Lobular Breast Cancer (ILC) and the Lobular Breast Cancer Alliance (https://lobularbreastcancer.org) will be featured on the final day of Harvard Medical School's annual comprehensive educational course.
Breast Cancer: New Horizons, Current Controversies
July 12 – 14, 2018
Boston Marriott Long Wharf in Boston, MA
This three-day annual course is organized as an educational opportunity for oncologists, oncology nurses, nurse practitioners and other health care providers interested in the care of women with breast cancer.
Lobular Breast Cancer will be the focus of this course on Saturday July 14th. Patient advocates are invited to register for and attend this course using a special discount rate for advocates only. The lobular specific agenda will include:
Immunotherapy in Breast Cancer
ER+ Breast Cancer with a Special Focus on ILC
Imaging, Pathology and Surgery
Biology and Special Subtypes
The Lobular Breast Cancer Alliance and the Importance of Patient Advocacy in Clinical Research How to Register for this Course as an Advocate
Patient advocates must register directly through the Breast Cancer: New Horizons, Current Controversies registration page. Advocates can attend the full three-day breast cancer educational course, or the Saturday July 14 ILC sessions only.
Advocates who register can use a discount code (DISCOUNT50) on the payment page of registration for a special patient advocate registration rate of $50. This code is intended for PATIENT ADVOCATES ONLY. When completing the registration form, advocates can select "other" in their profile under medical specialty and profession, and may also write in a hospital affiliation "LBCA" if needed.
Please review the Course Website for comprehensive course description and agenda, online registration and to find information about hotel discounts and course location. Patient Advocates: PLEASE READ BEFORE REGISTERING What is a Patient Advocate for ILC?
A patient advocate can be a patient, caregiver, survivor or co-survivor of ILC who is working to advance research and improve patient outcomes for current and future patients. Patient advocacy can take many forms:
- Research advocates partner with researchers and institutions
- Educator advocates share information about ILC in their communities, online or within breast cancer organizations to raise awareness and share quality information about ILC
- Peer mentors partner with qualified peer support services to help other patients one-on-one
- Fundraisers support outreach and ILC research by raising money to support critical needs
- Public policy advocates work to change health policy.
LBCA welcomes all established patient advocates as well as those who are interested in becoming new patient advocates for ILC. We will share more information about ILC patient advocacy opportunities in the coming months. Why attend this Educational Session?
Patient advocates who attend can learn about the science and clinical care of lobular breast cancer. They will meet other patient advocates working to advance research and patient care for ILC from around the country. They will learn about the Lobular Breast Cancer Alliance and how to get involved to advance ILC research and patient outcomes. How much will it cost to attend?
Patient advocates receive a special discounted registration rate, however because LBCA is a new organization and only recently eligible to fundraise there are no scholarships available to assist with travel to Boston or hotel costs.
We encourage you to use this thread to contact others if you're looking for a roommate or to ask questions that the LBCA will try and answer. For those who can't attend, we are working with course organizers to videotape the Saturday July 14 ILC portion of this event and hope to make the content of the ILC Sessions available online in our Resource Library. What Patient Advocates can Expect
Please know that this event is NOT an appropriate forum to seek personal medical advice from course faculty or attendees, or receive personal medical consultations. All patient advocates will be expected to REFRAIN FROM ASKING FOR PERSONAL MEDICAL ADVICE ABOUT THEIR DIAGNOSIS OR COURSE OF TREATMENT. About the Course Content
Advocates should be aware that this course is created for and the content is tailored to physicians and trained health care workers and the curriculum and presentation is not geared for general patient education. Patient Advocate Gatherings
LBCA plans to facilitate opportunities to gather advocates on Friday night July 13th and Saturday afternoon July 14th. We hope you will be able to join. We will communicate more details to registrants closer to the event. Questions?
Please contact course organizers directly if you have problems registering on the website, hotel reservation questions or questions about course logistics. CEPrograms@hms.harvard.edu or call (617) 384-8600 Monday–Friday, 9 am–5 pm (ET)
Pleomorphic ILC, Onco DX score 16
11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2-
12/13/2010 Mastectomy: Left; Reconstruction (left): Silicone implant
1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/23/2014 Femara (letrozole)
12/5/2018 Mastectomy: Right; Reconstruction (right): Silicone implant
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