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Topic: Hyaluronic Acid? Can we take it?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Apr 19, 2013 01:38PM - edited Apr 19, 2013 01:45PM by Lily55

Lily55 wrote:

HA has been suggested to me as a moisturizer for my joints as letrozole has dried them out.........but I have a feeling I read somewhere that women with BC should not take hyaluronic acid, is this correct?  I have found this

http://www.denvernaturopathic.com/news/hyaluronicacid.html

http://www.livestrong.com/article/446769-what-are-hyaluronic-acids/

Googling just brings up conflicting info......

Dx 4/2012, ILC, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 5/3/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 8/15/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2013 Aromasin (exemestane) Radiation Therapy 3/7/2019 External: Bone Chemotherapy Taxol (paclitaxel)
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Apr 19, 2013 02:02PM jacksnana wrote:

I'd like to know this also, I've been taking osteo biflex, which contains this, and it definitely helps my knees. I took it before and have continued to take it since my diagnosis. Hopefully someone with more information will come along.

Dx 10/26/2009, IDC, 3cm, Stage IIA, Grade 1, 0/12 nodes, ER+/PR-, HER2+
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Jun 12, 2014 12:13PM - edited Jun 12, 2014 12:16PM by lane4

I'm interested in this, too. I've been taking glucosamine/chondroitin (I've tried three different brands) for about five months, but not sure it's helping much and it does cause me some gastric distress. I'm considering trying just hyaluronic acid, however I'm seeing conflicting information about HA and breast cancer. Has anyone asked their doctor about the safety of oral hyaluronic acid?

Dx 8/10/2009, DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+ Radiation Therapy 10/26/2009 Breast Surgery Lumpectomy: Right; Reconstruction (right): Fat grafting
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Mar 28, 2015 12:31PM texas94 wrote:

Hi ladies- did any of you ever find an answer to this? I'd like to add Hyaluronic acid to my supplements but am also confused. :)


ILC 10/2007 age 36 (BMX, 410 gummies, 3 ½yrs Tamox, Oncotype 19). ILC recurrence 6/2014 age 43 (6mos Taxol & FAC chemo, ALND, LUMP, biopatch left sac to keep implant in place, 33 Rads, Oophorectomy & 10yrs Femara). I also had Thyroid Cancer in 2004! Dx 10/19/2007, ILC, 1cm, Stage IB, 0/1 nodes, ER+/PR+, HER2- Dx 6/19/2014, ILC, 1cm, Stage IIIC, 11/19 nodes, ER+/PR+, HER2-
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Mar 28, 2015 01:28PM - edited Mar 28, 2015 01:34PM by leggo

I wouldn't. Way too many articles linking it to proliferation of cancer cells regardless of pathology. Makes sense to me. The acid regenerates cells so it stands to reason it would do the same with cancer cells, since our bodies no longer recognize the difference between the two.

ETA: my personal opinion only. 

"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
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Mar 28, 2015 05:13PM Lily55 wrote:

I have just remembered that about 7 years before diagnosis i took a strong course of this for back problems (prescribed for me) so no I would not take it now............I wonder if it is partly responsible for the development of the cancer I had

Dx 4/2012, ILC, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 5/3/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 8/15/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2013 Aromasin (exemestane) Radiation Therapy 3/7/2019 External: Bone Chemotherapy Taxol (paclitaxel)
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Mar 29, 2015 02:06PM leggo wrote:

I'm thinking it played a part in mine as well. I was using the face products like there was no tomorrow. Hindsight being 20/20 and all.

"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
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Mar 29, 2015 02:48PM SpecialK wrote:

I had a cortisone injection in my knee due to pain and swelling from a combo of Arimidex and an injury in May of '13.  The ortho doc also suggested that Synvisc could be injected if the cortisone was not effective enough, but fortunately it solved the acute problem.  Synvisc is injected HA - I did not need it, but after reading about it, I would not do it.  Here is some pertinent info:

http://cancerres.aacrjournals.org/content/66/21/10233.full.html


 

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Mar 29, 2015 02:59PM leggo wrote:

For sure. Prior to my mets diagnosis, my mets pain was being treated as costochondritis and I had a few cortisone shots. Doctor also suggested Synvisc. Thank gawd I didn't partake. Probably be dead long ago.

