Topic: ILC Long Term Survivors

Feb 1, 2020 11:17AM Sandiegohoneybee wrote:

hi. Did u do nerlynx? I’m Er and her2 positive. At crossroads.

Feb 3, 2020 10:27PM MikaMika wrote:

karen1956,

Congrats! I wish you to post here about your 44 year mark since that date. And for all of us I wish to read this post!

Feb 8, 2020 11:43PM - edited Feb 8, 2020 11:44PM by lauri

Fourteen years since I found the "thickening" in what used to be my left breast. At 75, many other things are falling apart but BC isn't one of my problems.

Feb 13, 2020 05:33PM cathmg45 wrote:

Hi everyone,

I will mark 12 years since diagnosis when this summer rolls around. Wow. I couldn't have imagined being at this point back then, since I was devastated by the diagnosis and year or so of treatments. I didn't even want to hear from my onc back then about my prognosis for survival. But here we are. The years since 2008 have had SO many peak moments. I miss my onc appointment last year, then decided that I should see him. I had to ask my husband what the doctor's name was-I had actually forgotten, and it wasn't just chemo brain!! I did see him and we had a nice chat. I hope we all live long and well.

Catherine

Mar 10, 2020 06:02PM cathmg45 wrote:

Thanks MikaMika! I had a bmx, followed by 4 rounds of chemo: taxotere and cytoxan. Then I had 2.5 years of Tamoxifen before I threw in the towel because of side effects. I had reconstruction with implants a year after bmx. So far so good.

Apr 12, 2020 08:21AM wallycat wrote:

I just completed 13 years, starting on 14....I posted in the ILC section since that is what I had (as a cancerversary post).

I know how you ladies feel...never thought I'd be out this far. Sure, it can change in a heartbeat, but that's life, right?

Apr 12, 2020 12:58PM IAmElaine wrote:

I hit 16 years early last month. I had terrible stats when diagnosed but I'm still here and cancer free.

Happy Easter, ladies!

Apr 18, 2020 11:47AM kar123 wrote:

Such great news!!! Thank you so much for coming back and inspiring hope! 10 years for me in June!

Aug 8, 2020 08:57AM antonia1 wrote:

It has been 10 years since I saw in the bathroom mirror my poor flattened and misshapen left breast and next month will mark the 10thanniversary of the official diagnosis. I’m fine, as far as I know, but still keeping my fingers crossed.

Sep 2, 2020 01:50PM bc101 wrote:

Hello!

I'm 7 years out and am feeling great. In the early years, I used to spend a lot of time on this site and most of it was wasted by worrying about one thing or another, but now I rarely venture here. Nowadays I worry more about Covid than cancer. What a year, huh? It's so inspiring to hear from the long term ILC survivors! I'm enjoying my life as much as I can and hoping for many more cancer-free years to come!

Sep 5, 2020 01:21PM OGT42 wrote:

I was diagnosed with ILC Stage 3A in May 2007. I was convinced that I was unlikely to survive and yet here I am, 13 years later, and healthy so far

Oct 10, 2020 08:16AM BeingPresent100 wrote:

Curious if there are any long term ILC survivors who had lymph node involvement and were diagnosed in their 40s? Anyone on here past 15 or 20 years? Thanks!

Oct 31, 2020 10:17AM bc101 wrote:

LillyIsHere - sorry I missed your post!

I was stage 2b with micromets in my sentinel node. I didn't have to do chemo (low Oncotype). It was really hard for me to decide whether or not I should do radiation, but since they gave me the option I decided to opt out. My only regret was getting breast implants. Five years later I was recommended to stop AI's due to my risk of osteoporosis.

It does get easier the further you go out, but of course the fear never goes away.

Best wishes to everyone here!

Jan 11, 2021 04:48PM MandaLynn wrote:

Hello all!

I passed my 12 years out mark last September. Feels so good to know I have survived so much. Unfortunately I am now living with a new diagnosis of Stage III Lymphedema in my right arm. I am planning on having surgery to help with that and it is definelty a bummer as it is something I will have to deal with in some form for the rest of my life. However, it is much easier knowing I'm cancer cured!