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Topic: Any triple negative ILC out there?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Oct 11, 2014 01:06AM

SoutherMother wrote:

I had IDC breast cancer in 2007, stage 1 but had a lesion in spine that was suspected of bc.  In 2008, I was dx with Thyroid Cancer, early stage.  Now, I am waiting for a treatment plan after a biopsy on a lymph node.  There are several nodes involved.  Including the deep ones.  I can't find anyone that has had ILC with triple negative receptors.  Please let me know if you are the same or have heard of anyone with the triple negative. 

Dx 9/2007, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/1/2007 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 10/1/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/1/2007 Breast Hormonal Therapy 3/1/2008 Arimidex (anastrozole) Dx 9/2014, ILC, Both breasts, 9/13 nodes, ER-/PR-, HER2- Chemotherapy 10/16/2014 AC Chemotherapy 12/28/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 3/2016, ILC, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 17, 2016 11:48PM JohnSmith wrote:

Purplegurll.
I'm very curious about which immunotherapy clinical trial you are doing. Can you share more info about it?
I assume you are doing some type of checkpoint inhibitor, either Opdivo (Nivolumab) or Keytruda (Pembrolizumab).
Do you have over-expression of PD1 / PDL1, or did your MO suggest Immunotherapy for other reasons?
I created a growing Immunotherapy group on Facebook. All cancers are represented in the group but I'm seeing an increase of TNBC posts.
Feel free to join if you're on FB. www.facebook.com/groups/TheCancerCure

Wife was Age 45 at Dx 4/2014. BMX Surgery 6/2014 revealed: ILC, Stage 2 (Multifocal ILC, largest lesion 2.2 cm), Grade 2, ER+/PR+ (95%), HER2-, Ki-67 5-10%, Oncotype 11; Variant in the ATM gene Dx 4/8/2014, ILC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2014 Mastectomy; Reconstruction (left); Reconstruction (right)
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Sep 18, 2016 02:50AM SoutherMother wrote:

Welcome Purplegurll:,

Thanks for joining our rare group. I would be interest in knowing which immunotherapy treatment you are receiving? I am plugging along with bi-monthly Opdivo treatments. I have had some progression in my spine while on Opdivo but I have only been taking it since July. I am hoping to do a chemo as my tumor markers are spiking. Has your Oncologist mentioned chemo in combination with immunotherapy

Dx 9/2007, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/1/2007 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 10/1/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/1/2007 Breast Hormonal Therapy 3/1/2008 Arimidex (anastrozole) Dx 9/2014, ILC, Both breasts, 9/13 nodes, ER-/PR-, HER2- Chemotherapy 10/16/2014 AC Chemotherapy 12/28/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 3/2016, ILC, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 18, 2016 06:58PM Purplegurll wrote:

Hello all,I am presently receiving keytruda. So far, so good. I will know more about status and further plans after my next scans in a few weeks.

Dx 2/2008, DCIS, 1cm, Stage 0, 0/0 nodes, ER-/PR-, HER2- Surgery 4/30/2008 Lumpectomy: Left Radiation Therapy 5/31/2008 Breast Dx 5/2014, ILC, 3cm, Stage IIB, Grade 2, 3/6 nodes, ER-/PR-, HER2- Chemotherapy 8/21/2014 AC Chemotherapy 10/30/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 1/2016, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Chemotherapy Xeloda (capecitabine)
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Sep 18, 2016 10:27PM SoutherMother wrote:

Purplegurll,

I have heard Keytruda is better than Opdivo but don't have any research to back it up. Thank you for letting us know. We will be standing by, eagerly waiting to hear about your scans and how you are doing through all of this. Did you mention that you are taking any other chemo or drug with the Keytruda? I see the Xeloda is mentioned in your lists of treatments, but not sure if that is past or present.

JohnSmith, thank you again for your information. I am checking in on your FB page every week. A beacon of light for me.

I have a meeting with my Oncologist tomorrow to try and figure out if the Opdivo is working. I love that I don't have all the side effects of chemo.

