Jul 14, 2018 11:03AM Peacetoallcuzweneedit wrote:
Hi Painters - I am so sorry you are here...and the beginning is so rough period...and the decisions and unknowns bring a lot of fear.
DCIS is Stage 0 cancer...it has not developed the ability to leave the ducts and travel outside or "invade" yet...when does it develop the ability to invade?? That is the question with an unknown answer. My 6cm of grade 3 DCIS with necrosis did not invade the surrounding tissue, but my right side 1mm DCIS grade 1-2 did develop the ability to invade, and therefore it became a different diagnosis of Invasive Ductal Carcinoma.
I had a double mastectomy last June - only one lymph node removed. The surgery is life changing...but I got through it...there are great threads about mastectomies and I would suggest searching "double mastectomy" using the tab on the menu. You will find so much information and feedback from other ladies having gone through the same surgery. You will have drains, and they will be a pain in the rear. The pain, at least for me, was very manageable. I would also suggest you find a certified lymphedema therapist in your area or ask for a referral. You will want to have a consult and get some initial measures for your arm and hand in case any issues arise...and they are also a great resource for getting through healing from your lymph node removal.
I am sending cyber support Painters...