"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
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Mar 29, 2015 03:38PM - edited Mar 29, 2015 03:38PM by SpecialK

leggo - so glad you didn't have the Synvisc!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 9, 2015 01:03PM texas94 wrote:

Oh geez- I forgot to add this to my "favorite" topics and was wondering why I hadn't seen anyone respond! Sorry. :(

Thanks for the info ladies. I bought a bottle of HU and started taking it about 4 days ago but will now stop to ask my doctor and research more. Unfortunately it does seem as if it's helping, so it's a bummer it may increase the chance of cancer returning! Any other suggestions for joint pain? I haven't even started Femara yet and already have pretty significant join pain (I'll start taking it in one week). I guess my pain is from chemo pause and then an oophorectomy 6 weeks ago? I don't know why I'm having it already and my doctors haven't been much help. It began around week 3 of rads, but it's all over my body- every single joint- not limited to the rads area at all.

ILC 10/2007 age 36 (BMX, 410 gummies, 3 ½yrs Tamox, Oncotype 19). ILC recurrence 6/2014 age 43 (6mos Taxol & FAC chemo, ALND, LUMP, biopatch left sac to keep implant in place, 33 Rads, Oophorectomy & 10yrs Femara). I also had Thyroid Cancer in 2004! Dx 10/19/2007, ILC, 1cm, Stage IB, 0/1 nodes, ER+/PR+, HER2- Dx 6/19/2014, ILC, 1cm, Stage IIIC, 11/19 nodes, ER+/PR+, HER2-
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Apr 9, 2015 01:49PM SpecialK wrote:

texas - I found a reduction in joint pain (I have some arthritis, disk issues that predate breast cancer and am on Aromatase inhibitors - had a total hyst/ooph 15 years ago) from eating an anti-inflammatory diet - I was surprised how much difference it made.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 9, 2015 02:07PM - edited Apr 9, 2015 02:08PM by texas94

Thanks SpecialK! Do you mind expanding a bit on what diet you follow? I know people have different ideas on what anti-inflammatory means. :) I'm big into eating all organic and trying to make smart choices, so I'd love to try it! I've upped my turmeric and am hoping that helps. In the meantime I've been taking a prescription anti-inflammatory for about a week. It's only slightly helping, and obviously I don't want to continue taking it anyway.

ILC 10/2007 age 36 (BMX, 410 gummies, 3 ½yrs Tamox, Oncotype 19). ILC recurrence 6/2014 age 43 (6mos Taxol & FAC chemo, ALND, LUMP, biopatch left sac to keep implant in place, 33 Rads, Oophorectomy & 10yrs Femara). I also had Thyroid Cancer in 2004! Dx 10/19/2007, ILC, 1cm, Stage IB, 0/1 nodes, ER+/PR+, HER2- Dx 6/19/2014, ILC, 1cm, Stage IIIC, 11/19 nodes, ER+/PR+, HER2-
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Apr 9, 2015 02:25PM SpecialK wrote:

texas - the diet I follow is pretty restrictive - I cut out sugar, gluten, corn, soy, dairy, peanuts, and eggs - although after a couple of months I added free range chicken eggs back in.  I eat pastured, organic, or grass fed protein, I follow the clean 15/dirty dozen rules for produce.  I eat mostly high fiber and low glycemic index fruits and vegetables, and grains consist of quinoa, organic oats, brown rice and brown rice pasta.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 16, 2015 07:14PM texas94 wrote:

SpecialK- thanks for the info!!


ILC 10/2007 age 36 (BMX, 410 gummies, 3 ½yrs Tamox, Oncotype 19). ILC recurrence 6/2014 age 43 (6mos Taxol & FAC chemo, ALND, LUMP, biopatch left sac to keep implant in place, 33 Rads, Oophorectomy & 10yrs Femara). I also had Thyroid Cancer in 2004! Dx 10/19/2007, ILC, 1cm, Stage IB, 0/1 nodes, ER+/PR+, HER2- Dx 6/19/2014, ILC, 1cm, Stage IIIC, 11/19 nodes, ER+/PR+, HER2-
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Dec 29, 2018 06:40PM LillyDuff wrote:

So, is Hyaluronic Acid safe to use or not? I'm still confused.