Michelle

Dx 9/2007, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/1/2007 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 10/1/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/1/2007 Breast Hormonal Therapy 3/1/2008 Arimidex (anastrozole) Dx 9/2014, ILC, Both breasts, 9/13 nodes, ER-/PR-, HER2- Chemotherapy 10/16/2014 AC Chemotherapy 12/28/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 3/2016, ILC, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 21, 2016 09:00PM Purplegurll wrote:

Hi Michelle,

Xeloda is a past treatment. It did not work for me. The clinical trial I am participating in has both keytruda and a parp inhibitor. I came off the parp inhibitor and I'm now doing keytruda only. Will keep you posted.

Dx 2/2008, DCIS, 1cm, Stage 0, 0/0 nodes, ER-/PR-, HER2- Surgery 4/30/2008 Lumpectomy: Left Radiation Therapy 5/31/2008 Breast Dx 5/2014, ILC, 3cm, Stage IIB, Grade 2, 3/6 nodes, ER-/PR-, HER2- Chemotherapy 8/21/2014 AC Chemotherapy 10/30/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 1/2016, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Chemotherapy Xeloda (capecitabine)
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Oct 10, 2016 04:03AM Numb wrote:

PILC here and just finished my treatment, I had AC+T and had 16 radiotherapy treatments, last one today.  Now I am feeling at a loose end as I cannot take any hormones to make sure this doesn't come back.  Of course there is no guarantee of anything I guess, just hope and pray.  Very interested in John Smith's efforts to enlighten us what is happening with ILC, particularly that PILC has a 100% 5-year survival rate - that is great news !

Dx 2/15/2016, ILC, Right, 2cm, Stage IA, Grade 1, 0/1 nodes, ER-/PR-, HER2- Surgery Lumpectomy; Lymph node removal: Sentinel
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Oct 11, 2016 12:42PM SoutherMother wrote:

Numb,

Can you verify that the 100% 5 year survival rate information for me? Please provide a link. Are you referring to PILC triple negative? That sure would make my day if that is true as I have never heard this from any oncologist yet. Thanks. I haven't kept up with John's page as I have been dealing with a compressed vertebrae and bone splinter. Surgery is Thursday.

Mi

Dx 9/2007, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/1/2007 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 10/1/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/1/2007 Breast Hormonal Therapy 3/1/2008 Arimidex (anastrozole) Dx 9/2014, ILC, Both breasts, 9/13 nodes, ER-/PR-, HER2- Chemotherapy 10/16/2014 AC Chemotherapy 12/28/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 3/2016, ILC, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 11, 2016 12:52PM - edited Oct 11, 2016 12:54PM by Numb

Southermother -   I read this yesterday morning on one of the links of the results from the First Symposium.  I would have to go back and try and find where I read it from.  I was very surprised as it said that there was a 100% guarantee on PILC not returning in the first 5 years. Someone else then commented that they thought PILC was more aggressive than Classic ILC, and I thought that too.   Give me a day or two to find this as I won't be at my computer for the next few hours.  Now it may not have been triple negatve, I can't remember specifically.


Dx 2/15/2016, ILC, Right, 2cm, Stage IA, Grade 1, 0/1 nodes, ER-/PR-, HER2- Surgery Lumpectomy; Lymph node removal: Sentinel
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Oct 11, 2016 01:18PM SoutherMother wrote:

Numb,

If you could verify it is for triple negative, that would be a blessing. Thank you.

Michelle

Dx 9/2007, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/1/2007 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 10/1/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/1/2007 Breast Hormonal Therapy 3/1/2008 Arimidex (anastrozole) Dx 9/2014, ILC, Both breasts, 9/13 nodes, ER-/PR-, HER2- Chemotherapy 10/16/2014 AC Chemotherapy 12/28/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 3/2016, ILC, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 11, 2016 04:40PM Optimist52 wrote:









Hi Numb and Michelle,

This is the post from the thread 'Oncotype score for ILC'. I have put the relevant part in bold. There is a reference to one patient with HR (hormone receptor) negative PILC.
It almost seems too good to be true to have 100% 5 year survival but I'm going to go with it! When I had my first appointment with my MO last year she made me think I was on death's door so it's great to see this.
























