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Dec 12, 2013 10:46AM
Warrior50, another young'un. Looks like you're in the middle of chemo and I hope you're getting through it.
JAN69, you are indeed a minority within our minority. Based on your dx, I assume you had chemo and that it's worked for you.
Holeinone (great name; dark humor? I assume you're not referring to golf), looks like you would just be finishing up chemo now? Hope you're hangin' in there. To me, 58 is still young.
kar123, you were 40? I appreciate you mentioning the thyroid aspect. I wonder if some of us were off, maybe subclinically, and that was a contributor.
MsPharoah, you're a little older than most of us, but I note that your cancer had a bit of an unusual profile with the microcalcifications.
Ksil, Rdrunner, Junipergirl, melmcbee, mary625, MBLizzy, Kiss77, Racy, sgreenarch: all of you (us), just pups!
Momine, very interesting about your stretches of different amounts of meat on your bones during your life and how it impacted your fertility/cycles.
sgreenarch, you're welcome. I, too, wonder especially about how many of us are DES daughters and if there's a connection between it and ILC that wouldn't start showing up until now (as we hit our 40s and 50s). I think of this as possibly analogous to what we now know as post-polio syndrome - took researchers many years to figure that one out, as there had never been a population of long-term survivors and it took time for the docs to compare notes on their patients.
I did not have children (didn't try, by choice) so I don't know what my pregnancy profile would have been. I did smoke, but was also terrifically fit for most of my adult life, ate well, have never been a drinker. I started menstruating at 11, which was early onset in my day. I took BC pills for about a year when I was 19 and they made me sick as a dog so I dropped them. I have had a horrible time with Tamoxifen but less so with a switch to Mylan brand. I have the profile to have warranted the BRCA test; I am negative.
I was thinking about this some more last night, and we are now just learning about breast density as a risk factor. With so many of us diagnosed pre-meno with large tumors, it makes it urgent that we push HARD for next-step diagnostics in the presence of dense breasts. I know a few states in the US have laws on the books now; it needs to be universal.
The year after I was diagnosed, the cancer center where I am treated asked me to sit on a patient panel. One of the things I told them is that they must amend their intake questionnaires at their breast center to include a question about Ashkenazi Jewish descent. This, too, needs to be a universal question.
None of us would ever wish this on anyone, but we ILC gals are a bit of a voice in the wilderness. What we lack in numbers, perhaps we can make up for in volume.
DX 07/2010, L ILC Stage IIIc, Grade 1, 15/15 nodes. R IDC, 1cm, Stage I, Grade 1, 0/2 nodes. Both ER+PR+ HER2-.