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All TopicsForum: ILC (Invasive Lobular Carcinoma) → Topic: Diagnosed with ILC - RARE to be Triple Negative?

Topic: Diagnosed with ILC - RARE to be Triple Negative?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Dec 6, 2017 06:07PM

Krissy37 wrote:

Hello

I posted on the Triple Negative board and now Trying here. I was diagnosed ILC Triple Negative. 2 cm mass on ultrasound at 1:00 position - higher up towards my muscle/ chest wall. Waiting for CT scan appointment for staging. This is my second time with cancer. I had DCIS about 10 years ago at age 37, Lumpectomy and rads.

I am told mastectomy and 6 months chemo will be my treatment this time as I can't have more radiation.

I've searched the boards and cannot find anyone else with ILC -TN. Anyone else facing or have faced this particular diagnosis? I'm really scared

Dx 3/19/2008, DCIS, Right, 5cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
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Dec 6, 2017 10:21PM - edited Dec 6, 2017 10:32PM by Icietla

Hi Krissy. I am so sorry about your having another bout with breast cancer. Yes, yours is a rare diagnosis. Yes, we have other members with that diagnosis. You are not alone.

https://community.breastcancer.org/forum/5/topics/858187?page=1

https://community.breastcancer.org/forum/71/topics/825314?page=1

More members with your diagnosis are on Agatha's thread linked here. Agatha's diagnosis was changed before she started Chemotherapy.

https://community.breastcancer.org/forum/71/topics/858708?page=1%E2%80%8B

(((Hugs)))

Dx 2/12/2016, ILC, Right, 2cm, Stage IIA, Grade 1, 0/13 nodes, ER+/PR+, HER2- Surgery 2/19/2016 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 4/1/2016 Femara (letrozole) Surgery 4/25/2016 Prophylactic ovary removal
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Dec 7, 2017 03:02PM AgathaNYC wrote:

Hi, Krissy -

I just left a response on your thread in the Triple Negative forum. It is rare, but it happens. Turns out that I have a mix of IDC and ILC.

Hope your treatment goes well!

Dx 9/11/2017, ILC/IDC, Right, 6cm+, Stage IIIB, Grade 3, ER-/PR-, HER2- Chemotherapy 10/5/2017 AC + T (Taxol) Radiation Therapy Chemotherapy Xeloda (capecitabine) Surgery Lumpectomy: Right

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