Posted on: Oct 9, 2016 05:25PMReport this Post




Silicon Valley -, CA, USAJoined: Apr 2014Posts: 606

JohnSmith wrote:

As some know, the ESMO 2016 Oncology conference in Copenhagen, Denmark is happening this weekend.
[ESMO = European Society for Medical Oncology]
Dr. Hope Rugo, a well respected BC oncologist at UCSF tweeted (@hoperugo) a slide image from the presentation:
"Analysis of OncotypeDX recurrence score and its clinical implications in invasive lobular carcinomas of the breast".
Her comment was interesting: "Lobular cancers much less likely to have hi RS (2.2%). A group who can omit testing?"

Anyway, here's the Abstract: 148PD - "Analysis of Oncotype DX recurrence score and its clinical implications in invasive lobular carcinomas of the breast"

Background
The Oncotype DX breast cancer assay is increasingly being used to guide treatment decisions for patients with early stage, HR+, HER2- BC, regardless of the histologic subtype. The utility of the Oncotype DX in decision making for treatment of invasive lobular carcinoma (ILC) has not been investigated.

Methods
We performed a retrospective analysis of early stage breast cancer patients treated at Penn State Cancer Institute from 2001 to 2011 and identified 102 patients with ILC. We evaluated the clinicopathological features and compared the Recurrence Score (RS) distribution in this population to that reported by Genomic Heath for the ductal histology (Kruskal-Wallis test). Median follow-up was 4.5 years

Results
We found that the RS distribution for ILC differed significantly from that reported by Genomic Health (P < 0.0001). The vast majority of patients (97.8%) have low/intermediate RS and only 2.2% high RS whereas the RS distribution reported by Genomic Health is 54.2% for low RS, 20.6% for intermediate and 25.2% high RS. We also found a statistically significant difference in the RS distribution between pure ILC and pleomorphic ILC (P = 0.027). When using RS of 25 as cutoff for chemotherapy recommendation, 93.3% of ILC patients have RS ≤ 25 and would not be candidates for adjuvant chemotherapy. Most tumors were T1-T2 (93.5%) and 6.5% were T3. Most tumors (64.4%) were node negative, 21% had 1-3 lymph nodes positive and 14.4% had N2/N3 disease. All the pure ILC tumors were hormone positive and only one pleomorphic ILC tumor was HR negative. 5.8 % tumors were Her 2 +. The 5 yr. Disease free survival (DFS) for the entire cohort was 84.9% and 5 yr. overall survival (OS) was 91.4%. OS varies significantly by histologic subtype with 5 yr. OS being 100% for pleomorphic ILC, 92% for pure ILC and 73% for mixed subtypes.

Conclusions: The Oncotype DX RS distribution in invasive lobular carcinoma is unique, differing significantly from that in invasive ductal carcinoma. Majority of patients (97.8%) have low/intermediate RS and 93.3% have RS ≤ 25 and would not be candidates for adjuvant chemotherapy. The clinical usefulness and cost-effectiveness of the Oncotype DX in guiding treatment for ILC should be further investigated.

Authors: C. I. Truica, J. Felts, B. Han, J. Zhu (Penn State Milton S. Hershey Medical Center, USA)
Disclosure: All authors have declared no conflicts of interest.
Legal entity responsible for the study: Jesse Felts Cristina Truica
Funding: Pink Zone and Lady Lion Basketball Breast Cancer Research Endowment and the Federal US Work Study program

Second diagnosis PILC - Oncotype 22, isolated tumour cells in 2 nodes Dx 10/2003, ILC, Left, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 10/23/2003 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/2/2004 3DCRT: Breast Hormonal Therapy 3/3/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 6/23/2015, ILC, Left, 4cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- Surgery 7/6/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 8/13/2015 Femara (letrozole)
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Oct 11, 2016 04:44PM Numb wrote:

