Topic: ILC Long Term Survivors

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Dec 4, 2011 08:12AM

Posted on: Dec 4, 2011 08:12AM

NancyNY wrote:

Does anybody know people, or are you someone who has survived ILC long term, (more than 5  to 10 years) without a recurrence?  Please post!

I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure.

Thanks!

Nancy 

Dx 5/18/2004, ILC, 2cm, Stage IIA, 0/4 nodes, ER+/PR+, HER2-
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Sep 3, 2022 09:58PM kbl wrote:

LoverofJesus, I’m sorry you’re struggling. No matter the stage, this crap is always there once we are diagnosed. I hope you can find some peace, but when I feel sad or anxious, I let myself feel it. This is not an easy road. I’m sending hugs.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Sep 4, 2022 03:57AM - edited Sep 4, 2022 03:57AM by veeder14

I know someone who has survived ILC for 22.5 years without a recurrence. Amazing

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/26/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 3/8/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Sep 10, 2022 09:18PM beach2beach wrote:

Veeder14,

That's certainly great to read!

Surgery 8/8/2017 Mastectomy (Left); Mastectomy (Right); Reconstruction (Left); Reconstruction (Right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 11, 2022 11:28AM kbl wrote:

I just passed nine years with six of those nine with no treatment because it was a missed diagnosis. October will be four years ago that I started having stomach symptoms and was diagnosed with spread to the stomach. I’m amazed and grateful I’m still here.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)

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