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Topic: Collarbone Pain

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Dec 20, 2017 09:36AM

sticec wrote:

Hello,

It has been a while since I last post on here. I do check in form time to time and read up on some of the topics. I find myself here when I need the advice or words from my fellow sisters. I have been having pain in my collarbone for almost 2 months now. It started out as a dull pain and now can pretty intense. I can move my arm and neck fine with no pain. It aches when I am doing nothing or when trying to fall asleep. There is no pain to the touch either. Has anyone experiences this pain?


Thanks,

Chrissy

Diagnosed May 2007 at the age of 35 with ILC stageIII Grade 3. Both sent and axil nodes positive. Estro+ Prog- her2- BRCA1+. Bilat Mast 2/2008. Two failed attempts at implants. Diep surgery May 2011. Dx 5/12/2007, ILC, Left, 2cm, Stage IIIA, Grade 3, 12/18 nodes, ER+/PR-, HER2-
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Dec 21, 2017 02:47AM dtad wrote:

Hi there. So sorry you are in pain. The general rule of them is to report any new symptom lasting 2 or more weeks. You are way passed that mark! I know its scary but think about how relieved you will be to find out it is nothing serious. Good luck and keep us posted.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Dec 21, 2017 12:46PM sticec wrote:

I called my Onc office yesterday and they just called me back. Scheduled me for a chest CT scan next Wednesday. At least I can get through the holidays and then deal with this. I am sure it is nothing serious, but no real reason why I should be having any pain there. If it hurt to move, I would understand. But the pain is when I am doing nothing. Thanks for the support @dtad!

Diagnosed May 2007 at the age of 35 with ILC stageIII Grade 3. Both sent and axil nodes positive. Estro+ Prog- her2- BRCA1+. Bilat Mast 2/2008. Two failed attempts at implants. Diep surgery May 2011. Dx 5/12/2007, ILC, Left, 2cm, Stage IIIA, Grade 3, 12/18 nodes, ER+/PR-, HER2-
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Dec 22, 2017 04:12AM claireinaz wrote:

Let us know how it goes. My MO also told me the same thing (unexplained pain etc; call after 2 weeks).

I hope it's nothing!

Claire in AZ

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Dec 23, 2017 09:44AM sticec wrote:

Yes, mine has said the same. I just thought it would, or was hoping, it would go away. After 10 years clear, I just hate waving the red flag. I am sure it will be OK and something totally unrelated to my BC. Thanks again for your support!

Diagnosed May 2007 at the age of 35 with ILC stageIII Grade 3. Both sent and axil nodes positive. Estro+ Prog- her2- BRCA1+. Bilat Mast 2/2008. Two failed attempts at implants. Diep surgery May 2011. Dx 5/12/2007, ILC, Left, 2cm, Stage IIIA, Grade 3, 12/18 nodes, ER+/PR-, HER2-
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Dec 23, 2017 01:12PM beach2beach wrote:

Glad you are scheduled for a scan just to be sure. Congrats on the 10yrs clear and I'm sending all the positive thoughts that it is nothing also.

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 1, 2018 10:01AM sticec wrote:

No call yet from docs office. I am assuming that means it is most likely clear.

Diagnosed May 2007 at the age of 35 with ILC stageIII Grade 3. Both sent and axil nodes positive. Estro+ Prog- her2- BRCA1+. Bilat Mast 2/2008. Two failed attempts at implants. Diep surgery May 2011. Dx 5/12/2007, ILC, Left, 2cm, Stage IIIA, Grade 3, 12/18 nodes, ER+/PR-, HER2-
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Jan 1, 2018 04:01PM claireinaz wrote:

Fingers crossed!

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Jan 2, 2018 02:48PM sticec wrote:

Docs office didn't call until 6:15. I missed the call! In the past they have called and left a message stating scans were clear and if I had questions or concerns to give them a call. This time they stated they were calling to discuss my results and to pleace call them in the morning (phones were already switched to night call service). Trying not to freak out!

Diagnosed May 2007 at the age of 35 with ILC stageIII Grade 3. Both sent and axil nodes positive. Estro+ Prog- her2- BRCA1+. Bilat Mast 2/2008. Two failed attempts at implants. Diep surgery May 2011. Dx 5/12/2007, ILC, Left, 2cm, Stage IIIA, Grade 3, 12/18 nodes, ER+/PR-, HER2-
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Jan 3, 2018 01:18PM EastcoastTS wrote:

Hope all is well.

Dx@ 49. Oncotype: 14, BRCA 1/2- Dx 1/4/2017, ILC, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/26/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/7/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 15, 2018 06:54AM sunnydays18 wrote:

Did you hear back?

Dx Jul 2016, 35 y/o, Stage IIIa Triple Neg, 6+ nodes, neo-adjuvant TC/AC, BMX and Axillary Node Dissection 1/1/17, PCR, 25 rads Finished 4/17
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Feb 24, 2018 08:47AM lpk29 wrote:

are you ok? What did they say?

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Mar 19, 2019 01:57PM Jojo0529 wrote:

has anyone heard from Sticec ? Hope she is ok

ONCO 17 ....ki-67 25% miotic 1. Dx 7/30/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/20/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left Chemotherapy 9/3/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/1/2015 Arimidex (anastrozole) Surgery 1/11/2016 Prophylactic ovary removal; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement

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