OPTIMIST -  Thank you so much for finding this.  I knew I read it but I couldn't remember where.  You have saved me a lot of time trying to find it ThumbsUp

Dx 2/15/2016, ILC, Right, 2cm, Stage IA, Grade 1, 0/1 nodes, ER-/PR-, HER2- Surgery Lumpectomy; Lymph node removal: Sentinel
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Oct 11, 2016 08:25PM SoutherMother wrote:

Thank you for your quick response(s). Bear with me as I am on pain meds and definitely not my normal self, After reading the information, I still don't feel like Triple negative PILC has been addressed. I see only one PILC mentioned in the study, and that was was not verified as a triple negative. Is my foggy brain missing something?

Dx 9/2007, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/1/2007 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 10/1/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/1/2007 Breast Hormonal Therapy 3/1/2008 Arimidex (anastrozole) Dx 9/2014, ILC, Both breasts, 9/13 nodes, ER-/PR-, HER2- Chemotherapy 10/16/2014 AC Chemotherapy 12/28/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 3/2016, ILC, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 12, 2016 03:25AM Numb wrote:

SOUTHERMOTHER -  We are all doubting Thomas's here.  Even when I  read something positive I want more proof.  Even if my Oncologist reassure me I don't believe her.  So I am going to just read this latest news as I see it and take hope from it.  I am just zoning in on the PLEOMORPHIC side of this as I originally thought that this was an extra negative thing my cancer had, along with the triple negative, so now I am crossing that off the list and just hoping for more optimistic progress for the triple negative end of it. 

Dx 2/15/2016, ILC, Right, 2cm, Stage IA, Grade 1, 0/1 nodes, ER-/PR-, HER2- Surgery Lumpectomy; Lymph node removal: Sentinel
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Oct 12, 2016 12:27PM - edited Apr 8, 2017 08:27AM by Moderators

Numb,

I don't blame you for wanting to hold onto some hope. I am more guarded when you see 100% guarantee verbage. Then to add to it, you have to look at how many people were studied and does it actually pertain to your subtype. Triple Negative PILC is so rare and difficult to get a group together to study that it would surprise me to see that happen. I would never place my hope on a 100% guarantee with only one participant in my subtype. I don't think that qualifies me as a doubting thomas. I have learned you have to read the finer print.

Dx 9/2007, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-Surgery 9/2/2007 Lumpectomy: Left; Lymph node removal: LeftChemotherapy 10/2/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel)Radiation Therapy 11/2/2007 BreastHormonal Therapy 3/2/2008 Arimidex (anastrozole)Dx 9/2014, ILC, Both breasts, 9/13 nodes, ER-/PR-, HER2-Chemotherapy 10/17/2014 ACChemotherapy 12/29/2014 Carboplatin (Paraplatin), Taxol (paclitaxel)Dx 3/2016, ILC, Stage IV, metastasized to bone, ER-/PR-, HER2-Surgery MastectomyRadiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall

Edited by Mods to clean up Edit/Delete links.

Dx 9/2007, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/1/2007 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 10/1/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/1/2007 Breast Hormonal Therapy 3/1/2008 Arimidex (anastrozole) Dx 9/2014, ILC, Both breasts, 9/13 nodes, ER-/PR-, HER2- Chemotherapy 10/16/2014 AC Chemotherapy 12/28/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 3/2016, ILC, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 13, 2016 03:19AM Numb wrote:

Southermother  -  I understand what you are saying, but to me at my stage if I see one person with triple negative PILC surviving for 5 years then it gives me some hope, that is how I look at it, but of course it doesn't matter what the results of surveys are really because even if 100 or 1000 PILC triple negative people survive for 5 years it doesn't mean that I will.   I would prefer to think that I would though Smile

Dx 2/15/2016, ILC, Right, 2cm, Stage IA, Grade 1, 0/1 nodes, ER-/PR-, HER2- Surgery Lumpectomy; Lymph node removal: Sentinel
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Oct 14, 2016 03:51PM SoutherMother wrote:

Numb,

Glad you can get hope from the abstract. It reminds me of something from the Bible, Matthew 17:20.

