgeon told me before the surgery was that in about 20% of the cases they have to do a re-excision. She made it clear to me that it would not mean that anything is wrong, just they had to get margins. So it is not so uncommon.
If you are planning to have chemo- then that should really help with the micromets... additionally radiation drops the recurrence rates and the hormonal therapies are apparently very powerful with ILC..... my onc feels like the hormonal therapies are the best weapon of all.
At the end of it all, you have to think about how comfortable you are with the type of surgery. Maybe go through the re-excision, see how it goes---- see how you feel.
You are at the early stages of this--it does get better, I promise.