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All TopicsForum: ILC (Invasive Lobular Carcinoma) → Topic: Diagnosed with ILC - RARE to be Triple Negative?

Topic: Diagnosed with ILC - RARE to be Triple Negative?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Dec 6, 2017 06:07PM

Krissy37 wrote:


I posted on the Triple Negative board and now Trying here. I was diagnosed ILC Triple Negative. 2 cm mass on ultrasound at 1:00 position - higher up towards my muscle/ chest wall. Waiting for CT scan appointment for staging. This is my second time with cancer. I had DCIS about 10 years ago at age 37, Lumpectomy and rads.

I am told mastectomy and 6 months chemo will be my treatment this time as I can't have more radiation.

I've searched the boards and cannot find anyone else with ILC -TN. Anyone else facing or have faced this particular diagnosis? I'm really scared

Dx 3/19/2008, DCIS, Right, 5cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
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Dec 6, 2017 10:21PM - edited Dec 6, 2017 10:32PM by Icietla

Hi Krissy. I am so sorry about your having another bout with breast cancer. Yes, yours is a rare diagnosis. Yes, we have other members with that diagnosis. You are not alone.



More members with your diagnosis are on Agatha's thread linked here. Agatha's diagnosis was changed before she started Chemotherapy.



Dx 2/12/2016, ILC, Right, 2cm, Stage IIA, Grade 1, 0/13 nodes, ER+/PR+, HER2- Surgery 2/19/2016 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 4/1/2016 Femara (letrozole) Surgery 4/25/2016 Prophylactic ovary removal
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Dec 7, 2017 03:02PM AgathaNYC wrote:

Hi, Krissy -

I just left a response on your thread in the Triple Negative forum. It is rare, but it happens. Turns out that I have a mix of IDC and ILC.

Hope your treatment goes well!

Dx 9/11/2017, ILC/IDC, Right, 6cm+, Stage IIIB, Grade 3, ER-/PR-, HER2- Chemotherapy 10/5/2017 AC + T (Taxol) Radiation Therapy Chemotherapy Xeloda (capecitabine) Surgery Lumpectomy: Right

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