I use it topically as a serum on my face only and see it in loads of skin care products. I do not take it as a supplement or injection. It has helped to reduce dry skin and fine wrinkles dramatically in my case, but if it can cause a recurrence, then will discontinue use. Does anyone know the answer here? Would like to know both answers topical skin use and oral supplements. Thanks in advance. Scary stuff as I'm just reading this now and have slathered the stuff on for the past year and a half!


Dx 4/25/2017, IDC, Left, 2cm, Stage IIB, Grade 3, 0/4 nodes, ER+/PR-, HER2+ (FISH) Chemotherapy 5/15/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 5/16/2017 Herceptin (trastuzumab) Targeted Therapy 5/16/2017 Perjeta (pertuzumab) Surgery 11/14/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 1/25/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/18/2018 Prophylactic ovary removal Hormonal Therapy 9/30/2018 Arimidex (anastrozole) Surgery 11/16/2018 Reconstruction (right): Fat grafting Hormonal Therapy Arimidex (anastrozole) Surgery
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Dec 30, 2018 08:57AM dakrock wrote:

I am also taking Letrozole.  I will be one year in on February 24, 2019.   I had a dexa scan and was told I had osteoporosis in my femur bone going into my hip.   Dr. Said I needed to have a zometa IV every six months.  I had my first one and will be due my second one in March.   I am afraid of continually taking this because it is an acid.   Anyone else take Zometa IV?

Bonnie Dx 12/4/2017, ILC, Right, 2cm, Stage IA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 12/5/2017 Femara (letrozole) Surgery 2/23/2018 Mastectomy: Right; Reconstruction (right): Nipple reconstruction, Saline implant Hormonal Therapy Arimidex (anastrozole)
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Jan 9, 2019 08:54PM Marchz wrote:

I addressed this concern with my MO and she seemed to think it was fine topically to use. I’m hoping she’s correct since my skin could use the help

Dx 3/2017, IDC, Right, 1cm, Stage IB, Grade 1, ER+/PR+, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Oct 15, 2019 11:44AM MissouriCatLady wrote:

bump - any new information on this subject?

Age 56, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Lumpectomy, 4/29/19 anastrazole (name-brand at CVS with a GoodRX coupon), 6/3/19 Rads, HP delayed due to low LVEF, complete response to neoadjuvant therapy
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Oct 16, 2019 01:00PM trinigirl50 wrote:

Missouri

I was hoping to hear some news on this as well. I am going to research it and then ask my MO. Will let you know if I find anything definitive or new.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/13/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Oct 16, 2019 02:52PM MissouriCatLady wrote:

Thank you, Trinigirl! I had no idea, and was trying to read about it, and found it a little confusing. I have CeraVe lotion, but it has this ingredient in it. I also have the generic Aveeno lotion that I used during radiation, and it does not, so I am going to continue with it. Thank you very much, Lisa

Age 56, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Lumpectomy, 4/29/19 anastrazole (name-brand at CVS with a GoodRX coupon), 6/3/19 Rads, HP delayed due to low LVEF, complete response to neoadjuvant therapy
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Oct 16, 2019 04:50PM trinigirl50 wrote:

Basically it seems to be safe to use topically, as in a face cream but not safe to be taken orally as in a supplement.

I personally am going to stay away from using it. I was hoping to help my poor face which has aged 10 years because of Letrozole (lines, wrinkles etc etc) but am hesitant to use anything that could stimulate any left over tumour cells. I know that using topical cream is a long way from ingesting it but I am neccesarily paranoid.

My MO didnt think it was a big deal to use topically.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/13/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Oct 17, 2019 10:50AM MissouriCatLady wrote:

Trinigirl, I relate completely on lines and wrinkles, my friend. The past few days, I have put the Aveeno lotion on my face, can't hurt anything. I have a friend at work who recommended Neutrogena, I have not looked into that. Not sure that moisturizers will take away these wrinkles, my anastrazole is probably part of it, no estrogen. Hope you are doing well. Hugs, Lisa

Age 56, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Lumpectomy, 4/29/19 anastrazole (name-brand at CVS with a GoodRX coupon), 6/3/19 Rads, HP delayed due to low LVEF, complete response to neoadjuvant therapy

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