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Topic: ILC Long Term Survivors

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

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Posted on: Dec 4, 2011 08:12AM

NancyNY wrote:

Does anybody know people, or are you someone who has survived ILC long term, (more than 5  to 10 years) without a recurrence?  Please post!

I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure.

Thanks!

Nancy 

Dx 5/18/2004, ILC, 2cm, Stage IIA, 0/4 nodes, ER+/PR+, HER2-
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Posts 61 - 77 (77 total)

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Feb 1, 2020 02:10AM MikaMika wrote:

sweetgirl19,

Thanks for your post! Do you now the details about their treatment and stages?

Dx 8/2019, ILC, Stage IIA, ER+/PR+, HER2-
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Feb 1, 2020 02:17PM Sandiegohoneybee wrote:

hi. Did u do nerlynx? I’m Er and her2 positive. At crossroads.

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Feb 3, 2020 11:41PM karen1956 wrote:

Today I mark 14 years since I heard those dreaded words!!! For fun I did the math (14 x 365) and that equals 5110 days!!!

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Feb 4, 2020 01:27AM MikaMika wrote:

karen1956,

Congrats! I wish you to post here about your 44 year mark since that date. And for all of us I wish to read this post!

Dx 8/2019, ILC, Stage IIA, ER+/PR+, HER2-
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Feb 4, 2020 09:00AM karen1956 wrote:

Mika - 44 years from Dx will have me past 100!!!! But thanks!!

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Feb 9, 2020 02:43AM - edited Feb 9, 2020 02:44AM by lauri

Fourteen years since I found the "thickening" in what used to be my left breast. At 75, many other things are falling apart but BC isn't one of my problems.

From the ashes of disaster grow the roses of success Dx 3/8/2006, ILC, 6cm+, Stage IIIB, Grade 2, 11/12 nodes, ER+/PR+, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Mastectomy: Left Chemotherapy AC + T (Taxol) Radiation Therapy Whole-breast: Breast
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Feb 9, 2020 08:29AM - edited Feb 9, 2020 08:30AM by Moag

Thank you so much lauri! Wish you continued good health Heart

Dx @41. Brca2+. Norway Dx 4/2018, LCIS/DCIS/ILC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Radiation Therapy Chemotherapy AC Hormonal Therapy Femara (letrozole) Surgery Prophylactic ovary removal Surgery Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left)
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Feb 13, 2020 08:33PM cathmg45 wrote:

Hi everyone,

I will mark 12 years since diagnosis when this summer rolls around. Wow. I couldn't have imagined being at this point back then, since I was devastated by the diagnosis and year or so of treatments. I didn't even want to hear from my onc back then about my prognosis for survival. But here we are. The years since 2008 have had SO many peak moments. I miss my onc appointment last year, then decided that I should see him. I had to ask my husband what the doctor's name was-I had actually forgotten, and it wasn't just chemo brain!! I did see him and we had a nice chat. I hope we all live long and well.

Catherine

Dx 7/17/2008, ILC, 4cm, Stage IIA, Grade 2, 0/11 nodes, ER+/PR+, HER2-
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Feb 16, 2020 12:31PM MikaMika wrote:

cathmg45,

Congrats and thank you so much for posting here!

What was your treatment? Could you please share?

Dx 8/2019, ILC, Stage IIA, ER+/PR+, HER2-
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Mar 10, 2020 09:02PM cathmg45 wrote:

Thanks MikaMika! I had a bmx, followed by 4 rounds of chemo: taxotere and cytoxan. Then I had 2.5 years of Tamoxifen before I threw in the towel because of side effects. I had reconstruction with implants a year after bmx. So far so good.

Dx 7/17/2008, ILC, 4cm, Stage IIA, Grade 2, 0/11 nodes, ER+/PR+, HER2-
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Mar 11, 2020 12:24AM MikaMika wrote:

cathmg45,

Thank you for your response!

Dx 8/2019, ILC, Stage IIA, ER+/PR+, HER2-
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Apr 12, 2020 11:21AM wallycat wrote:

I just completed 13 years, starting on 14....I posted in the ILC section since that is what I had (as a cancerversary post).

I know how you ladies feel...never thought I'd be out this far. Sure, it can change in a heartbeat, but that's life, right?

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Apr 12, 2020 01:09PM beach2beach wrote:

Congrats and a long, long time of cancerfree living!

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 12, 2020 03:58PM IAmElaine wrote:

I hit 16 years early last month. I had terrible stats when diagnosed but I'm still here and cancer free.

Happy Easter, ladies!

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Apr 13, 2020 10:33PM - edited Apr 13, 2020 10:34PM by HelloItsMe789

Congrats wallycat and IAmElaine!

Heart

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Apr 18, 2020 02:47PM kar123 wrote:

Such great news!!! Thank you so much for coming back and inspiring hope! 10 years for me in June!

Dx 6/2010, ILC, 6cm+, Stage IIIA, Grade 2, 2/7 nodes, ER+/PR+, HER2- Chemotherapy 6/28/2010 AC + T (Taxol) Surgery 11/17/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 1/24/2011 Breast, Lymph nodes Hormonal Therapy 4/4/2011 Arimidex (anastrozole) Hormonal Therapy 5/1/2013 Femara (letrozole)
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May 21, 2020 08:43PM skv0123 wrote:

thank you all so much for adding to this thread. I am 1 year from diagnosis, 10 mths our from a Bilateral Mastectomy. On tamoxifen & Lupron. Was ER/PR +, HER -, 2.5cm, 0 nodes. I only get on the board every few month now, but it has always been helpful to me.

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