Michell

Dx 9/2007, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/1/2007 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 10/1/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/1/2007 Breast Hormonal Therapy 3/1/2008 Arimidex (anastrozole) Dx 9/2014, ILC, Both breasts, 9/13 nodes, ER-/PR-, HER2- Chemotherapy 10/16/2014 AC Chemotherapy 12/28/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Dx 3/2016, ILC, Stage IV, metastasized to bone, ER-/PR-, HER2- Surgery Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 4, 2017 12:45PM - edited Apr 4, 2017 01:06PM by Tinkerbells

Hello to all!

Posting for my cousin in Italy, who just got back path report for mastectomy following a BC recurrence. Her original DX is ILC ER/PR +, Her 2 -. She had lumpectomy, rads and tamoxifen. She recurred to bone and has been stable (NED?) for 5 years. She just had recurrence to contralateral breast ILC ER/PR 2%, Her 2 - 3.5 cm, grade 2, KI 35%, no nodes.

Am I wrong in presuming the 2% renders her triple negative, ILC, especially since she is on anti-hormonal for her ILC mets?

And given her profile, she will likely undergo chemo again? She doesn't meet with her onc for another 2 weeks and is anxious to know what you all say and what your experience has been. Thanks in advance

Contains some artificial additives and preservatives. Dx 2/25/2014, DCIS, Grade 3, ER-/PR-, HER2+ Dx 2/25/2014, IDC, 1cm, Stage IIA, Grade 3, 1/2 nodes, ER-/PR-, HER2+ Surgery 2/28/2014 Mastectomy: Left, Right Chemotherapy 4/9/2014 AC Targeted Therapy 5/31/2014 Herceptin (trastuzumab) Targeted Therapy 5/31/2014 Perjeta (pertuzumab) Chemotherapy 5/31/2014 Taxol (paclitaxel)
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Apr 4, 2017 03:25PM anotherNYCGirl wrote:

Hi Tinkerbells,

Like your sister, I was ILC er/pr+ first time around. You can read on my profile below that I had lumpectomy, chemo, rads, tamox, etc. Then er/pr- followed by dbx and another chemo.

I hope that her treatments are quick and easy!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 7, 2017 11:44PM Tinkerbells wrote:

thanks for the info! It was that 2% positivity that had me confused. I think anything under 5% qualifies as negative. I'm sorry she has to do chemo again, but it looks like this is contained and a stage 1, so that's good news

Contains some artificial additives and preservatives. Dx 2/25/2014, DCIS, Grade 3, ER-/PR-, HER2+ Dx 2/25/2014, IDC, 1cm, Stage IIA, Grade 3, 1/2 nodes, ER-/PR-, HER2+ Surgery 2/28/2014 Mastectomy: Left, Right Chemotherapy 4/9/2014 AC Targeted Therapy 5/31/2014 Herceptin (trastuzumab) Targeted Therapy 5/31/2014 Perjeta (pertuzumab) Chemotherapy 5/31/2014 Taxol (paclitaxel)
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Jun 25, 2018 03:08AM Ginagia1 wrote:

I have Triple Negative polymorphic ILC.


Very rare.


Dx 2/2017, DCIS/ILC/IDC, Left, 6cm+, Stage IIIC, Grade 3, 6/12 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 3/1/2017 AC + T (Taxol) Chemotherapy 2/13/2018 Xeloda (capecitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Feb 14, 2019 05:13PM Numb wrote:

It has been 3 years now for me since I was first diagnosed with PILC triple negative breast cancer. I had lumpectomy, then 4 round AC and 12 rounds Taxol and 15 rounds radiation. I had recent mammogram and results are NORMAL. Thank God.

Dx 2/15/2016, ILC, Right, 2cm, Stage IA, Grade 1, 0/1 nodes, ER-/PR-, HER2- Surgery Lumpectomy; Lymph node removal: Sentinel

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